uu.seUppsala University Publications
Change search
ReferencesLink to record
Permanent link

Direct link
Support Experienced by Patients Living with Pulmonary Arterial Hypertension and Chronic Thromboembolic Pulmonary Hypertension
Lund Univ, Dept Cardiothorac Surg, S-22100 Lund, Sweden.;Skane Univ Hosp, SE-22185 Lund, Sweden.;Reg Skane, Med Serv, Lund, Sweden..
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Caring Sciences.
Lund Univ, Dept Cardiothorac Surg, S-22100 Lund, Sweden.;Skane Univ Hosp, SE-22185 Lund, Sweden..
2016 (English)In: Heart, Lung and Circulation, ISSN 1443-9506, E-ISSN 1444-2892, Vol. 25, no 1, 35-40 p.Article in journal (Refereed) PublishedText
Abstract [en]

Background As pulmonary arterial hypertension (PAH) and chronic thromboembolic pulmonary hypertension (CTEPH) are debilitating and fatal diseases it is essential to increase the understanding of patients' experience of support. The aim was to describe patients' experiences of support while living with PAH or CTEPH. Methods Seventeen patients (13 women and four men) aged 28-73 years were strategically selected from a regional PAH centre and individually interviewed. The answers were analysed using qualitative content analysis. Results Three categories that describe patients' experiences of support emerged: Support linked to the healthcare; support linked to the private sphere; and support linked to persons outside the private sphere. Conclusion Healthcare practitioners must work more in collaboration to detect patients' need for support and to develop the patient's own skills to manage daily life. The PAH teams should tailor interventions to provide emotional, informational and instrumental support and guidance to patients and their families.

Place, publisher, year, edition, pages
2016. Vol. 25, no 1, 35-40 p.
Keyword [en]
Chronic disease, Peer support, Relationship, Social support, Supportive care
National Category
Cardiac and Cardiovascular Systems
URN: urn:nbn:se:uu:diva-272041DOI: 10.1016/j.hlc.2015.03.026ISI: 000366319400011OAI: oai:DiVA.org:uu-272041DiVA: diva2:893874
Available from: 2016-01-13 Created: 2016-01-11 Last updated: 2016-01-13Bibliographically approved

Open Access in DiVA

No full text

Other links

Publisher's full text

Search in DiVA

By author/editor
Ekmehag, Björn
By organisation
Caring Sciences
In the same journal
Heart, Lung and Circulation
Cardiac and Cardiovascular Systems

Search outside of DiVA

GoogleGoogle Scholar
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

Altmetric score

Total: 146 hits
ReferencesLink to record
Permanent link

Direct link