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Evaluation of advanced home care (AHC): the next-of-kin`s experiences.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences. (Nursing School)
2002 (English)In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 6, no 2, 100-106 p.Article in journal (Refereed) Published
Abstract [en]

This project studied next-of-kin’s experiences of advanced home care (AHC) during the palliative care and death of a family member. The aim of the study was to evaluate how next of-kin experienced information provided, care, symptom relief, and care-giving burden.

A self-questionnaire with 24 questions was sent to all next-of-kin (n=82) who had had a family member cared for at home during one year.

Seventy-five (91%)responded. Next-of-kin were generally more satisfied with emotional support and care than with information provided. Symptom relief was sufficient in most cases. Next-of-kin’s experiences of burden were: 45% felt homebound, 26% felt isolated at home and 51% reported a sleep deficit. Women felt homebound (Po 0.01) to a higher degree than men. However, 87% stated that they would choose AHC again, in a similar situation.

AHC provided ‘quite good’ symptom relief and ‘good’ emotional support to patients and their next-of-kin during the terminal phase leading to death. Information provided needs to be improved and the situation and needs of informal caregivers requires more assessment.

Place, publisher, year, edition, pages
2002. Vol. 6, no 2, 100-106 p.
Keyword [en]
Palliative care, cancer, next-of-kin, evaluation, emotional support, symptomrelief
URN: urn:nbn:se:uu:diva-64196DOI: 10.1054/yejon.2001.0172ISI: 000083068300143PubMedID: 12849600OAI: oai:DiVA.org:uu-64196DiVA: diva2:92107
Available from: 2008-10-17 Created: 2008-10-17 Last updated: 2011-08-19Bibliographically approved

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