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Health-related quality of life in family members of patients with burns
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Neuroscience, Psychiatry, University Hospital.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Neuroscience, Psychiatry, University Hospital.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Surgical Sciences, Plastic Surgery.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Neuroscience, Psychiatry, University Hospital.
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2014 (English)In: Journal of Burn Care & Research, ISSN 1559-047X, E-ISSN 1559-0488, Vol. 35, no 3, 243-250 p.Article in journal (Refereed) Published
Abstract [en]

A severe burn not only affects the patients, but may also have a great impact on the lives of family members. It is known that family members of patients with burns experience psychological distress, but health-related quality of life (HRQoL) has not been studied in this group. The aim was to study predictors of HRQoL in family members of patients with burns. Forty-four family members of adult patients treated in a burn center, between 2000 and 2007, completed questionnaires during care, and at 3, 6, and 12 months after injury. HRQoL was assessed with the EuroQol 5D (EQ-5D), which consists of the dimensions: mobility, self-care, usual activities, pain, and anxiety/depression. The questionnaire generates an EQ-5D index and a visual analog scale (VAS) score. Overall, the EQ-5D index was similar to that of the general population. A slight improvement in HRQoL was found in the VAS scores and in the anxiety/depression dimension over time. In regression models, HRQoL was primarily predicted by earlier life events, symptoms of post-traumatic stress disorder, and HRQoL, assessed during the patients’ hospitalization. In summary, HRQoL assessed with VAS scores increased slightly during the first year postburn, and early screening for life events and psychological symptoms, and HRQoL might be useful in identifying family members in need of support.

Place, publisher, year, edition, pages
2014. Vol. 35, no 3, 243-250 p.
Keyword [en]
burns, family members, injury, health related quality of life, rehabilitation
National Category
Psychiatry Surgery Nursing
Research subject
Psychiatry; Caring Sciences in Medical Sciences
Identifiers
URN: urn:nbn:se:uu:diva-208623DOI: 10.1097/BCR.0b013e318295744eISI: 000335394600015OAI: oai:DiVA.org:uu-208623DiVA: diva2:653787
Available from: 2013-10-06 Created: 2013-10-06 Last updated: 2017-12-06Bibliographically approved
In thesis
1. Family Members of Patients with Burns: Experiences of a Distressful Episode
Open this publication in new window or tab >>Family Members of Patients with Burns: Experiences of a Distressful Episode
2013 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

A severe burn is a trauma associated with long lasting consequences, not only for the survivor but also for the family. Although it is recognized that family members are central in providing social support for the patients, previous research has not focused extensively on this group. The aims of this thesis were to increase knowledge about psychological symptoms and health-related quality of life (HRQoL) in family members of patients with burns, as well as to explore their experiences of burn care and rehabilitation. The research questions were approached using quantitative and qualitative methods.

The results showed that most family members demonstrate normal to mild levels of psychological symptoms, while one third demonstrate moderate to severe symptoms during care. The symptoms decreased over time and could be predicted to a certain degree by early symptoms.

Further, family members’ report of HRQoL is similar to that of the general population. An improvement is seen over time and HRQoL could be predicted in part by earlier life events and psychological symptoms.

Family members’ experiences were explored in an interview study. Qualitative content analysis revealed that the time in hospital is stressful, although there were experiences of a positive character.  Family members might benefit from being cared for in a more individualized way. The communication between health care providers and the family members could be improved.

Finally, a qualitative content analysis revealed that family members’ experiences and views concerning support is highly individual. There were experiences of sufficient support as well as lack of professional support. Treatment of family members should be modified according to personal circumstances, and it is important to actively include family members in the care process, both before and after discharge.

In summary, being a family member of a burn survivor is a distressful experience, not only during care but in many cases also after discharge. The treatment of family members within burn care should be individualized. Some persons are more vulnerable than others and it might be possible to identify those in need of support while care is still ongoing.

Place, publisher, year, edition, pages
Uppsala: Acta Universitatis Upsaliensis, 2013. 56 p.
Series
Digital Comprehensive Summaries of Uppsala Dissertations from the Faculty of Medicine, ISSN 1651-6206 ; 935
Keyword
Critical care, Burns, Experiences, Health-related quality of life, Family members, Nursing, Support, Psychological symptoms
National Category
Nursing Surgery Psychiatry
Research subject
Psychiatry; Caring Sciences in Medical Sciences
Identifiers
urn:nbn:se:uu:diva-208626 (URN)978-91-554-8768-3 (ISBN)
Public defence
2013-11-22, Auditorium Minus, Gustavianum, Akademigatan 3, Uppsala, 13:15 (Swedish)
Opponent
Supervisors
Available from: 2013-10-29 Created: 2013-10-06 Last updated: 2014-01-23

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Bäckström, JosefinÖster, CaisaGerdin, BengtEkselius, LisaWillebrand, Mimmie

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