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The diagnostic gap -  an expert opinion: Editorial
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Family Medicine and Preventive Medicine.
2014 (English)In: Expert Opinion on Orphan Drugs, ISSN 2167-8707, Vol. 2, no 11, p. 1131-1133Article in journal, Editorial material (Refereed) Published
Abstract [en]

Many individuals with rare diseases of different types experience gaps between symptoms, diagnosis and treatment when in need of care. This is known in patient groups but not always known in society. A common experience is that no one is knowledgeable about the rare disease so the patient must, at every visit to healthcare, describe the disease and its consequences, which is not easy if you are in need of care.

Place, publisher, year, edition, pages
2014. Vol. 2, no 11, p. 1131-1133
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General Practice
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URN: urn:nbn:se:uu:diva-237720DOI: 10.1517/21678707.2014.921616ISI: 000345498600005OAI: oai:DiVA.org:uu-237720DiVA, id: diva2:768666
Available from: 2014-12-04 Created: 2014-12-04 Last updated: 2018-01-11Bibliographically approved

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Berglund, Britta

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