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From patients to partners: participant-centric initiatives in biomedical research.
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2012 (English)In: Nature reviews genetics, ISSN 1471-0056, E-ISSN 1471-0064, Vol. 13, no 5, 371-6 p.Article in journal (Refereed) Published
Abstract [en]

Advances in computing technology and bioinformatics mean that medical research is increasingly characterized by large international consortia of researchers that are reliant on large data sets and biobanks. These trends raise a number of challenges for obtaining consent, protecting participant privacy concerns and maintaining public trust. Participant-centred initiatives (PCIs) use social media technologies to address these immediate concerns, but they also provide the basis for long-term interactive partnerships. Here, we give an overview of this rapidly moving field by providing an analysis of the different PCI approaches, as well as the benefits and challenges of implementing PCIs.

Place, publisher, year, edition, pages
2012. Vol. 13, no 5, 371-6 p.
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Medical Ethics
URN: urn:nbn:se:uu:diva-245644DOI: 10.1038/nrg3218PubMedID: 22473380OAI: oai:DiVA.org:uu-245644DiVA: diva2:791287
Available from: 2015-02-27 Created: 2015-02-27 Last updated: 2015-02-27

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Mascalzoni, Deborah
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Centre for Research Ethics and Bioethics
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