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Swedish Survey of People Entitled to Assistance Allowance.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation. (Karin Sonnander)
2014 (English)Conference paper, Abstract (Refereed)
Abstract [en]

Swedish Survey of People Entitled to Assistance Allowance.

Ever since the personal assistance reform took effect in 1994, people with a substantial and durable disability have been entitled to personal assistance. To qualify for government attendance allowance, a person must belong to one of the groups predefined in the Act concerning Support and Service for Persons with Certain Functional Impairments and require personal assistance with their basic daily needs for more than 20 hours a week. In 2010 the Swedish Social Insurance Agency carried out a survey to all people (n=15,515) entitled to assistance allowance. A total of 10,200, or 67 per cent, of the responses were valid. The percentage was very high considering the potential difficulties involved for this population.

The aim of this study was to gather more comprehensive knowledge about the population that receives assistance allowance. The study was based on cross-sectional analysis involving both registry and survey data. It describes the respondents’ need for assistance, their attitude towards the assistance provider, what kind of living arrangements they have and the tasks that assistants perform. The study includes even questions about service, thoughtfulness and support on the part of assistants, as well as discrimination, financial considerations, participation and psychological variables.

A higher percentage of men are entitled to personal assistance than women, and the majority has durable physical or mental disabilities that are evidently not caused by normal ageing. Eight out of ten people entitled to personal assistance have a physical disability. Multiple disabilities are also common. More than half of the respondents had acquired their disability during their lifetime and had it for an average of approximately 18 years.

The results also showed that personal assistance is experienced by users and proxies as a valuable support that largely meets Sweden’s obligations pursuant to the UN Convention on the Rights of Persons with Disabilities.

Place, publisher, year, edition, pages
Lancaster: University of Lancaster, 2014. 1-170 p.
Keyword [en]
disability, health, social insurance
National Category
Medical and Health Sciences
Research subject
Health Care Research; Social Medicine
URN: urn:nbn:se:uu:diva-238759OAI: oai:DiVA.org:uu-238759DiVA: diva2:772085
Lancaster disability studies conference, Tuesday 9th - Thursday 11th September 2014
Socialförsäkringens betydelse för kvinnor och män med statlig personlig assistans i uppfyllandet av de nationella folkhälsomålen.

I samarbete med Försäkringskassan.

Available from: 2014-12-16 Created: 2014-12-16 Last updated: 2014-12-16

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