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The combined perceptions of people with stroke and their carers regarding rehabilitation needs 1 year after stroke: a mixed methods study
Karolinska Institutet.
Karolinska Institutet.
Karolinska Institutet.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Neuroscience, Rehabilitation Medicine. Karolinska Institutet.
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2015 (English)In: BMJ Open, ISSN 2044-6055, E-ISSN 2044-6055, Vol. 12, no 5, 1-8 p., e006784Article in journal (Refereed) Published
Abstract [en]

Objectives: The aim of the study was to explore theassociations between the dyad’s (person with strokeand informal caregiver) perception of the person withstroke’s rehabilitation needs and stroke severity,personal factors (gender, age, sense of coherence), theuse of rehabilitation services, amount of informal careand caregiver burden. Further, the aim was to explorethe personal experience of everyday life changesamong persons with stroke and their caregivers andtheir strategies for handling these 1 year after stroke.Design: A mixed methods design was usedcombining quantitative and qualitative data andanalyses.Setting: Data were mainly collected in the participants’homes.Outcome measures: Data were collected throughestablished instruments and open-ended interviews.The dyad’s perceptions of the person with stroke’srehabilitation needs were assessed by the persons withstroke and their informal caregivers using aquestionnaire based on Ware’s taxonomy. The resultswere combined and classified into three groups: met,discordant (ie, not in agreement) and unmetrehabilitation needs. To assess sense of coherence(SOC) in persons with stroke, the SOC-scale was used.Caregiver burden was assessed using the CaregiverBurden Scale. Data on the use of rehabilitation serviceswere obtained from the computerised register at theStockholm County Council.Participants: 86 persons with stroke (mean age73 years, 38% women) and their caregivers (mean age65 years, 40% women).Results: Fifty-two per cent of the dyads perceived thatthe person with stroke’s need for rehabilitation wasmet 12 months after stroke. Met rehabilitation needswere associated with less severe stroke, more copingstrategies for solving problems in everyday activitiesand less caregiver burden.Conclusions: Rehabilitation interventions need tofocus on supporting the dyads’ process ofpsychological and social adaptation after stroke. Futurestudies need to explore and evaluate the effects ofusing a dyadic perspective throughout rehabilitation.

Place, publisher, year, edition, pages
Stockholm: Cross Mark , 2015. Vol. 12, no 5, 1-8 p., e006784
National Category
Medical and Health Sciences
Research subject
Caring Sciences
URN: urn:nbn:se:uu:diva-278973DOI: 10.1136/bmjopen-2014-006784OAI: oai:DiVA.org:uu-278973DiVA: diva2:907295
Forte, Swedish Research Council for Health, Working Life and WelfareThe Swedish Brain FoundationSwedish Research Council
Available from: 2016-02-26 Created: 2016-02-26 Last updated: 2016-02-26

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