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Communication intervention in Rett syndrome: a survey of speech language pathologists in Swedish health services
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation. (Forskning om funktionshinder och habilitering)
Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Psychology.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences. (Forskning om funktionshinder och habilitering)
2015 (English)In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 37, no 15, 1324-1333 p.Article in journal (Refereed) Published
Abstract [en]

Purpose: To investigate communication intervention that speech language pathologists (SLPs) provide to people with Rett syndrome. Methods: A web-based survey targeting all Swedish SLPs working with people currently receiving support from habilitation services. Results: The SLPs reportedly followed recommended practice in the following aspects: (1) Information on communicative function was collected from several sources, including observation in well-known settings and reports from the client s social network, (2) Multimodal communication was promoted and, (3) Responsive partner strategies were largely targeted in the intervention. However, few instruments or standard procedures were used and partner instruction was given informally. Most SLPs used communication aids in the intervention and their general impression of using communication aids was positive. Further, augmentative and alternative communication (AAC) was estimated to increase and clarify communicative contributions from the person. Conclusions: Communication aids were reported to have a positive influence on communicative functions. Swedish SLP services followed best practice in several aspects, but there are areas with potential for development. Tools and best practice guidelines are needed to support SLPs in the AAC process for clients with Rett syndrome.

Place, publisher, year, edition, pages
Informa Healthcare, 2015. Vol. 37, no 15, 1324-1333 p.
Keyword [en]
Augmentative and alternative communication, communication, intervention, Rett syndrome, speech language pathology, Sweden
National Category
Medical and Health Sciences
URN: urn:nbn:se:uu:diva-234368DOI: 10.3109/09638288.2014.962109ISI: 000357763700015PubMedID: 25250808OAI: oai:DiVA.org:uu-234368DiVA: diva2:756495
Available from: 2014-10-17 Created: 2014-10-17 Last updated: 2015-08-18Bibliographically approved

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Publisher's full textPubMedhttp://informahealthcare.com/doi/abs/10.3109/09638288.2014.962109

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Wandin, HelenaLindberg, PerSonnander, Karin
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Research in Disability and HabilitationDepartment of PsychologyDepartment of Public Health and Caring Sciences
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