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Logopediskt omhändertagande av patienter med ALS: En enkätstudie med svenska logopeder
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Neuroscience, Logopedi.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Neuroscience, Logopedi.
2016 (Swedish)Independent thesis Advanced level (degree of Master (One Year)), 20 credits / 30 HE creditsStudent thesis
Abstract [en]

Amyotrophic lateral sclerosis (ALS) is a progressively neurodegenerative motor neuron disease. ALS is chiefly characterised by atrophy and weakness of muscles, dysarthria and dysphagia being the foremost domains relevant to speech and language pathologists. The main purpose of this study was to investigate how the caretaking of patients with ALS is handled by speech and language pathologists regarding assessment, treatment and counselling. Furthermore the aim was to plot the access to guidelines for this group of patients at the regional hospitals of Sweden and what directions speech and language pathologists are given therein. The study was conducted using a questionnaire. The participants of the study were geographically scattered licensed speech and language pathologists who are clinically active with the group of patients at hand. The questionnaire was sent to 32 speech and language pathologists, of which 23 (72 %) answered. The acquirement of guidelines was done through contact by e-mail with each regional hospital respectively. The result shows variation within the caretaking of patients with ALS, due to differences in symptoms between patients. However, it is noted that the core is optimising the preservation of the patient's abilities and counselling on strategies. Out of the 7 regional hospitals of Sweden 2 have guidelines. Within these are recommendations for continuous and needs-oriented assessment, treatment, information and counselling. The content of the guidelines is overall unanimous with the questionnaire result.

Abstract [sv]

Amyotrofisk lateral skleros (ALS) är en progressivt neurodegenerativ motorneuronsjukdom (MNS). ALS kännetecknas framför allt av muskelatrofi och -svaghet, med dysartri och dysfagi som främsta logopediska områden. Denna studie syftade huvudsakligen till att undersöka hur det logopediska omhändertagandet av ALS-patienter ser ut beträffande bedömning, behandling och rådgivning. Vidare avsågs att kartlägga hur tillgången till vårdprogram för patientgruppen ser ut vid Sveriges regionsjukhus och vilka riktlinjer logopeder ges däri. Studien genomfördes via en enkätundersökning. I studien deltog geografiskt spridda legitimerade logopeder kliniskt aktiva med aktuell patientgrupp. Enkäten skickades till 32 logopeder, av vilka 23 (72 %) svarade. Inhämtningen av vårdprogram skedde genom kontakt med respektive regionsjukhus via e-post. Resultatet visar att det logopediska omhändertagandet av ALS-patienter varierar, som följd av skillnader i sjukdomsbilden patienter emellan. Gemensamt är dock att fokus ligger på bibehållande av patientens förmågor samt rådgivning kring strategier. Av Sveriges 7 regionsjukhus har 2 vårdprogram och ytterligare 1 har skriftliga rutiner. I dessa förordas kontinuerlig och behovsanpassad bedömning, behandling samt information och rådgivning. Vårdprogrammens innehåll är övergripande samstämt med de inkomna enkätsvaren.

Place, publisher, year, edition, pages
2016. , 33 p.
Series
Examensarbete i logopedi, 123
Keyword [sv]
ALS, logopediskt omhändertagande, vårdprogram
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:uu:diva-274206OAI: oai:DiVA.org:uu-274206DiVA: diva2:896003
Subject / course
Speech and Language Pathology
Educational program
Degree of Master of Science in Speech and Language Pathology
Supervisors
Examiners
Available from: 2016-01-20 Created: 2016-01-20 Last updated: 2016-01-20Bibliographically approved

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