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The 'Other' in End-of-life Care: Providers' Understandings of Patients with Migrant Backgrounds
Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Sociology.
Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Sociology.
Linkoping Univ, Dept Adv Home Care, Linkoping, Sweden.;Linkoping Univ, Dept Social & Welf Studies, Linkoping, Sweden..
2016 (English)In: Journal of Intercultural Studies, ISSN 0725-6868, E-ISSN 1469-9540, Vol. 37, no 2, 103-117 p.Article in journal (Refereed) PublishedText
Abstract [en]

Research on how end-of-life care providers make sense of cultural, ethnic and religious diversity is relatively scarce. This article explores end-of-life care providers' understandings of patients with migrant backgrounds through a study based on focus group interviews. The analysis brings to the fore three themes: the expectation that the existence of difference and uncertainty is a given when caring for patients with migrant backgrounds; the expectation that the extension of responsibility that difference entails creates a variety of dilemmas; and the expectation that difference will bring about misunderstandings and that patients' needs can go unmet as a result of this. On the basis of these themes we suggest that the end-of-life care providers interviewed regard patients with migrant backgrounds as Others' and themselves as providers that cannot deliver so called culture-competent care. The findings are problematised using the lens that the debate on patient-centredness offers. The article suggests that if the uniqueness of all patients is to be seriously taken into account then Othering' is perhaps what patient-centredness actually entails.

Place, publisher, year, edition, pages
2016. Vol. 37, no 2, 103-117 p.
Keyword [en]
Migration, end-of-life care, culture-competent care, patient-centredness, religious diversity, cultural diversity, otherness
National Category
URN: urn:nbn:se:uu:diva-300324DOI: 10.1080/07256868.2016.1141756ISI: 000373925900002OAI: oai:DiVA.org:uu-300324DiVA: diva2:951260
Available from: 2016-08-08 Created: 2016-08-08 Last updated: 2016-08-08Bibliographically approved

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Torres, SandraÅgård, Pernilla
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