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Multiprofessional follow-up programmes are needed to address psychosocial, neurocognitive and educational issues in children with brain tumours
Childhood Cancer Research Unit, Department of Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden.; Karolinska Univ Hosp, Astrid Lindgren Childrens Hosp, Neuropaediat Unit, Stockholm, Sweden.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Clinical Psychology in Healthcare. Karolinska Inst, Dept Womens & Childrens Hlth, Childhood Canc Res Unit, Stockholm, Sweden.
Uppsala University Children's Hospital, Uppsala, Sweden.
Neuropaediatric Unit, Astrid Lindgren Children's Hospital, Karolinska University Hospital, Stockholm, Sweden.; Natl Agcy Special Needs Educ & Sch, Stockholm, Sweden.
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2016 (English)In: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 105, no 6, 676-683 p.Article in journal (Refereed) Published
Abstract [en]

AIM: The aim of this study was to coordinate the structured psychosocial, neurocognitive and educational follow-up of children treated for brain tumours with the medical protocol and apply the model in two Swedish healthcare regions.

METHODS: We invited all children living in the two regions, who had been diagnosed with a brain tumour from October 1, 2010, through June 30, 2012, to participate along with their parents. The follow-up programme evaluated the emotional status of the parents and patients and assessed the children's general cognitive level, working memory, speed of performance, executive functions and academic achievement from diagnosis through to adult care.

RESULTS: During the study period, 61 children up to the age of 17.1 years were diagnosed with a brain tumour, but 18 of these were excluded for various reasons. The majority of the mothers (70%) displayed significantly poor emotional status, as did 34% of the fathers and 21% of the children. The majority of the children (57%) also showed poor neurocognitive performance and needed special adaptations at school (66%).

CONCLUSION: Our findings indicate the need for coordinated, multiprofessional follow-up programmes, well anchored in the healthcare organisation, for children diagnosed with brain tumours.

Place, publisher, year, edition, pages
2016. Vol. 105, no 6, 676-683 p.
National Category
Medical and Health Sciences
URN: urn:nbn:se:uu:diva-269579DOI: 10.1111/apa.13207ISI: 000376265400026PubMedID: 26355275OAI: oai:DiVA.org:uu-269579DiVA: diva2:883391
Swedish Childhood Cancer Foundation
Available from: 2015-12-17 Created: 2015-12-17 Last updated: 2016-07-06Bibliographically approved

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