uu.seUppsala University Publications
Change search
ReferencesLink to record
Permanent link

Direct link
Parents and children's perceptions of distress related to oral mucositis during haematopoietic stem cell transplantation.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health. (Pediatrik, barnonkologi)ORCID iD: 0000-0003-2696-4054
2014 (English)In: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 6, no 103, 630-636 p.Article in journal (Refereed) Published
Abstract [en]


Oral mucositis is a common and debilitating side effect of haematopoietic stem cell transplantation. Our study investigated parents' and children's experiences of oral mucositis treatment and whether the parents' perceptions accurately reflected the children's views.


We analysed 71 questionnaires completed by the parents of children who had undergone haematopoietic stem cell transplantation, together with 38 questionnaires completed by children who were 7 years of age or over.


The parent proxy and child self-reports showed good to excellent agreement. For example, 86% of the parents and 83% of the children reported oral pain and 44% of the parents and 47% of the children reported difficulty swallowing often or very often. The majority of the parents (61%) were satisfied with the pain treatment that had been given to their child. However, the treatment provided for oral mucositis was not altogether consistent.


Oral mucositis affected the majority of the children undergoing haematopoietic stem cell transplantation, causing considerable pain and discomfort. The parent proxy reports proved to be reliable and are an important supplement to child self-reports on symptoms related to oral mucositis. But there is a clear need to establish more evidence-based care for children suffering from oral mucositis.

Place, publisher, year, edition, pages
2014. Vol. 6, no 103, 630-636 p.
Keyword [en]
Mucositis, hematopoietic stem cell transplantation, children
National Category
Research subject
Oncology; Pediatrics
URN: urn:nbn:se:uu:diva-237783DOI: 10.1111/apa.12627OAI: oai:DiVA.org:uu-237783DiVA: diva2:768889
Available from: 2014-12-05 Created: 2014-12-05 Last updated: 2014-12-05

Open Access in DiVA

No full text

Other links

Publisher's full texthttp://onlinelibrary.wiley.com/doi/10.1111/apa.12627/abstract

Search in DiVA

By author/editor
Kamsvåg Magnusson, Tove
By organisation
Department of Women's and Children's Health
In the same journal
Acta Paediatrica

Search outside of DiVA

GoogleGoogle Scholar
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

Altmetric score

Total: 131 hits
ReferencesLink to record
Permanent link

Direct link