ERIC: a new governance tool for Biobanking
2014 (English)In: European Journal of Human Genetics, ISSN 1018-4813, E-ISSN 1476-5438, Vol. 22, no 9, 1055-1057 p.Article in journal, Letter (Refereed) Published
In 2009, the EU introduced a new governance tool for research, the European Research Infrastructure Consortium, commonly referred to as ERIC. On 22nd November 2013, an ERIC within biobanking research was established, the BBMRI-ERIC, with its seat in Graz, Austria. This article analyses what use the ERIC can be to researchers in biobanking, focusing on legal and ethical perspectives. Our conclusion is that the main advantages with the ERIC are its functions as a platform, creating opportunities for long-term cooperation between the Member States involved and their researchers. Within the platform, research groups can develop functional standards for technical, legal and ethical purposes, set up criteria for biobanks, and so on. The ERIC also creates a platform for the involved researchers to communicate with policymakers in the EU and the Member States. However, when it comes to addressing the diverse regulatory framework for biobanking in the EU, one of the more important hurdles today, the ERIC does not provide for any substantial tools.
Place, publisher, year, edition, pages
London: Nature Publishing Group , 2014. Vol. 22, no 9, 1055-1057 p.
Reasearch infrastructure, governance, EU
Research subject Administrative Law
IdentifiersURN: urn:nbn:se:uu:diva-218128DOI: 10.1038/ejhg.2014.6ISI: 000340577600001PubMedID: 24496060OAI: oai:DiVA.org:uu-218128DiVA: diva2:694930
FunderSwedish Research Council