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ERIC: a new governance tool for Biobanking
Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Law. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Centre for Research Ethics and Bioethics.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Centre for Research Ethics and Bioethics.ORCID iD: 0000-0002-3520-5220
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Centre for Research Ethics and Bioethics.
Karolinska institutet.
2014 (English)In: European Journal of Human Genetics, ISSN 1018-4813, E-ISSN 1476-5438, Vol. 22, no 9, 1055-1057 p.Article in journal, Letter (Refereed) Published
Abstract [en]

In 2009, the EU introduced a new governance tool for research, the European Research Infrastructure Consortium, commonly referred to as ERIC. On 22nd November 2013, an ERIC within biobanking research was established, the BBMRI-ERIC, with its seat in Graz, Austria. This article analyses what use the ERIC can be to researchers in biobanking, focusing on legal and ethical perspectives. Our conclusion is that the main advantages with the ERIC are its functions as a platform, creating opportunities for long-term cooperation between the Member States involved and their researchers. Within the platform, research groups can develop functional standards for technical, legal and ethical purposes, set up criteria for biobanks, and so on. The ERIC also creates a platform for the involved researchers to communicate with policymakers in the EU and the Member States. However, when it comes to addressing the diverse regulatory framework for biobanking in the EU, one of the more important hurdles today, the ERIC does not provide for any substantial tools.

Place, publisher, year, edition, pages
London: Nature Publishing Group , 2014. Vol. 22, no 9, 1055-1057 p.
Keyword [en]
Reasearch infrastructure, governance, EU
National Category
Law
Research subject
Administrative Law
Identifiers
URN: urn:nbn:se:uu:diva-218128DOI: 10.1038/ejhg.2014.6ISI: 000340577600001PubMedID: 24496060OAI: oai:DiVA.org:uu-218128DiVA: diva2:694930
Funder
Swedish Research Council
Available from: 2014-02-08 Created: 2014-02-08 Last updated: 2017-12-06Bibliographically approved

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Reichel, JaneLind, Anna-SaraHansson, Mats G.

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