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Burden and Expressed Emotion of Caregivers in Cases of Adult Substance Use Disorder with and Without Attention Deficit/Hyperactivity Disorder or Autism Spectrum Disorder
Dimence, Dept Residency Training MANP Mental Hlth, Deventer, Netherlands.;Dimence, Expertise Ctr Dev Disorders, Deventer, Netherlands.;Dimence, POB 5003, NL-7400 GC Deventer, Netherlands..
Inst Educ Clin Nurse Specialists Mental Hlth, GGZVS, Utrecht, Netherlands.;Dimence, SCBS, Deventer, Netherlands.;Radboud Univ Nijmegen, Sci Inst Qual Healthcare, Med Ctr, NL-6525 ED Nijmegen, Netherlands.;Univ Ghent, Dept Publ Hlth, Univ Ctr Nursing & Midwifery, Fac Med & Hlth Sci, B-9000 Ghent, Belgium..
Univ Groningen, Univ Med Ctr Groningen, Groningen, Netherlands..
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Caring Sciences. Radboud Univ Nijmegen, Sci Inst Qual Healthcare, Med Ctr, NL-6525 ED Nijmegen, Netherlands.;Katholieke Univ Leuven, Ctr Hlth Serv & Nursing Res, Leuven, Belgium..
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2016 (English)In: International Journal of Mental Health and Addiction, ISSN 1557-1874, E-ISSN 1557-1882, Vol. 14, no 1, 49-63 p.Article in journal (Refereed) PublishedText
Abstract [en]

Objective To identify and compare caregiver burden and expressed emotion (EE) in adult substance use disorder (SUD) patients with and without co-occurring attention deficit/hyperactivity disorder (ADHD) or autism spectrum disorder (ASD). To examine possible differences in correlations between caregiver burden and EE across patient groups. Design and Methods Cross-sectional study with measures of perceived burden (Involvement Evaluation Questionnaire: IEQ), subjective stress (General Health Questionnaire: GHQ) and perceptions of expressed emotion (Level of Expressed Emotion: LEE) in informal caregivers for patients with SUD, SUD+ADHD or SUD+ASD. Findings No differences in caregiver burden or expressed emotion when caregivers for patients with SUD were compared to caregivers for patients with SUD+ADHD. A moderate but non-significant difference for caregivers of patients with SUD versus SUD+ASD, which disappeared when the number of contact hours between patient and caregiver for the SUD only group was controlled for. The IEQ sum scores also substantially correlated with the LEE sum scores. Conclusion Informal caregivers for patients with only SUD show higher levels of burden and EE than informal caregivers for patients with SUD and a co-occurring ASD. This difference was largely explained by the higher number of contact hours between patient and caregiver in the SUD only group.

Place, publisher, year, edition, pages
2016. Vol. 14, no 1, 49-63 p.
Keyword [en]
Burden, Expressed emotions, Substance use disorder, Attention deficit/hyperactivity disorder, Autism spectrum disorder
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:uu:diva-294592DOI: 10.1007/s11469-015-9567-9ISI: 000373077900007OAI: oai:DiVA.org:uu-294592DiVA: diva2:930991
Available from: 2016-05-26 Created: 2016-05-25 Last updated: 2016-05-26Bibliographically approved

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