uu.seUppsala University Publications
Change search
ReferencesLink to record
Permanent link

Direct link
A Delphi study to determine the European core curriculum for Master programmes in genetic counselling
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Caring Sciences.
Show others and affiliations
2013 (English)In: European Journal of Human Genetics, ISSN 1018-4813, E-ISSN 1476-5438, Vol. 21, no 10, 1060-1066 p.Article in journal (Refereed) Published
Abstract [en]

Genetic counsellors have been working in some European countries for at least 30 years. Although there are great disparities between the numbers, education, practice and acceptance of these professionals across Europe, it is evident that genetic counsellors and genetic nurses in Europe are working autonomously within teams to deliver patient care. The aim of this study was to use the Delphi research method to develop a core curriculum to guide the educational preparation of these professionals in Europe. The Delphi method enables the researcher to utilise the views and opinions of a group of recognised experts in the field of study; this study consisted of four phases. Phases 1 and 4 consisted of expert workshops, whereas data were collected in phases 2 and 3 (n = 35) via online surveys. All participants in the study were considered experts in the field of genetic counselling. The topics considered essential for genetic counsellor training have been organised under the following headings: (1) counselling; (2) psychological issues; (3) medical genetics; (4) human genetics; (5) ethics, law and sociology; (6) professional practice; and (7) education and research. Each topic includes the knowledge, skills and attitudes required to enable genetic counsellors to develop competence. In addition, it was considered by the experts that clinical practice should comprise 50% of the educational programme. The core Master programme curriculum will enable current courses to be assessed and inform the design of future educational programmes for European genetic counsellors.

Place, publisher, year, edition, pages
2013. Vol. 21, no 10, 1060-1066 p.
Keyword [en]
education, curriculum, genetic counsellor, Delphi study
National Category
Medical and Health Sciences
URN: urn:nbn:se:uu:diva-210197DOI: 10.1038/ejhg.2012.302ISI: 000324727200012OAI: oai:DiVA.org:uu-210197DiVA: diva2:661522
Available from: 2013-11-04 Created: 2013-11-04 Last updated: 2013-11-04Bibliographically approved

Open Access in DiVA

No full text

Other links

Publisher's full text

Search in DiVA

By author/editor
Ingvoldstad, Charlotta
By organisation
Caring Sciences
In the same journal
European Journal of Human Genetics
Medical and Health Sciences

Search outside of DiVA

GoogleGoogle Scholar
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

Altmetric score

Total: 162 hits
ReferencesLink to record
Permanent link

Direct link