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Genetic risk and value
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Centre for Research Ethics and Bioethics. (Centrum för forskningsetik & bioetik)ORCID iD: 0000-0002-3823-8263
2016 (English)In: Journal of Risk Research, ISSN 1366-9877, E-ISSN 1466-4461Article in journal (Refereed) Epub ahead of print
Abstract [en]

A conceptual truth about risks is that they involve a possible and future adverse effect or a negative value of some kind. The genetic risks that individuals may face in the health care setting differ in some crucial respects to other kind of risks. The aims of this paper are to analyse the notion of value in the context of genetic risk in the setting of health care, and to suggest a conception of the evaluative aspect of genetic risk that is fruitful for genetic risk information. Two influential and relevant approaches to value, preferentialism and the capability approach, are discussed in the light of certain distinctive features of genetic risk and a third, a sensibility theory of value is suggested. According to this view, the concept of risk is a so-called ‘thick’ evaluative concept that has both a world-guiding function as well as an action-guiding or normative function. It is argued that this provides a more promising way to think about genetic risks in the clinical setting.

Place, publisher, year, edition, pages
Taylor & Francis Group, 2016.
Keyword [en]
genetic risk, values, ethics, preferentialism, the capability approach, thick moral concepts
National Category
Medical Ethics
Research subject
Bioethics
Identifiers
URN: urn:nbn:se:uu:diva-303537DOI: 10.1080/13669877.2016.1200653OAI: oai:DiVA.org:uu-303537DiVA: diva2:972242
Projects
Mind the Risk
Funder
Riksbankens Jubileumsfond, M13-0260:1
Available from: 2016-09-20 Created: 2016-09-20 Last updated: 2017-06-01Bibliographically approved

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Kihlbom, Ulrik

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