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An exploration of the phenomenon of formal care from the perspective of middle-aged heart failure patients
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Medicinska och farmaceutiska vetenskapsområdet, centrumbildningar mm, Centrum för klinisk forskning i Sörmland (CKFD). Mälardalens högskola.ORCID iD: 0000-0003-0667-7111
2007 (English)In: European Journal of Cardiovascular Nursing, ISSN 1873-1953, E-ISSN 1474-5151, Vol. 6, no 2, 121-129 p.Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Despite a considerable amount of research into heart failure there remains a divergence between the care available and patient's needs. The predominant biomedical perspective is more focused on the disease rather than the patient. In order to deliver formal care appropriate to the needs of middle-aged patients with moderate-severe HF it is imperative to gain the perspective of the individual patient.

AIMS: The aim of the current study was to explore and understand the phenomenon: Formal care as experienced from the perspective of middle-aged patients living with HF.

METHODS: The study was performed using a lifeworld perspective. Data was collected in seven unstructured interviews with middle-aged people living with moderate-severe HF. Data was analysed using a phenomenological approach.

RESULTS: Formal care, as experienced by middle-aged patients living with moderate to severe HF, means hope to once again be able to have access to life. However, the meaning of formal care is ambiguous, which signifies that care means both health and suffering at the same time. The essence's meaning constituents are: dependency of care, surrender to care and unclear participation.

CONCLUSION: The experience of formal care means both well-being and suffering at the same time. Patients' suffering in relation to formal care can be reduced if formal carers act from an ethical patient perspective point of view and if carers regard patients' lived experiences.

Place, publisher, year, edition, pages
2007. Vol. 6, no 2, 121-129 p.
National Category
Medical and Health Sciences
URN: urn:nbn:se:uu:diva-241645DOI: 10.1016/j.ejcnurse.2006.06.002PubMedID: 16877043OAI: oai:DiVA.org:uu-241645DiVA: diva2:780395
Available from: 2015-01-14 Created: 2015-01-14 Last updated: 2015-01-19Bibliographically approved

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Nordgren, Lena
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