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  • 1.
    Aalto, Heidi
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health.
    Föräldrars upplevelser av omvårdnaden av sitt sent underburna barn på BB: En intervjustudie2014Independent thesis Advanced level (degree of Master (One Year)), 10 credits / 15 HE creditsStudent thesis
    Abstract [sv]

    Bakgrund: Sent underburna barn vårdas ofta på BB-avdelning för fullgångna barn. De har högre frekvens av återinläggningar på sjukhus än fullgångna barn. De flesta studier kring underburna barns vistelse på sjukhus är inte gjorda specifikt på sent underburna barn. Syfte: Syftet är att utforska föräldrars upplevelser av omvårdnaden av sent underburna barn på en BB-avdelning i Sverige. I analysen användes det teoretiska begreppet empowerment. Metod: Studien är deskriptiv med en kvalitativ ansats. Telefonintervjuer användes som datainsamlingsmetod. Fem mammor och två pappor deltog i studien. Intervjuerna analyserades med innehållsanalys. Resultat/Slutsats: Föräldrarna upplevde att personalen antingen förmedlade empowerment eller inte. Omvårdnadsåtgärder kring barnet som gjorde föräldrarna mer delaktiga upplevdes mer positivt och omvårdnadsåtgärder som orsakade en separation mellan föräldrar och barn upplevdes mer negativt. Föräldrarna hade svårt att ifrågasätta personal, även om de upplevde att något kring omvårdnadsåtgärden kändes fel. Omvårdnadsåtgärder, utfördes inte alltid i enlighet med vetenskap och beprövad erfarenhet. Personalen kan utbildas mer i att främja empowerment i föräldrarollen och därmed även öka föräldradelaktigheten i barnets omvårdnad och möjligheten att se varje familjs unika behov. Mer forskning behövs om hur detta ska ske.

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  • 2.
    Aarts, Clara
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Caring Sciences.
    Greiner, Ted
    Regarding the review article by Erlanson-Albertsson and Zetterström, Acta Paediatr 2005;94:1523-312006In: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 95, no 5, p. 623-624Article in journal (Refereed)
  • 3.
    Abdi Ismail, Ifrah
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Zewdie Vedberg, Sara
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Patienters upplevelser av att använda tolk inom hälso- och sjukvården2022Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

     

    Introduction: Migration has increased significantly in recent decades. This leads to difficulties in applying care on equal terms to patients who don’t have their mother tongue in the country in which they are located, which requires the involvement of a third party who is an interpreter to facilitate communication between healthcare professionals and patients.

    Aim: the purpose is to investigate patients' experiences of using an interpreter in communication in health care.

     

    Method: A general literature study based on scientific qualitative articles. Data collection was performed in the databases CINAHL and PubMed. Twelve selected quality articles were reviewed based on the SBU quality review template (2012).

     

     

    Results: Patients' experiences of interpreter use in health care vary. The results analysis is presented in five categories; Equal care, Concerns about misunderstandings and lack of trust, non-formal interpreters, professionalism of the interpreter, Satisfaction with telephone interpreter / video interpreter and physical presence.

     

    Conclusion: The availability of authorized interpreters was perceived as crucial in order to receive equal care. However, the participants felt that there was a shortage of authorized interpreters and information about the availability of authorized interpreters. Patients described positive as well as negative aspects of interpreting. The negative experience towards the authorized interpreter was described as that there were dialect differences that led to misunderstandings, lack of trust in the interpreter's translation ability and the interpreter's way of being objective and neutral in his assignment. This resulted in patients choosing to use informal interpreters, including family members who lacked medical language skills. Which in turn led to difficulties in achieving patient participation and person-centered care.

     

    Keywords

    Interpreters, patients' experiences, migrants, communication difficulties, health care.

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  • 4.
    Abdulah, Deldar Morad
    et al.
    Univ Duhok, Coll Nursing, Community & Matern Hlth Nursing Unit, Duhok, Iraq..
    Suleman, Sherzad Khudeida
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Pediatric oncology research with a special focus on side effects. Univ Duhok, Coll Nursing, Psychiat & Pediat Nursing Unit, Duhok, Iraq..
    The effect of insomnia and shift working on psychological well-being among general public hospital nurses2023In: KONTAKT-JOURNAL OF NURSING AND SOCIAL SCIENCES RELATED TO HEALTH AND ILLNESS, ISSN 1212-4117, Vol. 25, no 1, p. 3-9Article in journal (Refereed)
    Abstract [en]

    Introduction: There are few studies on the association between insomnia and categories of psychological well-being among nurses in clinical settings. Therefore, in this study, we aimed to explore the effect of insomnia and shift working on psychological well-being among nurses in public hospitals.

    Methods: A total of 107 nurses (20-44 years old) were included using a non-random technique. The nurses were selected from four public hospitals in Iraqi Kurdistan in 2019.

    Results: The mean age of the nurses was 29.94 (20-44 years). They had diploma (48.6%) and bachelor's degrees (51.4%), worked morning (36.4%), evening (19.6%), and night shifts (14.0%), and some (29.9%) were shift rotators. Most nurses worked in the public sector (56.1%) or both sectors (43.9%). The mean sleep score of the nurses was 10.68 out of a total of 24. The prevalence of insomnia among nurses was 80.4%. The mean value of general psychological well-being was 26.64 out of a total 36. Working morning shifts and having a high level of insomnia were predictors of worse psychological well-being. Nurses who worked in the morning or as shift rotators were more likely to feel unable to overcome difficulties. They were also less likely to enjoy normal day-to-day activities, less likely to feel reasonably happy, and more likely to lose confidence in their lives. The level of facing up to one's problems increased according to the severity of insomnia.

    Conclusions: The study showed that nurses with insomnia had worse psychological well-being than nurses without insomnia in public hospitals.

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  • 5. Abdulhadi, Nadia
    et al.
    Al Shafaee, Mohammed
    Freudenthal, Solveig
    Östenson, Claes-Göran
    Wahlström, Rolf
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Family Medicine and Clinical Epidemiology.
    Patient-provider interaction from the perspectives of type 2 diabetes patients in Muscat, Oman: a qualitative study2007In: BMC Health Services Research, E-ISSN 1472-6963, Vol. 7, p. 162-Article in journal (Refereed)
    Abstract [en]

    Background: Patients' expectations and perceptions of the medical encounter and interactions are important tools in diabetes management. Some problems regarding the interaction during encounters may be related to a lack of communication skills on the part of either the physician or the patient. This study aimed at exploring the perceptions of type 2 diabetes patients regarding the medical encounters and quality of interactions with their primary health-care providers. Methods: Four focus group discussions ( two women and two men groups) were conducted among 27 purposively selected patients ( 13 men and 14 women) from six primary health-care centres in Muscat, Oman. Qualitative content analysis was applied. Results: The patients identified some weaknesses regarding the patient-provider communication like: unfriendly welcoming; interrupted consultation privacy; poor attention and eye contact; lack of encouraging the patients to ask questions on the providers' side; and inability to participate in medical dialogue or express concerns on the patients' side. Other barriers and difficulties related to issues of patient-centeredness, organization of diabetes clinics, health education and professional competency regarding diabetes care were also identified. Conclusion: The diabetes patients' experiences with the primary health-care providers showed dissatisfaction with the services. We suggest appropriate training for health-care providers with regard to diabetes care and developing of communication skills with emphasis on a patient-centred approach. An efficient use of available resources in diabetes clinics and distributing responsibilities between team members in close collaboration with patients and their families seems necessary. Further exploration of the providers' work situation and barriers to good interaction is needed. Our findings can help the policy makers in Oman, and countries with similar health systems, to improve the quality and organizational efficiency of diabetes care services.

  • 6.
    Abdulle, Abdiaziz
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Bedömning av tryckskador hos individer med mörk hudpigmentering2021Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background : Pressure ulcer is considered a medical injury, which affects mostly people who are bedridden and wheelchair bound. Pressure ulcer is associated with many different medical conditions. The care injury can lead to extended care time for individuals and is more costly. People with dark skin pigments are at greater risk of developing pressure ulcers. This is due to that it is difficult to identify category 1 pressure ulcer in those individuals. Aim: The aim of the study is to investigate how healthcare professionals can identify pressure injuries in the skin suit of individuals with dark skin pigmentation and to find out the reason for the lack of guidance. Metod: Descriptive literature study based on quantitative studies. Ten quantitative articles have been used. Of which five of them were found in primary search while the rest were found in secondary and third search. Databases pubmed and Cinahl used in article searches. Resultat: There are some methods that are relevant for clinical assessment of pressure ulcers in individuals with dark skin pigmentation. Pressure ulcers can be identified in the person with dark skin pigmentation using ultrasound, munsell color charts and imaging techniques. Lack of guidance on how to identify pressure ulcers in individuals with dark skin tones can already be seen during nursing education, that colleges and universities do not contribute more teaching about pressure ulcers aimed at people with dark skin pigments. Slutsats: It is not possible to draw conclusions due to the fact that low-quality studies were included in the study. There are methods that can be used in clinical assessments of pressure ulcers in people with dark skin pigmentation, among other things with the help of ultrasound and imaging techniques. However, there is still a lack of guidance and therefore further research in this area would be necessary.

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  • 7.
    Abdulqadir Haji, Najma
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Sanam, Faqirzadhe
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Patienters upplevelser av språkbarriärer i sjukvården: Litteraturöversikt2020Independent thesis Basic level (professional degree), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Introduction: Many countries are considered multicultural due to increased migration. This means that more immigrant patients come into contact with the health service. It is a challenge for healthcare professionals to meet patients with a different cultural, linguistic, ethnic or religious background. Communication is important for the nurse to be able to create relationships with the patients, provide information and convey safety. If there is no common language between nurse and patient, can language barriers occur.

    Aim: The aim of this literature review is to describe patient’s experiences of language barriers in healthcare.

    Method: A literature review with a qualitative approach based on eleven qualitative scientific articles. The literature review was quality reviewed with a template by Willman, Bahtsevani and Nilsson. All articles were analyzed according to Friberg, where the similarities were compiled into main categories and subcategories.

    Results: The results are reported in two main categories and six subcategories. The two main categories are patient’s experiences of language barriers and communication-promoting interventions. The six subcategories are limited access to information, negative emotions, the negative impact of language barriers on the patient relationship, culture differences and attitudes, language barriers and health literacy and interpreters.

    Conclusion: The literature review states that information transfer, patient safety, quality of care and patient relationship are impaired by language barriers. In the absence of a common language, the risk of misunderstandings increases and incorrect medical treatments and nursing measures can occur. To counteract this, an authorized interpreter was involved who increases understanding and facilitates communication, which has advantages and disadvantages. Another important measure is to train nurses to increase their cultural competence.

  • 8.
    Abou-Soultan, Nariman
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Medical Sciences.
    Sandström, Robert
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Medical Sciences.
    Patienters erfarenheter av smärtbehandling på en akutmottagning med fokus på patientens grundläggande vårdbehov: En deskriptiv litteraturstudie med induktiv ansats2022Independent thesis Advanced level (degree of Master (One Year)), 10 credits / 15 HE creditsStudent thesis
    Abstract [sv]

    Bakgrund: Den mest förekommande orsaken till att patienter besöker akutmottagningen ärsmärta och i Sverige besöker cirka 1,6 miljoner människor akutmottagningar varje år. Underbehandling av smärta har varit och är fortfarande ett stort problem på akutmottagningenoch patienter är inte tillfredsställda med smärtbehandlingen de får. Fel eller fördröjdbehandling av akuta smärttillstånd ökar risken för långvarig smärta.

    Syfte: Att beskriva patienters erfarenheter av smärtbehandling på en akutmottagning med fokus på deras grundläggande vårdbehov.

    Metod: En deskriptiv litteraturstudie med induktiv design tillämpades. Sökningarnagenomfördes i PubMed, CINAHL och Google Scholar vilket resulterade i 23 vetenskapligastudier med kvantitativ och kvalitativ ansats samt en med mixad-metod. Insamlade dataanalyserades med hjälp av integrerad innehållsanalys.

    Resultat: De faktorer som sågs påverka patienter erfarenheter av smärtbehandling och derastillfredsställelse var fysiska behov, vårdrelationen och psykosociala behov. De fysiskabehoven gällde smärtbedömning, tiden till smärtlindring samt adekvat smärtlindring ochvårdrelationen gällde interaktionen mellan patient och vårdpersonal samt visad empati hospersonalen. Psykosociala behov i form av information och kommunikation samt emotionelltvälbefinnande hade också betydelse.

    Slutsats: Huvudresultatet i denna litteraturstudie visar på att patienters vårdrelation med vårdpersonal och patienters fysiska samt psykosociala behov var av stor vikt för patienters erfarenheter av smärtbehandling, dock var behoven inte alltid tillgodosedda. En nationell behandlingsriktlinje kring smärtbehandling och betydelsen av personcentrerad vård på akutmottagningen kan vara patienter till gagn. Med ramverket Fundamentals of Care går det att identifiera patientens grundläggande vårdbehov som kan vägleda sjuksköterskor att ge enholistisk och personcentrerad vård samt en god omvårdnad vid smärtbehandling. 

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  • 9.
    Abu Sultan, Lamaa
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Lawan, Zilan
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Våldsutsatta kvinnor upplevelser av vårdpersonals bemötande.2023Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Introduction: According to WHO, intimate partner violence is a global public health issue, with 35% of women worldwide having experienced it. Intimate partner violence is a problem that negatively affects both society and the individual who experiences it. Healthcare providers encounter these women as they seek healthcare.

    Aim: The aim was to describe how women who have been victims of intimate partner violence experienced the encounter with healthcare providers.

    Method: A descriptive general literature review with a qualitative approach was conducted following Friberg (2022). The literature review was based on twelve original scientific articles.

    Results: Seven themes that described women's experiences were identified. 1) Getting the question - a crucial factor, 2) How the question is asked affects whether the woman wants to disclose, 3) Women's struggle for credibility, 4) information and counseling make a difference, 5) Experiences of shame, guilt, and stigmatization, 6) The importance of retaining autonomy and participation and 7) Lack of confidentiality and discretion. Women reported both positive and negative experiences with healthcare providers' attitudes and approaches.

    Conclusion: Women perceive it as crucial to be asked about intimate partner violence and that this is done in a sensitive manner.  Women experienced that they had to struggle for healthcare professionals to believe them and their experiences of intimate partner violence. Guidance and clear information, as well as counseling from healthcare professionals, was something that women found helpful in taking the step to escape from the violence. 

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  • 10.
    Acuña Mora, Mariela
    et al.
    Institute of Healthcare Sciences, Faculty of Caring Science, Work Life and Social Welfare, University of Borås , Borås , Sweden.
    Bratt, Ewa-Lena
    Institute of Health and Care Sciences, Sahlgrenska Academy, University;of Gothenburg , Gothenburg , Sweden.
    Saarijärvi, Markus
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Healthcare Sciences and e-Health. Gothenburg Centre for Person-Centred Care (GPCC), University of Gothenburg, Gothenburg, Sweden; Department of Neurobiology, Care Sciences and Society, Karolinska Institute, Stockholm, Sweden.
    Taking Charge of Your Health: Enabling Patient Empowerment in Cardiovascular Care2024In: European Journal of Cardiovascular Nursing, ISSN 1474-5151, E-ISSN 1873-1953Article in journal (Refereed)
    Abstract [en]

    Guidelines and consensus in cardiovascular care in recent years have called for patients to be more involved in their care, which can be achieved by becoming more empowered. Yet, there is little clarity on how healthcare professionals can help the patients achieve this goal. The present paper defines patient empowerment, its benefits and the different strategies that can be used in healthcare to empower them. Moreover, potential barriers in the empowering process are also discussed.

  • 11.
    Adamnor, Kanan
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Mahmoud, Marwa
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Patientupplevelse av kommunikation vid afasi efter stroke: En litteraturstudie2022Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Introduction: Stroke is one of the most common diseases that can affect the lives of people both physically, psychologically and socially. Approximately more than half of those who suffer a stroke develop aphasia, which means that the person has difficulty communicating, reading and writing. In healthcare, effective communication between healthcare staff and patients is a prerequisite for creating patient safety and reducing suffering. Good communication also has an impact on the treatment between the patient and healthcare staff. 

    Purpose: The aim was to shed light on patients' experiences with aphasia on communication with healthcare professionals after a stroke. 

    Method: Literature study with descriptive design where ten qualitative original articles from PubMed and CINAHL were quality reviewed using SBU's review template for qualitative articles. The articles were analyzed using a content analysis by the authors. 

    Results: The communication between patient and healthcare staff is described using two themes and six categories. The results showed that people with aphasia find communication difficult and problematic, especially in situations where they are misunderstood, which manifested itself in the form of anger, despair, sadness, resignation and feelings of loneliness. The results describe the obstacles that people with aphasia encountered, which were difficulties in initiating and conducting deep conversations, feelings of shame due to difficulties regarding reading and writing skills and feelings of social isolation. 

    Conclusion: In addition to the fact that aphasia is experienced as an obstacle to communication, the results show that the response from the environment plays a large role in communication with the diseased and that communication is facilitated when relatives and healthcare professionals show empathy and respect for the person.

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  • 12.
    Adamski, Jan
    et al.
    via media, S-75655 Uppsala, Sweden..
    Goraj, Radoslaw
    Reg Specialist Hosp Olsztyn, Dept Anaesthesiol & Intens Care, Olsztyn, Poland..
    Onichimowski, Dariusz
    Reg Specialist Hosp Olsztyn, Dept Anaesthesiol & Intens Care, Olsztyn, Poland..
    Gawlikowska, Ewa
    Reg Specialist Hosp Olsztyn, Dept Anaesthesiol & Intens Care, Olsztyn, Poland..
    Weigl, Wojciech
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Surgical Sciences, Anaesthesiology and Intensive Care.
    The differences between two selected intensive care units located in central and northern Europe: preliminary observation2015In: ANAESTHESIOLOGY INTENSIVE THERAPY, ISSN 1642-5758, Vol. 47, no 2, p. 117-124Article in journal (Refereed)
    Abstract [en]

    Background: The aim of this study was to evaluate possible differences in the functioning of two selected intensive care units in Poland and Finland. The activity of the units was analysed over a period of one year. Methods: The following parameters were compared: demography of treated populations, site of admission, category of illness, severity of illness (APACHE-II scale), mean length of stay, demanded workload (TISS-28 scale), mortality (both ICU and hospital) and standardized mortality ratio (SMR). Results: The results of this study indicated that most of the patients in the Polish ICU, regardless of age, diagnosis and APACHE II score, presented significantly longer lengths of stay (14.65 +/- 13.6 vs 4.1 +/- 4.7 days, P = 0.0001), higher mean TISS-28 score (38.9 +/- 9.1 vs 31.2 +/- 6.1, P = 0.0001) and higher ICU and hospital mortality (41.5% vs 10.2% and 44.7% vs 21.8%, respectively, P = 0.0001). The values of SMR were 0.9 and 0.85 for the Finnish and Polish ICUs, respectively. Conclusion: The collected data indicate huge differences in the utilisation of critical care resources. Treatment in Polish ICU is concentrated on much more severely ill patients which might be sometimes accompanied by futility of care. In order to verify and correctly interpret the presented phenomena, further studies are needed.

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  • 13.
    Adamski, Jan
    et al.
    via media, S-75655 Uppsala, Sweden..
    Goraj, Radoslaw
    Reg Specialist Hosp Olsztyn, Dept Anaesthesiol & Intens Care, Olsztyn, Poland..
    Onichimowski, Dariusz
    Reg Specialist Hosp Olsztyn, Dept Anaesthesiol & Intens Care, Olsztyn, Poland..
    Gawlikowska, Ewa
    Reg Specialist Hosp Olsztyn, Dept Anaesthesiol & Intens Care, Olsztyn, Poland..
    Weigl, Wojciech
    Uppsala Univ, Univ Uppsala Hosp, Dept Surg Sci Anaesthesiol & Intens Care, Uppsala, Sweden..
    The differences between two selected intensive care units located in central and northern Europe: preliminary observation2015In: ANAESTHESIOLOGY INTENSIVE THERAPY, ISSN 1642-5758, Vol. 47, no 2, p. 117-124Article in journal (Refereed)
    Abstract [en]

    Background: The aim of this study was to evaluate possible differences in the functioning of two selected intensive care units in Poland and Finland. The activity of the units was analysed over a period of one year. Methods: The following parameters were compared: demography of treated populations, site of admission, category of illness, severity of illness (APACHE-II scale), mean length of stay, demanded workload (TISS-28 scale), mortality (both ICU and hospital) and standardized mortality ratio (SMR). Results: The results of this study indicated that most of the patients in the Polish ICU, regardless of age, diagnosis and APACHE II score, presented significantly longer lengths of stay (14.65 +/- 13.6 vs 4.1 +/- 4.7 days, P = 0.0001), higher mean TISS-28 score (38.9 +/- 9.1 vs 31.2 +/- 6.1, P = 0.0001) and higher ICU and hospital mortality (41.5% vs 10.2% and 44.7% vs 21.8%, respectively, P = 0.0001). The values of SMR were 0.9 and 0.85 for the Finnish and Polish ICUs, respectively. Conclusion: The collected data indicate huge differences in the utilisation of critical care resources. Treatment in Polish ICU is concentrated on much more severely ill patients which might be sometimes accompanied by futility of care. In order to verify and correctly interpret the presented phenomena, further studies are needed.

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  • 14.
    Adel, E.
    et al.
    Univ Gävle, Dept Hlth & Caring Sci, Fac Hlth & Occupat Studies, Kungsbacksvagen 47, S-80176 Gävle, Sweden..
    Lofmark, A.
    Univ Gävle, Dept Hlth & Caring Sci, Fac Hlth & Occupat Studies, Kungsbacksvagen 47, S-80176 Gävle, Sweden..
    Pålsson, Ylva
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Caring Sciences. Univ Gävle, Dept Hlth & Caring Sci, Fac Hlth & Occupat Studies, Kungsbacksvagen 47, S-80176 Gävle, Sweden.;Uppsala Univ, Dept Publ Hlth & Caring Sci, Box 564, S-75122 Uppsala, Sweden..
    Mårtensson, Gunilla
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Caring Sciences. Univ Gävle, Dept Hlth & Caring Sci, Fac Hlth & Occupat Studies, Kungsbacksvagen 47, S-80176 Gävle, Sweden.;Uppsala Univ, Dept Publ Hlth & Caring Sci, Box 564, S-75122 Uppsala, Sweden..
    Engström, Maria
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Caring Sciences. Univ Gävle, Dept Hlth & Caring Sci, Fac Hlth & Occupat Studies, Kungsbacksvagen 47, S-80176 Gävle, Sweden.;Uppsala Univ, Dept Publ Hlth & Caring Sci, Box 564, S-75122 Uppsala, Sweden.;Lishui Univ, Med & Hlth Coll, Nursing Dept, Lishui, Peoples R China..
    Lindberg, Mikaela
    Univ Gävle, Dept Hlth & Caring Sci, Fac Hlth & Occupat Studies, Kungsbacksvagen 47, S-80176 Gävle, Sweden.;Uppsala Univ, Dept Publ Hlth & Caring Sci, Box 564, S-75122 Uppsala, Sweden.;Uppsala Univ Reg Gävleborg, Ctr Res & Dev, S-80188 Gävle, Sweden..
    Health-promoting and -impeding aspects of using peer-learning during clinical practice education: A qualitative study2021In: Nurse Education in Practice, ISSN 1471-5953, E-ISSN 1873-5223, Vol. 55, article id 103169Article in journal (Refereed)
    Abstract [en]

    Aim: The aim of the present study was to elucidate health-promoting and -impeding aspects of peer-learning by examining nursing students' descriptions of learning together as peers, and how this might interact with their health. Background: Peer-learning is a useful strategy for teaching and learning in nursing students' clinical practice education. In the research, benefits such as improved cooperation and increased self-confidence have been described and labelled as health-promoting. Design: A qualitative descriptive approach Method: Thirteen first-year nursing students aged 22-45 years, who had completed their first clinical practice education on a medical or surgical hospital ward, participated in one-on-one semi-structured interviews. The interviews were analyzed using qualitative content analysis. Result: Working as a pair was primarily described as positive, as the peers felt basic support from each other, even though they described negative experiences that limited their own development and challenged their patience. Conclusion: Peer-learning as a model for supervision in clinical practice incorporates valuable health-promoting aspects, as the students felt safe, supported, increased self-confidence, and participation. The interaction between peers helped them grow as human beings, and the mutual support the peers felt was a vital health-promoting aspect that limited the impact of the described health-impeding aspects, which included sometimes finding peer-learning trying, stressful and irritating.

  • 15.
    Aderö, Mariette
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Larsson, Inga
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Det osynliga lidandet: Upplevelser av bemötande inom hälso- och sjukvård hos personer med diagnosen endometrios2015Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
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  • 16.
    Adman, Erika
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Lund, Li
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Metabola syndromet: Hur kan individer med metabolt syndrom motiveras till förändring av ohälsosam livsstil genom egenvård?2017Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
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  • 17.
    Adolfsson, Jenny
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Surgical Sciences.
    Lindskog, Maria
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Surgical Sciences.
    Patientens upplevelse av vakenkirurgi2020Independent thesis Advanced level (degree of Master (One Year)), 10 credits / 15 HE creditsStudent thesis
    Abstract [sv]

    INTRODUKTION:Vid vakenkirurgi är patienten vid medvetande under hela eller delar av den intraoperativa fasen. Detta genererar ett stort informationsbehov från patienten och ställer även höga krav på operationssjuksköterskans förmåga att förmedla trygghet. Det teoretiska begreppet integritet används med en induktiv ansats i arbetet. SYFTE: Syftet med uppsatsen är att beskriva patientens upplevelse av att opereras i vaket tillstånd. METOD: Uppsatsen är en litteraturstudie med induktiv ansats. Litteraturanalys har utförts i fyra steg enligt Evans. RESULTAT: Fyra kategorier framkom. Bemötande var viktigt för att patienten skulle känna sig delaktig. God relation till kirurgen och möjlighet att få uttrycka sina behov under operationens gång bidrog även till en positiv upplevelse. Kvaliteten på den preoperativa informationen resulterade i hur patienten upplevde trygghet under operationen. När patienten inte kunde lita på personalen vittnade de bland annat om att vilja skapa sig en bubbla, att stänga in sig i tills operationen var över. Många upplevde obehag av att kännakroppen domna bort och den upplevdes som overklig, både visuellt och vid beröring. Andra patienter beskrev en positiv känsla av att lämna över ansvaret av kroppen under operationen för att uppnå ett gott kirurgiskt resultat. Miljön på operationssalen kändes ren men också främmande med många konstiga och oroande ljud. SLUTSATS: Situationer som hotar kränka integriteten ter sig som orosmoment för patienten. Genom att operationssjuksköterskan ges möjlighet att bygga en relation till patienten minskar hotet och därmed förbättras kvaliteten på den perioperativa omvårdnaden.

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  • 18.
    Adolphson, Katja
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health.
    Axemo, Pia
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, International Maternal and Child Health (IMCH).
    Högberg, Ulf
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Obstetrics and Gynaecology.
    Midwives' experiences of working conditions, perceptions of professional role and attitudes towards mothers in Mozambique2016In: Midwifery, ISSN 0266-6138, E-ISSN 1532-3099, Vol. 40, p. 95-101Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: low- and middle-income countries still have a long way to go to reach the fifth Millennium Development Goal of reducing maternal mortality. Mozambique has accomplished a reduction of maternal mortality since the 1990s, but still has among the highest in the world. A key strategy in reducing maternal mortality is to invest in midwifery. AIM: the objective was to explore midwives' perspectives of their working conditions, their professional role, and perceptions of attitudes towards mothers in a low-resource setting. SETTING: midwives in urban, suburban, village and remote areas; working in central, general and rural hospitals as well as health centres and health posts were interviewed in Maputo City, Maputo Province and Gaza Province in Mozambique. METHOD: the study had a qualitative research design. Nine semi-structured interviews and one follow-up interview were conducted and analysed with qualitative content analysis. RESULTS: two main themes were found; commitment/devotion and lack of resources. All informants described empathic care-giving, with deep engagement with the mothers and highly valued working in teams. Lack of resources prevented the midwives from providing care and created frustration and feelings of insufficiency. CONCLUSIONS: the midwives perceptions were that they tried to provide empathic, responsive care on their own within a weak health system which created many difficulties. The great potential the midwives possess of providing quality care must be valued and nurtured for their competency to be used more effectively.

  • 19.
    Aene, Roya
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Depraetere, Louise
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Den okända folksjukdomen: Upplevelser och erfarenheter av endometrios: En litteraturöversikt2024Independent thesis Advanced level (degree of Master (One Year)), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: Endometriosis affects one out of ten women and means that endometrial-like tissue grows outside the uterus, which creates pain, inflammation and fibrosis. The symptoms include, for example, dysmenorrhea, chronic abdominal pain, bleeding disorders and fatigue. The women should be treated with sensitivity, respect and be confirmed in the suffering caused by the disease.

    Aim: To describe women's experiences of living with endometriosis and how they experience their healthcare when they seek care for problems linked to the disease.

    Method: Literature review with a qualitative approach where 18 studies were included. The data analysis method of Popenoe et al. (2021) for literature review has been used and the studies have been quality reviewed with SBU's template for assessment of qualitative studies.

    Results: From the results emerged the theme Physiological consequences of pain (subtheme Experiences of pain and Experiences of bleeding), the theme Psychosocial consequences of pain (subthemes Experiences of relationships and social life, Experiences of career and education and Feelings and thoughts), the theme Delayed diagnosis and treatment (subtheme Experiences of not being taken seriously and Experiences of lack of knowledge and lack of communication), as well as the theme Receiving a diagnosis and treatment quickly (subtheme Experiences of feeling safe and getting hope). Endometriosis has negative effects on women's physiological, psychosocial and psychological health where pain is the dominant symptom. Women's experience of care differs, but often they experience that their pain and feelings are not taken seriously by the health care staff, which creates additional suffering for the women.

    Conclusion: Most women with endometriosis suffer from pain and bleeding which affects several aspects of life such as taking care of basic needs, intimate and social relationships, sex life, work or studies and everyday chores at home. Mental illness was common. When women seek care, they sometimes experience that they are not always taken seriously and sometimes experience incompetence and ignorance from the care staff. This delays diagnosis and thus treatment.

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  • 20.
    Af Sandeberg, Margareta
    et al.
    Karolinska Inst, Dept Womens & Childrens Hlth, Stockholm, Sweden..
    Olsson, Maria
    Univ Gothenburg, Sahlgrenska Acad, Inst Clin Sci, Dept Oncol, Gothenburg, Sweden..
    Ek, Torben
    Univ Gothenburg, Inst Clin Sci, Sahlgrenska Acad, Dept Paediat, Gothenburg, Sweden..
    Enskär, Karin
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Pediatric oncology research with a special focus on side effects.
    Stenmarker, Margaretha
    Univ Gothenburg, Inst Clin Sci, Sahlgrenska Acad, Dept Paediat, Gothenburg, Sweden.;Futurum Acad Hlth & Care, Dept Paediat, Jönköping, Sweden.;Linköping Univ, Dept Biomed & Clin Sci, Linköping, Sweden..
    Pergert, Pernilla
    Karolinska Inst, Dept Womens & Childrens Hlth, Stockholm, Sweden..
    Nurses' Perceptions of the Impact of a National Educational Program in Pediatric Oncology Nursing: A Cross-Sectional Evaluation2023In: Journal of Pediatric Hematology/Oncology Nursing, ISSN 2752-7530, E-ISSN 2752-7549, Vol. 40, no 3, p. 178-187Article in journal (Refereed)
    Abstract [en]

    Background: Specific knowledge is required in pediatric oncology, and specialization of nurses has been identified as a priority. In Sweden, a national program in pediatric oncology nursing has been offered since 2003. The aim of this study was to gain knowledge of nurses’ perceptions of the impact of this educational program.

    Methods: Eighty nurses who had completed the educational program in three cohorts (2012–2019) were invited to participate in this cross-sectional survey. An electronic study-specific questionnaire containing multiple-choice questions was used. Data were analyzed using descriptive statistics and correlation tests.

    Results: Fifty-nine (74%) nurses completed the survey, of whom 98% responded that they would recommend the program to a large/fairly large extent. At the time of the survey, 15 (25%) participants had left pediatric oncology care. Among the remaining 44, 31 (71%) of the nurses were working bedside, and 13 (42%) of these combined this with a special position (e.g., consultant nurse). The education resulted in career advancement, as the number of nurses with special positions increased following completion of the program, from 20% to 59%. The vast majority stated that the knowledge gained from the education contributed to increased confidence in interactions with the children/families.

    Discussion: Continuing education of nurses in pediatric oncology has an impact on career opportunities in clinical practice and contributes to nurses’ confidence and professional work. However, education is not enough to retain competent nurses. Employers need to be aware of the role of the work environment, aspects of work–life balance and career paths.

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  • 21.
    af Winklerfelt Hammarberg, Sandra
    et al.
    Karolinska Inst, Dept Neurobiol Care Sci & Soc, Div Family Med & Primary Care, Alfred Nobels Alle 23, S-14152 Stockholm, Sweden.;Reg Stockholm, Acad Primary Hlth Care Ctr, Stockholm, Sweden..
    Bjorkelund, Cecilia
    Univ Gothenburg, Sahlgrenska Acad, Inst Med, Dept Publ Hlth & Community Med,Primary Hlth Care, Gothenburg, Sweden..
    Nejati, Shabnam
    Univ Gothenburg, Sahlgrenska Acad, Inst Med, Dept Publ Hlth & Community Med,Primary Hlth Care, Gothenburg, Sweden..
    Magnil, Maria
    Univ Gothenburg, Sahlgrenska Acad, Inst Med, Dept Publ Hlth & Community Med,Primary Hlth Care, Gothenburg, Sweden..
    Hange, Dominique
    Univ Gothenburg, Sahlgrenska Acad, Inst Med, Dept Publ Hlth & Community Med,Primary Hlth Care, Gothenburg, Sweden.;Reg Vastra Gotaland, Narhalsan Res & Dev Primary Hlth Care, Gothenburg, Sweden..
    Svenningsson, Irene
    Univ Gothenburg, Sahlgrenska Acad, Inst Med, Dept Publ Hlth & Community Med,Primary Hlth Care, Gothenburg, Sweden.;Reg Vastra Gotaland, Narhalsan Res & Dev Primary Hlth Care, Gothenburg, Sweden..
    Petersson, Eva-Lisa
    Univ Gothenburg, Sahlgrenska Acad, Inst Med, Dept Publ Hlth & Community Med,Primary Hlth Care, Gothenburg, Sweden.;Reg Vastra Gotaland, Narhalsan Res & Dev Primary Hlth Care, Gothenburg, Sweden..
    Andre, Malin
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Family Medicine and Preventive Medicine.
    Udo, Camilla
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Disciplinary Domain of Medicine and Pharmacy, research centers etc., Center for Clinical Research Dalarna. Dalarna Univ, Sch Hlth & Welf, Falun, Sweden.;Marie Cederschiold Univ, Div Hlth Care Sci, Stockholm, Sweden..
    Ariai, Nashmil
    Univ Gothenburg, Sahlgrenska Acad, Inst Med, Dept Publ Hlth & Community Med,Primary Hlth Care, Gothenburg, Sweden..
    Wallin, Lars
    Dalarna Univ, Sch Hlth & Welf, Falun, Sweden..
    Wikberg, Carl
    Univ Gothenburg, Sahlgrenska Acad, Inst Med, Dept Publ Hlth & Community Med,Primary Hlth Care, Gothenburg, Sweden..
    Westman, Jeanette
    Karolinska Inst, Dept Neurobiol Care Sci & Soc, Div Family Med & Primary Care, Alfred Nobels Alle 23, S-14152 Stockholm, Sweden.;Reg Stockholm, Acad Primary Hlth Care Ctr, Stockholm, Sweden.;Marie Cederschiold Univ, Div Hlth Care Sci, Stockholm, Sweden.;Karolinska Inst, Div Nursing, Dept Neurobiol Care Sci & Soc, Huddinge, Sweden..
    Clinical effectiveness of care managers in collaborative primary health care for patients with depression: 12-and 24-month follow-up of a pragmatic cluster randomized controlled trial2022In: BMC Primary Care, E-ISSN 2731-4553, Vol. 23, no 1, article id 198Article in journal (Refereed)
    Abstract [en]

    Background In previous studies, we investigated the effects of a care manager intervention for patients with depression treated in primary health care. At 6 months, care management improved depressive symptoms, remission, return to work, and adherence to anti-depressive medication more than care as usual. The aim of this study was to compare the long-term effectiveness of care management and usual care for primary care patients with depression on depressive symptoms, remission, quality of life, self-efficacy, confidence in care, and quality of care 12 and 24 months after the start of the intervention. Methods Cluster randomized controlled trial that included 23 primary care centers (11 intervention, 12 control) in the regions of Vastra Gotaland and Dalarna, Sweden. Patients >= 18 years with newly diagnosed mild to moderate depression (n = 376: 192 intervention, 184 control) were included. Patients at intervention centers co-developed a structured depression care plan with a care manager. Via 6 to 8 telephone contacts over 12 weeks, the care manager followed up symptoms and treatment, encouraged behavioral activation, provided education, and communicated with the patient's general practitioner as needed. Patients at control centers received usual care. Adjusted mixed model repeated measure analysis was conducted on data gathered at 12 and 24 months on depressive symptoms and remission (MADRS-S); quality of life (EQ5D); and self-efficacy, confidence in care, and quality of care (study-specific questionnaire). Results The intervention group had less severe depressive symptoms than the control group at 12 (P = 0.02) but not 24 months (P = 0.83). They reported higher quality of life at 12 (P = 0.01) but not 24 months (P = 0.88). Differences in remission and self-efficacy were not significant, but patients in the intervention group were more confident that they could get information (53% vs 38%; P = 0.02) and professional emotional support (51% vs 40%; P = 0.05) from the primary care center. Conclusions Patients with depression who had a care manager maintained their 6-month improvements in symptoms at the 12- and 24-month follow-ups. Without a care manager, recovery could take up to 24 months. Patients with care managers also had significantly more confidence in primary care and belief in future support than controls.

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  • 22.
    Afsahi, Leon
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Haglund, Petter
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Patienters Upplevelser Av Bedsiderapportering2021Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [sv]

    Bakgrund: Traditionellt sett har överrapportering av patienter skett mellan vårdpersonal på sjuksköterskeexpedition. Detta har medfört att patienten inte haft möjlighet att tillföra frågor eller information om sin vård vid överrapporteringen till annan vårdpersonal.

    Syfte: Syftet med denna allmänna litteraturstudie var att studera patienters upplevelser inom bedsiderapportering i slutenvård.

    Metod: Allmän litteraturstudie med en beskrivande design. Databaser som har använts för att finna information har varit PubMed och CINAHL.

    Resultat: Resultatet består av tio artiklar och omfattar fyra teman; delaktighet, integritet/sekretess, kommunikation/information och mötet med sjuksköterskan. De flesta patienter upplevde bedsiderapportering som en positiv metod där majoriteten av patienterna från samtliga studier kände sig mer delaktiga och informerade i sin egen vård. En annan genomgående upplevelse var att en majoritet patienter från samtliga studier upplevde sig trygga med att kunna säkerställa att rätt information gavs och att de kunde korrigera eventuella felaktigheter i överrapporteringen.

    Slutsats: Bedsiderapportering har visat sig öka patienters delaktighet i den egna vården och förbättrat informationsutbytet eftersom vårdpersonal pratar direkt med patienten och inte bakom stängda dörrar. Det visar att bedsiderapportering är ett steg i rätt riktning mot att främja patienters delaktighet, bidra till en personcentrerad vård och uppmuntra till ett öppnare samtalsklimat mellan patient och ansvarig sjuksköterska. 

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  • 23.
    Agerberg, Elin
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Ericsson, Carin
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Att leva med döden i farstun: En kvalitativ studie av kvinnors berättelser på internet om att leva med obotlig cancer2014Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Aim: The aim of this study was to examine how women living with incurable cancer described the palliative phase based on their own stories on the Internet. Method: The study was performed with qualitative descriptive approach and included six blogs written by women diagnosed with incurable cancer. The Google search was used to collect data and the keywords were “incurable cancer” and "blog”. To answer the aim of the study a qualitative content analysis, according to Graneheim and Lundman (2004), was performed. Results: The women experienced physical and social changes as well as psychological pressure and they used various strategies to manage their lives. The women felt that both daily life and relationships changed due to the disease and it turned out that relatives had an important supporting role to play. A strategy of great importance was communication and some of the women highlighted the importance of getting to talk about their illness and death. It was revealed that the women experienced writing meaningful for themselves and also for others. Conslusions: The study provides a greater understanding to the experience of living with incurable cancer. It also gives an opportunity to understand the coping strategies that patients use to manage their lives. A personal story on the Internet is a relatively new source of greater knowledge, as seen from the patient's perspective. The Internet is a growing forum that in healthcare should be seen as a resource for gathering information.

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  • 24.
    Agerlind, Emma
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Musikens betydelse vid omvårdnad av individer med demenssjukdom2016Independent thesis Basic level (degree of Bachelor), 180 HE creditsStudent thesis
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  • 25.
    Agnes, Jedvik
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Anna, Arnljots
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Patienters upplevelser av tolk inom hälso- och sjukvård: En systematisk litteraturstudie2017Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: Commutative obstacles due to language difficulties are gradually increasing with migration. Consequences due to linguistic barriers may lead to misunderstandings or failures of information between patients and healthcare professionals. The availability of authorized hospital interpreters is significantly lower than the demand from patients who are in need for an interpreter. The Swedish Patient Act determines that all patients should be informed about their disease situation, upcoming treatment and aftercare. Aim: To describe patients' experiences of using interpreters in healthcare. Method: A systematic literature study of eleven scientific articles. Searches were made in the PubMed and CINAHL databases. Result: The analysis of included articles resulted in six themes, which were equal care, satisfaction with individualized interpreters, lack of trust, disability, fear for misunderstanding and when the interpreter is a family member. Conclusion: Patients experience access to a professional interpreter positively. However, there are significant deficiencies regarding interpreters in healthcare today. The ability to achieve person-centered care is complicated by the shortcomings that patients experience in the conversation via interpreter. Likewise, patients' ability to participate in their own care situation is complicated.

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  • 26.
    Agren, Susanna
    et al.
    Lund Univ, Dept Cardiothorac Surg, Lund, Sweden.;Linkoping Univ, Dept Med & Hlth Sci, Div Nursing Sci, Linkoping, Sweden.;Linkoping Univ, Dept Cardiothorac Surg, Linkoping, Sweden..
    Sjoberg, Trygve
    Lund Univ, Dept Cardiothorac Surg, Lund, Sweden.;Skane Univ Hosp Lund, Dept Cardiothorac Surg, Lund, Sweden..
    Ekmehag, Björn
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Wiborg, Maj-Britt
    Skane Univ Hosp Lund, Dept Cardiol, Lund, Sweden..
    Ivarsson, Bodil
    Lund Univ, Dept Cardiothorac Surg, Lund, Sweden.;Skane Univ Hosp Lund, Dept Cardiothorac Surg, Lund, Sweden..
    Psychosocial aspects before and up to 2years after heart orlung transplantation: Experience of patients and their nextof kin2017In: Clinical Transplantation, ISSN 0902-0063, E-ISSN 1399-0012, Vol. 31, no 3, article id e12905Article in journal (Refereed)
    Abstract [en]

    BackgroundPsychosocial factors are important for patients undergoing heart (HTx) or lung (LTx) transplantation and for their next of kin (NoK). AimTo describe health-related quality of life (HRQoL; patients only), anxiety, depression, stress, coping ability, and burden (NoK only) for patients and their NoK before and up to 2years after HTx or LTx. DesignAdult patients (28 hearts and 26 lungs) and their appointed NoK were surveyed with questionnaires about specific psychosocial topics when they were accepted for the transplantation waiting list and 6months, 1year, and 2years after transplantation. FindingsPatients' coping ability and self-perceived health were low at baseline and improved over time after transplantation. However, lung patients took longer time to recover in terms of HRQoL, depression, and stress than heart patients. Similarly, NoK of lung patients experienced a higher burden and more stress 1year after transplantation than NoK of heart patients. ConclusionsHealthcare professionals should be aware of the psychosocial challenges patients and their NoK face in daily living and provide support both before and after heart or lung transplantation.

  • 27.
    Ahl, Lina
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Eriksson, Sandra-Marie
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Språkbarriärer i vården av barn: Vad sjuksköterskor anser om informationsutbyte och hjälpmedel2016Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    ABSTRACT

    Background Research has shown that health care in another language than the patient’s main language can affect the outcome of treatment in a negative way. It is of great importance when children are patients that the foundation of health care feels safe and trustworthy since the way of viewing health care will affect the rest of the child’s life.

     

    Aim Examine nurses experience of giving and receiving information in the care of children when children and/or relatives do not understand/speak Swedish. Another aim is to examine if there is any strategies and tools that are being used to give correct information and if the nurses believe the tools help them or not.

     

    Method The study is a descriptive study with quantitative approach and a quantitative content analysis contenting a qualitative part. Surveys were handed out on pediatric wards and clinics on a hospital in the middle of Sweden. In total, 44 nurses replied.

     

    Result The respondents believed that they sometimes could give and receive information to and from patients and relatives. A majority said there was a strategy on their ward and half of them thought the strategy was working well. All of the respondents said tools were available. The best tool was interpreter at the scene. Most accessible was telephone interpreter.  

     

    Conclusion No one of the participating nurses believed they could give information correctly to patients or and relatives that do not speak or and understand Swedish. This reveals an uncertainty whether the right information has been given or received. The majority of the nurses believed that they sometimes can give and receive correct information to/from patients and relatives that do not speak and or understand Swedish. Mostly there was a strategy available and tools were always available. Telephone interpreter was the most accessible tool and interpreter at the scene was the best option, although there were some questions considering the quality of for example the medical knowledge of the interpreter. Booking of an interpreter took a lot of planning ahead and there is a need for more bookings.

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  • 28.
    Ahl, Lisa
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Gustafsson, Petra
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Kvinnors upplevlse av urinläckage efter graviditet: en intervjustudie2014Independent thesis Advanced level (degree of Master (One Year)), 10 credits / 15 HE creditsStudent thesis
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  • 29.
    Ahlbin, Kristina
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Jansson, Sandra
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Uppfattningar om fall och fallprevention hos vårdpersonal inom geriatrisk slutenvård2018Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Falls and fall related injuries are a major health issue to the elderly population of Sweden. The number of accidents in the community caused by falls is increasing. It is mainly the elderly who need to be hospitalized after a fall. Patients with stroke, cognitive disorders, or hip fracture, have a particularly high risk of falling. A common consequence of falls is femur fractures. To prevent and reduce the occurrences of falls in hospitals, an individual care plan aimed at the patient, is required, as well as an individual and feasible nursing intervention. It also require that health professionals use their knowledge and the patient’s and the hospital's resources, to implement the care plan. Since 2008 SKL runs a national effort to reduce preventable harm and improve patient safety, where fall related injuries are an area of focus.

    Aim: The aim with this study is to examine and describe health professionals' attitudes towards falls and fall prevention, and whether the nursing staff considers themselves to be proficient in falls and fall prevention.

    Method: This was a quantitative study and Mann Whitney U test were conducted in order to analyse and summarize the answers from the questionnaires.

    Results: The respondents have a positive attitude towards fall prevention. The perception among the nursing staff is that they feel well trained in fall prevention, and have sufficient knowledge in fall prevention.

    Conclusion: The conclusion of this study is that nurses and nursing staff take falls among patients very seriously and have a positive attitude towards fall prevention. They also consider themselves to have a good knowledge about falls and fall prevention.

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  • 30.
    Ahlgren, Gustaf
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Surgical Sciences, Nursing Research.
    Anheller, Magnus
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Surgical Sciences, Nursing Research.
    Anestesisjuksköterskans möjlighet att övervaka awareness med hjälp av bispectral index: En litteraturstudie med systematisk ansats2023Independent thesis Advanced level (degree of Master (One Year)), 10 credits / 15 HE creditsStudent thesis
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  • 31.
    Ahlgren, Lovisa
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Fernández Stenman, Lucia
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Kvinnors upplevelser av postpartumdepression och vården vid sjukdomen: En litteraturöversikt2020Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: Postpartum depression (PPD) affects 12 % of women. PPD comes after childbirth and usually appears within four weeks. Today there is poor knowledge about mental ill related to PPD. Women have also limited knowledge about how and where to seek care. To be able to offer good care based on women’s needs, more knowledge about their experience is needed. 

    Purpose: To investigate the experiences of women with Postpartum Depression (PPD) and the healthcare in conjunction to this. 

    Method: General literature study with descriptive design. The Pubmed, Psykinfo and CINAHL databases were used for the literature search. The result was based on 11 original articles with a qualitative approach, written from 2008-2019. The quality of the articles were examined.   

    Result: During the PPD period, several mothers experienced the feeling of failure, hopelessness and felt affected by the stigma around the disease, to appear as a bad mother. Isolation and loneliness were experienced by many mothers. Therefore support in the form of affirmation and understanding was seen as a basis for recovery. Poor knowledge about PPD was a common experience. Some mothers perceived the care as supportive and rewarding, while some women felt that the care was not good because healthcare professionals tried to normalize their feelings. 

    Conclusion: The results of the study could be interpreted that many experiences from women depend on poor knowledge of PPD in both mothers with PPD and in different health care professionals. Since PPD is a part of our society, increased knowledge of nurses non-institutional care should be encouraged for the reason to give mothers with PPD better care and health. 

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  • 32.
    Ahlgren, Nicha
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Östlund, Axel
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Patientupplevelser vid palliativ vård - En kvalitativ litteraturöversikt2024Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [sv]

    Bakgrund: Att vårdas palliativt är en individuell upplevelse som kan påverka en människa både fysiskt, psykiskt, socialt och existentiellt. Patienter kan uppleva problem och behov inom alla dessa fyra dimensioner där sjuksköterskan behöver bemöta dessa.

    Syfte: Syftet med denna studie var att beskriva fysiska, psykiska, sociala och existentiella upplevelser hos vuxna patienter som vårdas palliativt.

    Metod: Deskriptiv design där litteraturöversikt med en deduktiv kvalitativ ansats som metod har använts. Databaser som användes för litteratursökning var PubMed och CINAHL.

    Resultat: Resultatet presenteras utifrån kategorierna: psykiska upplevelser, fysiska upplevelser, sociala upplevelser och existentiella upplevelser. Bland psykiska upplevelser beskrevs svåra känslor som ensamhet, rädsla och frustration. Andra beskrev positiva känslor som en upplevd trygghet. Deltagarnas fysiska upplevelser varierade mellan att känna sig påverkad av uppvisade fysiska symtom samt att vara beroende av fysisk hjälp från andra. Upplevelser utifrån den sociala dimensionen visade vikten av relationsbildandet och tillit mellan patient och vårdpersonal och att behov och önskemål gällande att få information varierade. De existentiella upplevelserna visade att patienterna kände en osäkerhet inför döden och frågor kring varför just de blivit sjuka. Det visade även att patienter som vårdas palliativt önskar bli sedd som person, och inte patienter.

    Slutsats: Upplevelser och behov hos patienter som vårdas palliativt varierar och kan sträcka sig genom flera dimensioner. För att kunna tillfredsställa dessa behov behöver omvårdnaden planeras och genomföras utifrån ett personcentrerat perspektiv och med patientens individuella behov i åtanke. Sjuksköterskan behöver arbeta utifrån de fyra dimensionerna, de fyra hörnstenarna samt de fyra etiska principerna för att tillgodose patientens behov och lindra lidandet på bästa sätt.

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  • 33.
    Ahlm, Maria
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Medical Sciences.
    Patienters kaloribehov i det akuta omhändertagandet efter njurtransplantation: En tvärsnittsstudie2023Independent thesis Advanced level (degree of Master (One Year)), 10 credits / 15 HE creditsStudent thesis
  • 34.
    Ahlqvist Lindqvist, Emma
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Neuroscience, Åsenlöf: Physiotheraphy.
    Ljungvall, Hanna
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Neuroscience, Åsenlöf: Physiotheraphy.
    Zetterberg, Lena
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Neuroscience, Åsenlöf: Physiotheraphy.
    Zetterberg, Hedvig
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Neuroscience, Åsenlöf: Physiotheraphy.
    Bring, Annika
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Neuroscience, Åsenlöf: Physiotheraphy.
    de Belder Tesséus, Charlotte
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Neuroscience.
    Åsenlöf, Pernilla
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Neuroscience, Åsenlöf: Physiotheraphy.
    Psychometric assessment of the Swedish version of the injustice experience questionnaire among patients with chronic pain2021In: Scandinavian Journal of Pain, ISSN 1877-8860, E-ISSN 1877-8879, Vol. 21, no 4, p. 732-742Article in journal (Refereed)
    Abstract [en]

    Objectives

    The use of the Injustice Experience Questionnaire (IEQ) in psychological assessment of individuals with chronic pain is supported by research. The psychometric properties of the Swedish version, the IEQ-S, has not yet been evaluated. Hence, the aim was to investigate structural validity, and concurrent criterion validity of the IEQ-S against the Work Ability Index (WAI), the Pain Catastrophizing Scale (PCS-SW), the Patient Health Questionnaire 9-item depression module (PHQ-9), and the Generalized anxiety disorder 7-item scale (GAD-7). Internal consistency and test-retest reliability were also studied.

    Methods

    Sixty-five participants, referred to a University hospital, with a pain duration over three months were consecutively sampled. They completed the IEQ-S at admission and again within six weeks. A confirmatory factor analysis was performed for the study of structural validity. Concurrent criterion validity was evaluated using Spearman’s correlation coefficient. Internal consistency reliability for the full IEQ-S was calculated using the Cronbach’s alpha. Test-retest reliability was calculated using an Intraclass Correlation Coefficient (ICC).

    Results

    The median total score (0–48, where high scores indicate high levels of injustice) at admission (test 1) was 27.0 (n=64), 25th percentile=15.3, 75th percentile=37.8, range=3–48 points. A one-factor model was supported with item-loadings between 0.67–0.92. Spearman’s correlation coefficient between the IEQ-S and the WAI (n=56) was r S =−0.46; the PCS-SW (n=63) was r S =0.68, the PHQ-9 (n=64) was r S =0.50 and the GAD-7 (n=64) was r S =0.57, p<0.01. Cronbach’s alpha was 0.94 (n=64). The ICC was 0.80 (n=55), with a 95% confidence interval, ranging between 0.69–0.88.

    Conclusions

    Our study supported structural validity and concurrent criterion validity of the IEQ-S against other measures of psychological constructs and work ability. It also supported the internal consistency reliability of the IEQ-S and the test-retest reliability with a retest interval up to six weeks, was good. These findings support the use of the IEQ-S as an adjunct tool to assess appraisals of injustice in patients with chronic pain who are referred to tertiary care in Sweden. The added value might be identification of those who are at risk for slow or no improvement in their pain condition over time, and sick-leave, but this has to be confirmed in future studies.

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  • 35.
    Ahlqvist-Bjorkroth, Sari
    et al.
    Univ Turku, Dept Psychol & Speech Language Pathol, Turku, Finland.;Univ Turku, Dept Clin Med, Turku, Finland..
    Thernström Blomqvist, Ylva
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Perinatal, Neonatal and Pediatric Cardiology Research.
    Nyberg, Jenni
    Univ Turku, Dept Psychol & Speech Language Pathol, Turku, Finland..
    Normann, Erik
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health.
    Axelin, Anna
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health. Uppsala Univ, Dept Womens & Childrens Hlth, Uppsala, Sweden.;Univ Turku, Dept Nursing Sci, Turku, Finland..
    Improving NICU staff decision-making with parents in medical rounds: a pilot study of reflective group dialogue intervention2023In: Frontiers in Pediatrics , E-ISSN 2296-2360, Vol. 11, article id 1249345Article in journal (Refereed)
    Abstract [en]

    Introduction: The communication skills of healthcare professionals play a crucial role in successful shared decision-making with parents in neonatal intensive care. Improving communication skills can be achieved through practice and reflection on personal experiences after authentic interaction events with parents. The process of reflection typically involves three phases: description, reflection, and critical reflection. In this study, our aim was to explore the acceptability of the Reflective Group Dialogue intervention and its effectiveness in supporting the reflective process.

    Methods: This qualitative pilot study was conducted in the neonatal intensive care unit at Uppsala University Children's Hospital, Sweden. The sample consisted of nine medical rounds with seven families, five neonatologists, seven registered nurses, and five assistant nurses. Purposive sampling was used to collect the data. The intervention comprised four elements: (1) before the intervention, a recorded presentation on shared decision-making was given to the entire unit staff, (2) an observation of a normal medical round discussion with parents, (3) an interview with parents about their experience after the same round, and (4) a reflective discussion with the participating health care professionals after the round. The parent interviews and reflective discussions were audio-recorded and transcribed verbatim. They were analyzed using thematic analysis as a theoretical strategy.

    Results: Both parents and staff widely accepted the intervention and found it beneficial. We identified four discussions that remained in the descriptive phase of the reflection process, four that reached the reflective phase, and one that reached the critical reflection phase. The descriptive discussions were characterized by using a single perspective to reflect, often based on personal opinions. The reflective discussions included analyzing interaction sequences from both staff and parent perspectives and were primarily based on actual observations of communication during medical rounds. The critical discussion led to a new awareness of current practices concerning parental involvement in decision-making. These discussions also utilized "what-if" thinking to evaluate potential new practices and their pros and cons.

    Conclusions: The intervention seems promising as it was perceived as beneficial by the recipients and facilitated reflection in most cases. However, to enhance the feasibility of the intervention, some improvements are discussed.

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  • 36.
    Ahlstedt, Carina
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Samarbete och flexibelt lärande inom sjuksköterskeprogrammet2010In: Kunskapens nya världar: mötet mellan pedagogik och teknik vid Uppsala Learning Lab / [ed] Jenny Lee, Uppsala: Uppsala Learning Lab, Uppsala universitet , 2010, 1, p. 189-195Chapter in book (Other (popular science, discussion, etc.))
  • 37.
    Ahlstedt, Carina
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Health Services Research.
    Eriksson Lindvall, Carin
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Business Studies.
    Holmström, Inger
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Health Services Research. School of Health, Care and Social Welfare, Mälardalen University, Västerås, Sweden.
    Muntlin, Åsa
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Health Services Research. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Medical Sciences, Clinical Epidemiology.
    Flourishing at work: Nurses' motivation through daily communication - An ethnographic approach2020In: Nursing and Health Sciences, ISSN 1441-0745, E-ISSN 1442-2018, Vol. 22, no 4, p. 1169-1176Article in journal (Refereed)
    Abstract [en]

    Shortage and turnover of registered nurses are worldwide challenges, and work motiva-tion is one factor in retaining staff in the healthcare sector. The aim of this study was toexplore registered nurses' motivation expressed in daily communication, using the basicneeds in self-determination theory as a framework. A secondary analysis of ethno-graphic data, collected through participant observations, informal interviews duringobservations, and individual interviews, was used. A total sample of all registered nursesemployed at a hospital unit in Sweden (n = 10) participated. The data were analyzed the-matically through the lens of the basic needs in self-determination theory: autonomy,competence, and relatedness. Self-regulation of learning, the possibilities to discuss work-related challenges with colleagues, and having registered nurses lead dialogues with phy-sicians were factors connected to autonomy. Having a registered nurse and physiciansolve problems together was a factor connected to competence.Asenseofbelongingand security in a permissive climate between registered nurses was co nnected to relat-edness. This paper has implications for increased awareness of the three basic motiva-tional needs, which could be used in the development of attractive workplaces

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  • 38.
    Ahlstedt, Carina
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Health Services Research.
    Moberg, Linda
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Health Services Research. Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Government.
    Brulin, Emma
    Karolinska Inst, Inst Environm Med, Unite Occupat Med, Solna, Sweden..
    Nyberg, Anna
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Health equity and working life.
    Do illegitimate tasks matter for registered nurses' work motivation?: A cross-sectional study based on a nationally representative sample of Swedish nurses2023In: International Journal of Nursing Studies Advances, E-ISSN 2666-142X, Vol. 5, article id 100159Article in journal (Refereed)
    Abstract [en]

    Background: A challenge in Western countries is the growing need for registered nurses (RNs') in hospitals, primary care and home healthcare. Decreasing illegitimate tasks and strengthening RNs' work motivation are some strategies to address this challenge.

    Objective: Our overall aim was to explore the association between RNs' experiences of illegitimate tasks and work motivation operationalised as four dimensions: work engagement, opportunities to provide high-quality care, employer satisfaction and intention to remain at the workplace. To address this aim, three specific research questions were asked: (1) Is there an association between illegitimate tasks and work motivation? (2) Do the levels of reported illegitimate tasks differ between RNs working in hospitals and those working in primary care or home healthcare settings? (3) Do associations between illegitimate work tasks and work motivation differ with type of workplace?

    Design: A cross-sectional design.

    Methods: We used responses from a stratified population of RNs in Sweden, n = 2,333, working either in hospitals, primary care or home healthcare. Calibrating weights were applied in all analyses to ascertain the generalisability of the findings. Illegitimate tasks were measured with the Bern Illegitimate Tasks Scale. Data were analysed using chi-squared tests and linear or logistic regression analysis. Interaction was measured on the multiplicative scale by adding an interaction term to the fully adjusted models.

    Results: Overall, approximately 25 % of RNs reported frequently experiencing illegitimate tasks. There were statistically significant associations between higher perceptions of illegitimate tasks and lower ratings in the four dimensions of work motivation: work engagement [beta coefficient [beta] = -0.14, confidence interval [CI] 95 % = -0.18; -0.10], opportunities to provide highquality care [beta = -0.46, CI 95 % = -0.51; -40] and employer satisfaction [beta = -0.60, CI 95 % = -0.67; -0.54]. Experiencing higher levels of illegitimate tasks also related to a decreased intention to remain at the workplace [illegitimate tasks: odds ratio = 0.32, CI 95 % = 0.27; 0.29]. RNs who worked in home healthcare reported higher levels of illegitimate tasks than RNs who worked in hospitals.

    Conclusions: Reducing the amount of illegitimate tasks may contribute to counteracting the shortage of RNs by increasing work motivation and willingness to remain at the workplace.

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  • 39. Ahlström, Gerd
    Encounters in close care relations from the perspective of personal assistants working with persons with severe disablility.2010In: Health & Social Care in the Community, ISSN 0966-0410, E-ISSN 1365-2524, Vol. 18, no 2, p. 180-188Article in journal (Refereed)
    Abstract [en]

    In Sweden adults with major and sustainable disabilities can be granted publicly financed support in the form of personal assistance after assessment and decision-making in accordance with government rules. The purpose of the present study was to explore more deeply the encounters in close care relations between personal assistants and disabled persons of working age, as well as the prerequisites for and obstacles to the success of such encounters, this from the perspective of the personal assistants. Thirty-two personal assistants (22- to 55-year old) who worked for 32 persons with serious neurological diseases living at home were interviewed. The transcribed unstructured interviews were qualitatively analysed using latent content analysis. The analyses resulted in five main themes: Perceptive awareness, Entering into the other's role, Mutuality, Handling the relationship and Personal difficulties facing the assistant. These themes illustrated that a prerequisite for the encounter's being meaningful is that the assistant should be able to observe and understand the unique needs of the disabled person. The assistant must furthermore be able to put herself/himself into the other person's position. It is also important that the personal chemistry between the assistant and the disabled person should be good. Being able to share feelings and interests with the functionally impaired person provides the assistant with positive emotional confirmation of a good relationship. A distressing dilemma the assistant faces is that of distinguishing between the working relationship and the personal friendship. In this borderline area are found experiences, feelings and events that the assistant may view as negative or even unacceptable. This study contributes to the understanding of the complexity underlying the daily community care of disabled persons with an extensive need for care and assistance.

  • 40. Ahlström, Gerd
    et al.
    Wadensten, Barbro
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Caring Sciences.
    Encounters in close care relations from the perspective of personal assistants working with persons with severe disability.2010In: health and social care in community, Vol. 18, no 2, p. 180-188Article in journal (Refereed)
  • 41.
    Ahlsvik, Karin
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Strid, Minna
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Health-related quality of life among patients with chronicobstructive pulmonary disease in Ho Chi Minh City2014Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Introduction: Chronic obstructive pulmonary disease (COPD) is a chronic disease that causes illness and death over the whole world. There are a little available data about COPD patients in Vietnam and how the disease affects their health related quality of life (HRQL).

    Aim: The aim of this study was to examine HRQL among patients with COPD in Ho Chi Minh City, Vietnam, and investigate differences in HRQL between men and women with COPD.

    Method: This was a descriptive study with a cross-sectional design. The method was quantitative by using a questionnaire. The study was performed at the respiratory department at Cho Ray Hospital in Ho Chi Minh City, Vietnam. The sampling was made through a consecutive sample. The questionnaire was based on Short Form 36 (SF-36) which is a widely used questionnaire to measure HRQL. The answers from the questionnaires were turned into a scale where 0 represent the lowest possible HRQL and 100 represent the highest possible HRQL.

    Results: The results showed that patients with COPD have a low HRQL. Mean value for HRQL in the total group of respondents was 22.42.The result also showed that women suffering from COPD have a significant lower HRQL than men concerning total HRQL (P-value= 0.04), general health (P-value= 0.02) and pain (P-value= 0.05).

    Conclusion: Patients suffering from COPD in Ho Chi Minh City have a low score of HRQL. Better routines and knowledge about the symptoms and caring for these patients are needed.

    Keywords: Chronic Obstructive Pulmonary Disease, Health related quality of life, Vietnam, SF-36

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  • 42. Ahlén, Cornelia
    et al.
    Sundström, Karin
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Föräldrars upplevelse och önskan av stöd från vårdpersonal vid vård av barn i palliativt skede: – En litteraturstudie2016Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: Being a parent to a child in palliative care means a great sorrow and sense of helplessness. The care of a child in palliative care involves a complete care of the child’s body and mind, and support for the child’s family.

    Aim: To examine how parents to children in palliative care experience the support from health care professionals and what support they require.

    Method: A systematic review where the results are based on 13 original articles.

    Result: The results of this study revealed a desire for health care professionals to be empathic, honest and considerate in the care of the child and its family. They experienced the best care when there was continuity in health care professionals and trusting relationships could be built. The parents wanted as far as possible to be involved in the care of the child and in the decision making processes.  They also wanted to take part of the information and to be respected as parents. An emotional and practical support was requested both during the child’s illness and after the child’s death. Lack of support was a riskfactor for the parental unhealth.

    Conclusion: All parents are unique individuals who experience different feelings and needs of support for their child in palliative care and after the child has died. The support has to be adapted to the individual family. The health care professionals can support the families by being responsive, empathetic, honest, committed and respectful, and also encourage parents to be active in the care of the child. A good continuity in health care professionals contributes to establish trusting relationships between health care professionals and the family, which the parents considered important for a good quality of care. Unhealthy might be reduced among parents with a child in palliative care if they receive adequate support from health professionals during the child’s illness and after the child’s death. 

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  • 43.
    Ahmad Yousif, Tara
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Ludvigsson, Sanne
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Yrkesverksamma och blivande sjuksköterskors attityder gentemot patienter med psykisk ohälsa och sjukdom: Faktorer som kan påverka omvårdnaden2017Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: Mental illness is common in Sweden, previous studies demonstrate that people with mental illness have an increased risk of physical illness compared to the general population. These patients often experience stigmatization generally in society, as well as within health care, which can result in a deficient care of these patients in the somatic care. Purpose: The aim of the study was to explore registered nurses and nursing students’ attitudes towards patients with mental illness in somatic care. Method: Ten scientific studies were included in a literature study of the chosen research field. The databases PubMed, CINAHL and PsycInfo was used for data collection. All the articles reviewed for quality and answered the purpose. Findings: The analysis resulted in three categories that describe attitudes to mental illness among nurses and nursing students. These categories are; Positive attitude, Negative attitude and Avoiding attitude. Experience, education and knowledge are some of the factors that can have an impact on the attitude towards caring for patients with mental illness. Conclusion: Nurses and nursing students express varying attitudes towards caring for patients with mental illness treated in somatic hospital settings. Lack of knowledge and experience of mental illness can result in stigmatization and rejection attitudes towards the patient, as well as an unequal care. Increased awareness about such attitudes can contribute to developing nursing care for these patients.

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  • 44. Ahmadi, Fereshteh
    Coping with Cancer in Sweden: a Search for Meaning2015Collection (editor) (Other academic)
    Abstract [en]

    The present book is a result of a several interconnected studies; sociological qualitative and quantitative research on individuals stricken by cancer as well as a study within caring sciences focusing on nurses working in cancer care. The aim of the book is to diversify the current research in the field of meaning-making coping.

    The sociological qualitative study aimed at investigating the prevalence of religious and spiritually oriented coping methods used by cancer patients in Sweden, which serves as an example of societies in which religion is not an integrated part of the social life of individuals. The study showed the existence of a strong tendency among informants towards relying primarily on themselves for solving problems related to their disease instead of on other sources such as God. The results indicated also the importance of those coping methods which are related to nature and in this way emphasized the impact of culture on coping.

    The qualitative study among oncology nurses shows that the dominant coping strategy is boundary demarcation. Religious coping is dominated by basic trust and prayer and can provide support.

    The aim of the sociological quantitative study was to examine the extent to which the results obtained in the qualitative study among cancer patients were applicable to a wider population of cancer patients in Sweden. The result showed that the three most important coping methods used by the informants were related to nature.

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  • 45.
    Ahmadi, Latifa
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Rezaei, Mahdi
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Föräldrars upplevelser av att leva med ett barn med cancer: En litteraturöversikt2022Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Introduction: In Sweden, around 350 children get cancer every year. In total, these cancercases account for less than one percent of all cancer cases in the country. During the child'scancer treatment, it is not only the child who is exposed to stress, but also parents can beaffected by physical, emotional and socio-economic strains. Health care must show care andrespect for patients and their relatives.Objective: The purpose of this literature review is to shed light on parents' experiences ofliving with a child who is undergoing cancer treatment.Method: A descriptive design with a general literature review as a method was used in thisstudy. The result was based on twelve original scientific articles from the databases PubMedand CINAHL. The articles were thereafter quality reviewed using SBU's review template"assessment of studies with qualitative method" (SBU, 2020).Results: Parents of children with cancer experienced physical and emotional, financial andsocial stress during the child's cancer treatment. Examples of the physical and emotionalstrains included stress, anxiety, feelings of guilt and lack of sleep. The parents experiencedfinancial burdens that were associated with reduced working hours due to the child's cancertreatment. This negatively affected the parents' working conditions. The parents' socialnetworks were also negatively affected as many parents reduced contact with their friends,family and partners. The parents experienced an enormous need for support during childhoodcancer treatment. Adjusted information from the health care system and participation in thechild's cancer treatment was perceived as an important contribution for the parents.Conclusion: Parents of children with cancer go through various physical, emotional,financial and social pressures. Physical and mental illness can develop in parents due to,among other things, the financial burden and stresses that come with the child's cancer. Theparents' health and well-being can be affected to a large extent by how they are treated by theHealth Service. This can be promoted by offering simple and comprehensible informationthat is individually adjusted to each parent.

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  • 46. Ahmed, Sara
    et al.
    Schwartz, Carolyn
    Ring, Lena
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Pharmacy, Department of Pharmacy.
    Sprangers, Mirjam A. G.
    Applications of health-related quality of life for guiding health care: advances in response shift research2009In: Journal of Clinical Epidemiology, ISSN 0895-4356, E-ISSN 1878-5921, Vol. 62, no 11, p. 1115-1117Article in journal (Refereed)
  • 47. Aho, Anna Carin
    et al.
    Hultsjö, Sally
    Hjelm, Katarina
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Caring Sciences.
    Perceptions of the transition from receiving the diagnosis recessive limb-girdle muscular dystrophy to becoming in need of human support and using a wheelchair: an interview study2019In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 41, no 19, p. 2289-2298Article in journal (Refereed)
    Abstract [en]

    PURPOSE: To describe perceptions of the transition from receiving the diagnosis recessive limb-girdle muscular dystrophy to becoming in need of human support to manage daily life and using a wheelchair for ambulation, from the affected young adults' and their parents' perspectives.

    METHOD: A qualitative and descriptive study design was used. Semi-structured interviews were held with 14 young adults diagnosed with recessive limb-girdle muscular dystrophy and 19 parents. Phenomenography was used for data analysis.

    RESULTS: The diagnosis was described as being a shock and difficult to comprehend but also as a relief and a tool for information. Beginning to use a wheelchair was perceived to be mentally difficult but it also provided freedom. New ways of living involved physical, emotional, practical, and social difficulties as well as experiences of learning to adapt to the disease. The transition was overshadowed by concern about disease progression and influenced by facilitating factors, which were young adult being seen as a person; supportive family and friends; mobilized internal resources; meaningful daily activities; adapted environment; and professional support.

    CONCLUSIONS: The different perceptions expressed in this study highlight the importance of identifying personal perceptions and needs in order to optimize support provided by healthcare professionals.

    Implications for Rehabilitation

    • The different perceptions described in this study emphasize the need for person-centered care for young adults living with recessive limb-girdle muscular dystrophy and their parents.
    • Regular controls and professional support to cope with the disease and its consequences should be offered, not only at the time of diagnosis but also throughout disease progression.
    • Beginning to use a wheelchair can be a psychologically distressing process, which has to be acknowledged by healthcare professionals when introducing it.
    • Healthcare professionals should not only recognize the importance of having social relations and activities that are meaningful but also be a link to authorities in society and to interest organizations that can help to facilitate the person's management of the disease.
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  • 48.
    Ahola, Mariana
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Ambulanssjuksköterskans kunskaper i omhändertagande av brottsoffer2017Independent thesis Advanced level (degree of Master (One Year)), 10 credits / 15 HE creditsStudent thesis
    Abstract [sv]

    Bakgrund: Då våld är ett folkhälsoproblem som kan förebyggas, bör sjuksköterskor ha kunskaper och förmågan att bedöma offer för våld. Ambulansen är ofta på en brottsplats först bör även de inneha kunskaper i bevissäkring/-bevarande. Sjuksköterskor har utmanats att ta del av ett gemensamt ansvar med det juridiska systemet för att öka de tillgängliga resurserna till patienter som utsatts för brott.

     Syfte: Syftet med denna studie var att var att undersöka vilka kunskaper ambulanssjuksköterskan har om omhändertagande av brottsoffer samt deras åsikter kring ämnet forensisk omvårdnad.

    Metod: En kvantitativ enkätstudie, som besvarade av 24 respondenter. Enkäterna analyserades statistikprogrammet SPSS.

     Resultat: Kunskaperna hos den prehospitala personalen om omhändertagande av brottsoffer var spridda. I vissa områden fanns det goda kunskaper medan det i andra fanns obefintliga. De flesta önskade mer utbildning i ämnet även om en tredjedel hade erhållit någon utbildning i ämnet redan. Att vårda brottsoffer ansågs av flera vara en viktig arbetsuppgift. På arbetsplatserna fanns det inga riktlinjer eller dokument beträffande omhändertagande av brottsoffer.  Sjuksköterskorna ansåg ett delat ansvar i att uppmärksamma brott samt bevis vid vårdandet samt att det fanns tid till annat än det medicinska under vårdtiden.

    Slutsats: Ambulanssjuksköterskorna anser att forensisk omvårdnad är en viktig uppgift för dem men kunskaperna inom området varierar och det saknas riktlinjer på arbetsplatserna. Det finns behov av utökade utbildningsinsatser samt av hjälpmedel som underlättar tillvaratagande av bevismaterial.

    Nyckelord: Forensisk omvårdnad, prehospital vård, ambulanssjuksköterska, bevissäkring.

  • 49.
    Ahrne, Malin
    et al.
    Karolinska Inst, Dept Womens & Childrens Hlth, Stockholm, Sweden..
    Byrskog, Ulrika
    Dalarna Univ, Sch Educ Hlth & Social Studies, Falun, Sweden..
    Essén, Birgitta
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, International Maternal and Reproductive Health and Migration.
    Andersson, Ewa
    Karolinska Inst, Dept Womens & Childrens Hlth, Stockholm, Sweden..
    Small, Rhonda
    Karolinska Inst, Dept Womens & Childrens Hlth, Stockholm, Sweden.;La Trobe Univ, Sch Nursing & Midwifery, Judith Lumley Ctr, Melbourne, Vic, Australia..
    Schytt, Erica
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Disciplinary Domain of Medicine and Pharmacy, research centers etc., Center for Clinical Research Dalarna. Western Norway Univ Appl Sci, Dept Hlth & Caring Sci, Bergen, Norway..
    Group antenatal care compared with standard antenatal care for Somali-Swedish women: a historically controlled evaluation of the Hooyo Project2023In: BMJ Open, E-ISSN 2044-6055, Vol. 13, no 1, article id e066000Article in journal (Refereed)
    Abstract [en]

    Objectives: Comparing language-supported group antenatal care (gANC) and standard antenatal care (sANC) for Somali-born women in Sweden, measuring overall ratings of care and emotional well-being, and testing the feasibility of the outcome measures.

    Design: A quasi-experimental trial with one intervention and one historical control group, nested in an intervention development and feasibility study.

    Setting: Midwifery-led antenatal care clinic in a mid-sized Swedish town.

    Participants: Pregnant Somali-born women (<25 gestational weeks); 64women in gANC and 81 in sANC.

    Intervention: Language-supported gANC (2017-2019). Participants were offered seven 60-minute group sessions with other Somali-born women led by one to two midwives, in addition to 15-30min individual appointments with their designated midwife.

    Outcomes: Primary outcomes were women's overall ratings of antenatal care and emotional well-being (Edinburgh Postnatal Depression Scale (EPDS)) in gestational week >= 35and 2 months post partum. Secondary outcomes were specific care experiences, information received, social support, knowledge of pregnancy danger signs and obstetric outcomes.

    Results: Recruitment and retention of participants were challenging. Of eligible women, 39.3% (n=106) declined to participate. No relevant differences regarding overall ratings of antenatal care between the groups were detected (late pregnancy OR 1.42, 95% CI 0.50 to 4.16 and 6-8 weeks post partum OR 2.71, 95% CI 0.88 to 9.41). The reduction in mean EPDS score was greater in the intervention group when adjusting for differences at baseline (mean difference -1.89; 95% CI -3.73 to -0.07). Women in gANC were happier with received pregnancy and birth information, for example, caesarean section where 94.9% (n=37) believed the information was sufficient compared with 17.5% (n=7) in standard care (p<0.001) in late pregnancy.

    Conclusions: This evaluation suggests potential for language-supported gANC to improve knowledge acquisition among pregnant Somali-born women with residence in Sweden <10 years. An adequately powered randomised trial is needed to evaluate the effectiveness of the intervention.

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  • 50.
    Ahrne, Malin
    et al.
    Karolinska Inst, Dept Womens & Childrens Hlth, Tomtebodavagen 18A,8th Floor, SE-17177 Stockholm, Sweden.
    Shytt, Erica
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Medicinska och farmaceutiska vetenskapsområdet, centrumbildningar mm, Center for Clinical Research Dalarna. Karolinska Inst, Dept Womens & Childrens Hlth, Tomtebodavagen 18A,8th Floor, SE-17177 Stockholm, Sweden;Western Norway Univ Appl Sci, Fac Hlth & Social Sci, Haugesund, Norway.
    Andersson, Ewa
    Karolinska Inst, Dept Womens & Childrens Hlth, Tomtebodavagen 18A,8th Floor, SE-17177 Stockholm, Sweden.
    Small, Rhonda
    Karolinska Inst, Dept Womens & Childrens Hlth, Tomtebodavagen 18A,8th Floor, SE-17177 Stockholm, Sweden;La Trobe Univ, Judith Lumley Ctr, Melbourne, Vic, Australia.
    Adan, Aisha
    Karolinska Inst, Dept Womens & Childrens Hlth, Tomtebodavagen 18A,8th Floor, SE-17177 Stockholm, Sweden.
    Essén, Birgitta
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, International Maternal and Child Health (IMCH), International Maternal and Reproductive Health and Migration.
    Byrskog, Ulrika
    Dalarna Univ, Sch Educ Hlth & Social Studies, Falun, Sweden.
    Antenatal care for Somali-born women in Sweden: Perspectives from mothers, fathers and midwives2019In: Midwifery, ISSN 0266-6138, E-ISSN 1532-3099, Vol. 74, p. 107-115Article in journal (Refereed)
    Abstract [en]

    Objective:

    To explore Somali-born parents' experiences of antenatal care in Sweden, antenatal care midwives' experiences of caring for Somali-born parents, and their respective ideas about group antenatal care for Somali-born parents.

    Design:

    Eight focus group discussions with 2-8 participants in each were conducted, three with Somaliborn mothers, two with fathers and three with antenatal care midwives. The transcribed text was analysed using Attride-Stirling's tool "Thematic networks".

    Setting:

    Two towns in mid-Sweden and a suburb of the capital city of Sweden. Participants: Mothers (n = 16), fathers (n = 13) and midwives (n = 7) were recruited using purposeful sampling.

    Findings:

    Somali-born mothers and fathers in Sweden were content with many aspects of antenatal care, but they also faced barriers. Challenges in the midwife-parent encounter related to tailoring of care to individual needs, dealing with stereotypes, addressing varied levels of health literacy, overcoming communication barriers and enabling partner involvement. Health system challenges related to accessibility of care, limited resources, and the need for clear, but flexible routines and supportive structures for parent education. Midwives confirmed these challenges and tried to address them but sometimes lacked the support, resources and tools to do so. Mothers, fathers and midwives thought that language-supported group antenatal care might help to improve communication, provide mutual support and enable better dialogue, but they were concerned that group care should still allow privacy when needed and not stereotype families according to their country of birth.

    Key conclusions:

    ANC interventions targeting inequalities between migrants and non-migrants may benefit from embracing a person-centred approach, as a means to counteract stereotypes, misunderstandings and prejudice. Group antenatal care has the potential to provide a platform for person-centred care and has other potential benefits in providing high-quality antenatal care for sub-groups that tend to receive less or poor quality care. Further research on how to address stereotypes and implicit bias in maternity care in the Swedish context is needed. (c) 2019 The Authors. Published by Elsevier Ltd.

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