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Review of 103 Swedish Healthcare Quality Registries
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Medical Sciences, Cardiology. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Medicinska och farmaceutiska vetenskapsområdet, centrumbildningar mm, UCR-Uppsala Clinical Research Center.
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2015 (English)In: Journal of Internal Medicine, ISSN 0954-6820, E-ISSN 1365-2796, Vol. 277, no 1, 94-136 p.Article in journal (Refereed) Published
Abstract [en]

Background and objectives: In the past two decades, an increasing number of nationwide, Swedish Healthcare Quality Registries (QRs) focusing on specific disorders have been initiated, mostly by physicians. Here, we describe the purpose, organization, variables, coverage and completeness of 103 Swedish QRs. Methods: From March to September 2013, we examined the 2012 applications of 103 QRs to the Swedish Association of Local Authorities and Regions (SALAR) and also studied the annual reports from the same QRs. After initial data abstraction, the coordinator of each QR was contacted at least twice between June and October 2013 and asked to confirm the accuracy of the data retrieved from the applications and reports. Results: About 60% of the QRs covered 80% of their target population (completeness). Data recorded in Swedish QRs include aspects of disease management (diagnosis, clinical characteristics, treatment and lead times). In addition, some QRs retrieve data on self-reported quality of life (EQ5D, SF-36 and disease-specific measures), lifestyle (smoking) and general health status (World Health Organization performance status, body mass index and blood pressure). ConclusionDetailed clinical data available in Swedish QRs complement information from government-administered registries and provide an important source not only for assessment and development of quality of care but also for research.

Place, publisher, year, edition, pages
2015. Vol. 277, no 1, 94-136 p.
Keyword [en]
adult, child, life quality, morbidity, register, registry
National Category
Other Medical Sciences not elsewhere specified
URN: urn:nbn:se:uu:diva-243445DOI: 10.1111/joim.12303ISI: 000346652000009OAI: oai:DiVA.org:uu-243445DiVA: diva2:787548
Available from: 2015-02-10 Created: 2015-02-09 Last updated: 2015-02-10Bibliographically approved

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Lindahl, Bertil
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CardiologyUCR-Uppsala Clinical Research Center
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