uu.seUppsala University Publications
Change search
ReferencesLink to record
Permanent link

Direct link
Parents' experiences of caring for a child younger than two years of age treated with continuous subcutaneous insulin infusion
Dalarna University.
Show others and affiliations
2014 (English)In: European Diabetes Nursing, ISSN 1551-7853, E-ISSN 1551-7861, Vol. 11, no 1, 7-12 p.Article in journal (Refereed) Published
Abstract [en]

Diabetes during infancy is uncommon and continuous subcutaneous insulin infusion (CSII) is the recommended treatment with such young children. However, this form of treatment has not been investigated previously from the perspective of the parents.

The aim of this study was to determine parents' experiences of caring for a child less than two years old who had diabetes mellitus and was being treated with CSII therapy.

Three pairs of parents were interviewed twice to elucidate their views on the initial period and on daily living. Data were submitted to qualitative content analysis and resulted in seven categories and one theme, the latter being: ‘The diabetes disease was threatening our baby's life, but then the insulin pump came as a rescuing, though challenging, angel’. Parents initially felt life had been turned upside down, but later they felt in control nearly all the time.

It was concluded that parents of infants with diabetes are in great need of support in order to manage the disease and CSII technology. The fear of losing control and the lack of relief lead to social isolation. Educating someone close to the family could be a valuable intervention.

Place, publisher, year, edition, pages
2014. Vol. 11, no 1, 7-12 p.
Keyword [en]
diabetes mellitus, parents, infant, child, insulin infusion system, qualitative study
National Category
Research subject
Caring Sciences
URN: urn:nbn:se:uu:diva-224270DOI: 10.1002/edn.239OAI: oai:DiVA.org:uu-224270DiVA: diva2:716173
Available from: 2014-05-08 Created: 2014-05-08 Last updated: 2014-05-15Bibliographically approved

Open Access in DiVA

No full text

Other links

Publisher's full text

Search in DiVA

By author/editor
Lindholm Olinder, Anna
By organisation
Clinical diabetology and metabolism
In the same journal
European Diabetes Nursing

Search outside of DiVA

GoogleGoogle Scholar
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

Altmetric score

Total: 175 hits
ReferencesLink to record
Permanent link

Direct link