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How patients with gynecological cancer experience the information process
Department of Gynecological Oncology, University Hospital, Uppsala, Sweden. (Nursing School)
1998 (English)In: Journal of Psychosomatic Obstetrics and Gynaecology, ISSN 0167-482X, E-ISSN 1743-8942, Vol. 19, no 4, 192-201 p.Article in journal (Refereed) Published
Abstract [en]

This qualitative study was designed to explore the kind of experiences women with a diagnosis of gynecological cancer have with regard to information given during their illness and how it could be improved. Data were collected through a semistructured interview which focused on the 24 women's experiences of the information given. The interviews were tape-recorded and transcribed verbatim for each participant, and analysed using a content analysis. Two main themes were revealed: to actively address questions, and the right to receive honest information. The results also include a short description on how information was offered, the patients' opinion of it and how the patients had sought information for themselves. When patients address questions they want honest answers. Some effort should also be made to identify patients who do not want information. If it is in accordance with the patient's and next-of-kin's wishes, efforts should be made to provide information at times when both can participate. Information given jointly to the patient and her family lessens the burden for the patient. In Sweden today, as a result of recent political decisions, caregivers must also consider the need to discuss economic issues.

Place, publisher, year, edition, pages
Informa Healthcare , 1998. Vol. 19, no 4, 192-201 p.
Keyword [en]
Cancer, Gynecological, Patients, Information
National Category
Obstetrics, Gynecology and Reproductive Medicine Nursing
URN: urn:nbn:se:uu:diva-54071DOI: 10.3109/01674829809025697OAI: oai:DiVA.org:uu-54071DiVA: diva2:81980
Available from: 2008-10-17 Created: 2008-10-17 Last updated: 2011-08-16

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Carlsson, Maria
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Journal of Psychosomatic Obstetrics and Gynaecology
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