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Children's Views on Long-Term Screening for Type 1 Diabetes
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Centre for Research Ethics and Bioethics.
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2014 (English)In: Journal of Empirical Research on Human Research Ethics, ISSN 1556-2646, E-ISSN 1556-2654, Vol. 9, no 4, 1-9 p.Article in journal (Refereed) Published
Abstract [en]

There are an increasing number of medical research studies involving children, including many long-term birth cohort studies. Involving children raises many issues, and little is known about children's own views. This study explored children's views (N = 5,851) on participation in a long-term screening study for type 1 diabetes. The results show that children 10 to 13 years of age have in general a positive attitude to pediatric research and emphasized trust in researchers. The children stressed the importance to receive information and to be involved in decisions. The children also reported feeling concerned about blood sampling and disease risk. Researchers involved in long-term pediatric research need to address these issues to promote involvement and decrease worry.

Place, publisher, year, edition, pages
2014. Vol. 9, no 4, 1-9 p.
Keyword [en]
research ethics, screening, children, type 1 diabetes, assent
National Category
Medical Ethics
URN: urn:nbn:se:uu:diva-235625DOI: 10.1177/1556264614544456ISI: 000342637300001OAI: oai:DiVA.org:uu-235625DiVA: diva2:762355
Available from: 2014-11-11 Created: 2014-11-06 Last updated: 2014-11-11Bibliographically approved

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Hansson, Mats G.
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Centre for Research Ethics and Bioethics
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