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  • 1.
    Andriopoulos, Thanos
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Research group (Dept. of women's and children's health), Clinical Psychology in Healthcare.
    Olsson, Erik
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Research group (Dept. of women's and children's health), Clinical Psychology in Healthcare.
    Hägg Sylvén, Ylva
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Research group (Dept. of women's and children's health), Clinical Psychology in Healthcare.
    Sjöström, Jonas
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems.
    Johansson, Birgitta
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Immunology, Genetics and Pathology, Experimental and Clinical Oncology.
    von Essen, Louise
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Research group (Dept. of women's and children's health), Clinical Psychology in Healthcare.
    Grönqvist, Helena
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Research group (Dept. of women's and children's health), Clinical Psychology in Healthcare.
    Commencement of and Retention in Web-Based Interventions and Response to Prompts and Reminders: Longitudinal Observational Study Based on Two Randomized Controlled Trials2021In: Journal of Medical Internet Research, E-ISSN 1438-8871, Vol. 23, no 3, article id e24590Article in journal (Refereed)
    Abstract [en]

    Background: Web-based interventions are effective for several psychological problems. However, recruitment, adherence, and missing data are challenges when evaluating these interventions. Objective: This study aimed to describe the use patterns during the commencement phase, possible retention patterns (continuation of data provision), and responses to prompts and reminders among participants in 2 randomized controlled trials (RCTs) evaluating web-based interventions. Methods: Data on use patterns logged in 2 RCTs aiming to reduce symptoms of anxiety and depression among adult patients recently diagnosed with cancer (AdultCan RCT) and patients with a recent myocardial infarction (Heart RCT) were analyzed. The web-based intervention in the AdultCan trial consisted of unguided self-help and psychoeducation and that in the Heart trial consisted of therapist-supported cognitive behavioral therapy. In total, 2360 participants' use patterns at first log-in, including data collection at baseline (ie, commencement) and at 2 follow-ups, were analyzed. Both the intervention and comparison groups were analyzed. Results: At commencement, 70.85% (909/1283) and 86.82% (935/1077) of the participants in AdultCan and Heart RCTs, respectively, logged in and completed baseline data collection after receiving a welcome email with log-in credentials. The median duration of the first log-in was 44 minutes and 38 minutes in AdultCan and Heart RCTs, respectively. Slightly less than half of the participants' first log-ins were completed outside standard office hours. More than 80% (92/114 and 103/111) of the participants in both trials explored the intervention within 2 weeks of being randomized to the treatment group, with a median duration of 7 minutes and 47 minutes in AdultCan and Heart RCTs, respectively. There was a significant association between intervention exploration time during the first 2 weeks and retention in the Heart trial but not in the AdultCan trial. However, the control group was most likely to retain and provide complete follow-up data. Across the 3 time points of data collection explored in this study, the proportion of participants responding to all questionnaires within 1 week from the prompt, without a reminder, varied between 35.45% (413/1165) and 66.3% (112/169). After 2 reminders, up to 97.6% (165/169) of the participants responded. Conclusions: Most participants in both RCTs completed the baseline questionnaires within 1 week of receiving the welcome email. Approximately half of them answered questions at baseline data collection outside office hours, suggesting that the time flexibility inherent in web-based interventions contributes to commencement and use. In contrast to what was expected, the intervention groups generally had lower completion rates than the comparison groups. About half of the participants completed the questionnaires without a reminder, but thereafter, reminders contributed to both baseline and follow-up retention, suggesting they were effective. Strategies to increase commencement of and retention in eHealth interventions are important for the future development of effective interventions and relevant research.

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  • 2.
    Goldkuhl, Göran
    et al.
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media. Linköping University.
    Sjöström, Jonas
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems.
    Design Science Theorizing: The Contribution of Practical Theory2021In: Advancing Information Systems Theories: Rationale and Processes / [ed] N.R. Hassan & L.P. Willcocks, Cham: Palgrave Macmillan, 2021, p. 239-273Chapter in book (Refereed)
    Abstract [en]

    Information systems research is often conducted as engaged scholarship—collaborative work with practitioners to somehow improve the world and articulate new knowledge through gained experiences and reflection. In information systems, engaged scholarship often manifests as design science research. In this chapter, we argue that the design science discourse has been biased towards theorizing with a focus on design knowledge for a particular domain of artifacts and practices. We propose that design science also offers an opportunity to theorize instrumentalities through and for inquiry. Drawing from pragmatist epistemology as well as ideas on theorizing in management research, we adopt a case view on design science. We outline a view on the theorizing process in design science and propose practical theories as instrumental and emergent tools for design inquiry and as viable and important knowledge outcomes of design science. Finally, we discuss implications for design science research cases and how this can contribute to a cumulative knowledge evolution.

  • 3.
    Goldkuhl, Göran
    et al.
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media. Linköping Univ, Dept Management & Engn, Linköping, Sweden.
    Ågerfalk, Pär
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media.
    Sjöström, Jonas
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media.
    A Design Science Approach to Information Systems Education2017In: Designing The Digital Transformation, Desrist 2017 / [ed] Maedche, A., vom Brocke J. & Hevner, A., Springer, 2017, Vol. 10243, p. 383-397Conference paper (Refereed)
    Abstract [en]

    Information systems (IS) education is concerned with design and management of information systems. To be prepared to work as an IS practitioner, there is a need for training in design issues during education. This paper investigates what a design science approach would imply for IS education. Such an IS education approach is elaborated and synthesized in eight principles: (1) Exploit resonance between IS research and IS development, (2) conduct theory-informed design-exercises, (3) conduct practice-inspired design-exercises, (4) alternate between the concrete and the abstract, (5) reflect based on experiences for own design-theoretical synthesis, (6) evaluate design processes and design products, (7) archive design reflections in a knowledge diary, (8) compile design artifacts into a portfolio. One key characteristic of design science (DS) is the integration of research and design. A DS approach to IS education means an integration of design and learning. This education approach is theoretically grounded in IS design science literature and also broader in literature of design inquiry (Dewey), experiential learning theory (Kolb) and education of the reflective practitioner (Schön).

  • 4.
    Grönqvist, Helena
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Research group (Dept. of women´s and children´s health), Clinical Psychology in Healthcare.
    Olsson, Erik
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Research group (Dept. of women´s and children´s health), Clinical Psychology in Healthcare.
    Johansson, Birgitta
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Immunology, Genetics and Pathology. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Research group (Dept. of women´s and children´s health), Clinical Psychology in Healthcare.
    Held, Claes
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Medical Sciences, Cardiology. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Medicinska och farmaceutiska vetenskapsområdet, centrumbildningar mm, UCR-Uppsala Clinical Research Center. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Research group (Dept. of women´s and children´s health), Clinical Psychology in Healthcare.
    Sjöström, Jonas
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Research group (Dept. of women´s and children´s health), Clinical Psychology in Healthcare.
    Lindahl Norberg, Annika
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Research group (Dept. of women´s and children´s health), Clinical Psychology in Healthcare. Centre for Occupational and Environmental Medicine, Stockholm County Council, Stockholm, Sweden..
    Hovén, Emma
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Research group (Dept. of women´s and children´s health), Clinical Psychology in Healthcare.
    Sanderman, Robbert
    Department of Health Psychology, University Medical Center Groningen, University of Groningen, Groningen, Netherlands; Department of Psychology, Health and Technology, University of Twente, Enschede, Netherlands..
    van Achterberg, Theo
    Academic Centre for Nursing and Midwifery, Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium.
    von Essen, Louise
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Research group (Dept. of women´s and children´s health), Clinical Psychology in Healthcare.
    Fifteen Challenges in Establishing a Multidisciplinary Research Program on eHealth Research in a University Setting: A Case Study2017In: Journal of Medical Internet Research, E-ISSN 1438-8871, Vol. 19, no 5, article id e173Article in journal (Refereed)
    Abstract [en]

    BACKGROUND:

    U-CARE is a multidisciplinary eHealth research program that involves the disciplines of caring science, clinical psychology, health economics, information systems, and medical science. It was set up from scratch in a university setting in 2010, funded by a governmental initiative. While establishing the research program, many challenges were faced. Systematic documentation of experiences from establishing new research environments is scarce.

    OBJECTIVE:

    The aim of this paper was to describe the challenges of establishing a publicly funded multidisciplinary eHealth research environment.

    METHODS:

    Researchers involved in developing the research program U-CARE identified challenges in the formal documentation and by reflecting on their experience of developing the program. The authors discussed the content and organization of challenges into themes until consensus was reached.

    RESULTS:

    The authors identified 15 major challenges, some general to establishing a new research environment and some specific for multidisciplinary eHealth programs. The challenges were organized into 6 themes: Organization, Communication, Implementation, Legislation, Software development, and Multidisciplinarity.

    CONCLUSIONS:

    Several challenges were faced during the development of the program and several accomplishments were made. By sharing our experience, we hope to help other research groups embarking on a similar journey to be prepared for some of the challenges they are likely to face on their way.

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  • 5.
    Igelström, Helena
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Neuroscience, Åsenlöf: Physiotheraphy. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Immunology, Genetics and Pathology.
    Hauffman, Anna
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Immunology, Genetics and Pathology, Experimental and Clinical Oncology.
    Alfonsson, Sven
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Research group (Dept. of women´s and children´s health), Clinical Psychology in Healthcare. Karolinska Inst, Dept Clin Neurosci, Stockholm, Sweden..
    Sjöström, Jonas
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media.
    Cajander, Åsa
    Uppsala University, Disciplinary Domain of Science and Technology, Mathematics and Computer Science, Department of Information Technology, Computerized Image Analysis and Human-Computer Interaction. Uppsala University, Disciplinary Domain of Science and Technology, Mathematics and Computer Science, Department of Information Technology, Division of Visual Information and Interaction.
    Johansson, Birgitta
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Immunology, Genetics and Pathology, Experimental and Clinical Oncology.
    User Experiences of an Internet-Based Stepped-Care Intervention for Individuals With Cancer and Concurrent Symptoms of Anxiety or Depression (the U-CARE AdultCan Trial): Qualitative Study2020In: Journal of Medical Internet Research, E-ISSN 1438-8871, Vol. 22, no 5, article id e16604Article in journal (Refereed)
    Abstract [en]

    Background: The internet-based stepped-care intervention iCAN-DO, used in the multicenter randomized controlled trial AdultCan, was developed for adult patients undergoing treatment for cancer and concurrently experiencing anxiety or depressive symptoms. iCAN-DO aimed to decrease symptoms of anxiety or depression. Step 1 comprises access to a library with psychoeducational material and a peer-support section, as well as the possibility to pose questions to a nurse. Step 2 of the intervention offers treatment consisting of internet-based cognitive behavioral therapy (iCBT) to participants still experiencing anxiety or depression at 1, 4, or 7 months after inclusion.

    Objective: The study aimed to explore user experiences of delivery, design, and structure of iCAN-DO from the perspective of people with cancer.

    Methods: We studied user experiences by interviewing 15 informants individually: 10 women with breast cancer (67%), 4 men with prostate cancer (27%), and 1 man with colorectal cancer (7%) with a mean age 58.9 years (SD 8.9). The interviews focused on informants' perceptions of ease of use and of system design and structure. Informants had been included in iCAN-DO for at least 7 months. They were purposefully selected based on activity in Step 1, participation in iCBT (ie, Step 2), gender, and diagnosis.

    Results: Of the 15 informants, 6 had been offered iCBT (40%). All informants used the internet on a daily basis, but 2 (13%) described themselves as very inexperienced computer users. The analysis revealed three subthemes, concerning how user experiences were affected by disease-specific factors and side effects (User experience in the context of cancer), technical problems (Technical struggles require patience and troubleshooting), and the structure and design of iCAN-DO (Appealing and usable, but rather simple).

    Conclusions: The results indicate that user experiences were affected by informants' life situations, the technical aspects and the design of iCAN-DO, and informants' preferences. The results have generated some developments feasible to launch during the ongoing study, but if iCAN-DO is to be used beyond research interest, a greater level of tailoring of information, features, and design may be needed to improve user experiences. The use of recurrent questionnaires during the treatment period may highlight an individual's health, but also function as a motivator showing improvements over time.

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  • 6.
    Morana, Stefan
    et al.
    Karlsruhe Inst Technol, IISM, Karlsruhe, Germany..
    vom Brocke, Jan
    Univ Liechtenstein, Inst Informat Syst, Vaduz, Liechtenstein..
    Maedche, Alexander
    Karlsruhe Inst Technol, IISM, Karlsruhe, Germany..
    Seidel, Stefan
    Univ Liechtenstein, Inst Informat Syst, Vaduz, Liechtenstein..
    Adam, Marc T. P.
    Univ Newcastle, Sch Elect Engn & Comp, Newcastle, NSW, Australia..
    Bub, Udo
    Eotvos Lorand Univ ELTE Budapest, Fac Informat, Innovat & Informat Syst Engn, Budapest, Hungary.;EIT ICT Labs Germany GmbH, Berlin, Germany..
    Fettke, Peter
    German Res Ctr Artificial Intelligence DFKI, Kaiserslautern, Germany.;Saarland Univ, Business Informat, Saarbrucken, Germany..
    Gau, Michael
    Univ Liechtenstein, Inst Informat Syst, Vaduz, Liechtenstein..
    Herwix, Alexander
    Univ Cologne, Professorship Integrated Informat Syst, Cologne, Germany..
    Mullarkey, Matthew T.
    Univ S Florida, MUMA Coll Business, Tampa, FL 33620 USA..
    Nguyen, Hoang D.
    Natl Univ Singapore, Dept Informat Syst, Singapore, Singapore..
    Sjöström, Jonas
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media.
    Toreini, Peyman
    Karlsruhe Inst Technol, IISM, Karlsruhe, Germany..
    Wessel, Lauri
    Free Univ Berlin, Dept Informat Syst, Berlin, Germany..
    Winter, Robert
    Univ St Gallen, Inst Informat Management, St Gallen, Switzerland..
    Tool Support for Design Science Research - Towards a Software Ecosystem: A Report from a DESRIST 2017 Workshop2018In: Communications of the Association for Information Systems, E-ISSN 1529-3181, Vol. 43, p. 237-256, article id 17Article in journal (Refereed)
    Abstract [en]

    The information systems (IS) field contains a rich body of knowledge on approaches, methods, and frameworks that supports researchers in conducting design science research (DSR). It also contains some consensus about the key elements of DSR projects-such as problem identification, design, implementation, evaluation, and abstraction of design knowledge. Still, we lack any commonly accepted tools that address the needs of DSR scholars who seek to structure, manage, and present their projects. Indeed, DSR endeavors, which are often complex and multi-faceted in nature and involve various stakeholders (e.g., researchers, developers, practitioners, and others), require the support that such tools provide. Thus, to investigate the tools that DSR scholars actually need to effectively and efficiently perform their work, we conducted an open workshop with DSR scholars at the 2017 DESRIST conference in Karlsruhe, Germany, to debate 1) the general requirement categories of DSR tool support and 2) the more specific requirements. This paper reports on the results from this workshop. Specifically, we identify nine categories of requirements that fall into the three broad phases (pre-design, design, and post design) and that contribute to a software ecosystem for supporting DSR endeavors.

  • 7.
    Mustafa, Mudassir Imran
    et al.
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Sjöström, Jonas
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Design Principles for Research Data Export: Lessons Learned in e-Health Design Research2013In: Design Science at the Intersection of Physical and Virtual Design: 8th International Conference, DESRIST 2013, Helsinki, Finland, June 11-12, 2013. Proceedings / [ed] J. Vom Brocke et al., Springer Berlin/Heidelberg, 2013, p. 34-49Conference paper (Refereed)
    Abstract [en]

     Information technology (IT) allows for large-scale data collection and data analysis, e.g. through logs of user behavior and online surveys. While the issue of structured access to data is extremely important, previous research has not sufficiently emphasized design of data export for research purposes. If researchers are to make their data accessible, they must be empowered to export data in a flexible manner. In this paper, we employ action design research to develop design principles for data export in an e-Health context. Design is in- formed by a sociomaterial world-view, object-oriented patterns and principles, and usability goals. Through three build-intervene-evaluate cycles in an empiri- cal setting where randomized controlled trials are designed, we propose nine design principles and a conceptual architecture for data export. Implications for research and practice are discussed. 

  • 8.
    Mustafa, Mudassir Imran
    et al.
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Sjöström, Jonas
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Eriksson Lundström, Jenny
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems.
    An Empirical Account of Fitness-Utility: A Case of Radical Change towards Mobility in DSR Practice2014In: Advancing the Impact of Design Science: Moving from Theory to Practice: 9th International Conference, DESRIST 2014, Miami, FL, USA, May 22-24, 2014. Proceedings / [ed] Monica Chiarini Tremblay, Debra VanderMeer, Marcus Rothenberger, Ashish Gupta, Victoria Yoon, Springer International Publishing , 2014, p. 289-303Chapter in book (Refereed)
    Abstract [en]

    Evaluation is an essential part of design science research - a means to demonstrate qualities of artefacts and knowledge abstractions. The utilityfitness model suggests that evaluation needs to move from ‘usefulness’ measures to utility functions that incorporate the long-term evolution and survival of an artefact in its design landscape. In this paper, we interpret a process of innovative change taking place within a design system, in order to provide an empirical account of utility-fitness. We propose that the utility-fitness model pays too little explicit attention to technological-ecological fit, accountability, and robustness: Three ideals that were prevalent in the scrutinized empirical setting.

  • 9.
    Olsson, Erik
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Alfonsson, Sven
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Ander, Malin
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Brantnell, Anders
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Burell, Gunilla
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Grönqvist, Helena
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Hauffman, Anna
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Radiology, Oncology and Radiation Science, Oncology.
    Held, Claes
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Medicinska och farmaceutiska vetenskapsområdet, centrumbildningar mm, UCR-Uppsala Clinical Research Center.
    Johansson, Birgitta
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Radiology, Oncology and Radiation Science, Oncology.
    Lindahl Norberg, Annika
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Mattsson, Susanne
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Norlund, Fredrika
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Sjöström, Jonas
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems.
    Toft, Teolinda
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    von Essen, Louise
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    U-CARE – internet-based psychosocial care and psychological treatment in connection to somatic disease2013Conference paper (Refereed)
  • 10.
    Olsson, Erik
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Alfonsson, Sven
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Ander, Malin
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Burell, Gunilla
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Grönqvist, Helena
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Held, Claes
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Medicinska och farmaceutiska vetenskapsområdet, centrumbildningar mm, UCR-Uppsala Clinical Research Center. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Medical Sciences.
    Johansson, Birgitta
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Radiology, Oncology and Radiation Science, Oncology.
    Lindahl-Norberg, Annika
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Lochan, Ruth
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Mattsson, Susanne
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Norlund, Fredrika
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Sjöström, Jonas
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Toft, Teolinda
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    von Essen, Louise
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    U-CARE: a research program on psychosocial care via the internet2012Conference paper (Refereed)
    Abstract [en]

    U-CARE is one of the Swedish government’s strategic research programs atUppsala University. The overarching goal is to promote psychosocial healthamong patients suffering from somatic disease and their significant others by means of self-help programs delivered via an internet platform. Another goal is to reduce costs for individuals and the society caused by emotional distress in response to somatic disease. Professionals within clinical psychology, health economics, and information systems collaborate to reach this goal.

    Approximately 20% of patients suffering from somatic disease as well as theirsignificant others experience a clinically relevant level of emotional distress in response to disease and treatment. This is in itself alerting, but becomes even moreproblematic since physicians and nurses show low sensitivity and specificityin detecting patients and significant others experiencing a clinically relevant level of distress. This can result in persistent distress causing human suffering as well as costs for individuals and the society.

    During 2010-2011 an internet platform: www.u-care.se to provide interactive support and cognitive behavioral therapy has been constructed within the U-CARE program. The platform supports, among other things, rule-based unfolding of self-help material for participants, interaction between participants and therapists, interaction within a participant community, and research including a detailed log of participants’ behaviors on the platform. In addition self-help programs of interactive support and cognitive behavioural therapy for adolescents with cancer: U-CARE: TeenCan, adults with cancer: U-CARE: AdultsCan, and adults having had a myocardial infarct: U-CARE: Heart to be provided via www.u-care.se have been constructed.

    Through a multi-disciplinary and design-oriented approach, the U-CARE program aims at developing new evidence-based knowledge in basic and applied psychosocial health care,and actively promoting its implementation in health care practice as well as in undergraduate and advanced education.

  • 11.
    Rafiq, Asma
    et al.
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems.
    Ågerfalk, Pär
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems.
    Sjöström, Jonas
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Boundary Resources Dependency in Third-Party Development from the Developer's Perspective2013Conference paper (Refereed)
    Abstract [en]

    The purpose of this paper is to explore issues pertaining to the devel- opment of third-party applications aimed to be hosted at software platforms. While prior research has addressed design challenges in platform design, and suggested a boundary resources model to understand such design, we argue that the application developers’ perspective has not yet been scrutinized. Drawing on design experiences from application development for the Facebook platform, we suggest further elaboration of the boundary resources model for software platforms. Our results show that the developers and applications are highly af- fected by the unpredictability of software platforms. Based on an empirically justified account of experience with boundary resources dependencies, we pro- pose a set of implications for third-party development as well as platform development and maintenance. The study should be helpful in determining the influence of boundary resources on third-party developers and applications whilst planning for application development on such platforms. It should also be useful to platform owners involved in the development and maintenance of boundary resources for third-party development.

  • 12.
    Rahman, Mohammad Hafijur
    et al.
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems.
    Sjöström, Jonas
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems.
    Respondent Behavior Logging: A Design Science Research Inquiry into Web Survey Paradata2021In: The Next Wave of Sociotechnical Design: 16th International Conference on Design Science Research in Information Systems and Technology, DESRIST 2021, Kristiansand, Norway, August 4–6, 2021, Proceedings, Cham: Springer Nature, 2021, p. 248-259Conference paper (Refereed)
    Abstract [en]

    This paper introduces a framework for Respondent Behavior Logging (RBL), consisting of static and dynamic models that conceptualize respondent behavior when filling in online questionnaires, and visualization techniques and measurement constructs for RBL data. Web survey design may benefit from paradata logging as a technique for evaluation, since such data may prove useful during the re-design of questionnaires. Although other aspects of online surveys have attracted considerable attention both in the industry and in literature, it is still underexplored how the Web may leverage new and innovative techniques to support survey design. The RBL framework is evaluated using a focus group and through an experimental survey with 120 participants. We elaborate on implications for research and practice in an informed argument.

  • 13.
    Sjöström, Jonas
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    A Critical Perspective on Interaction Design Patterns as Theory Representation2010In: ECIS 2010 Proceedings, 2010Conference paper (Refereed)
    Abstract [en]

    This paper provides an interpretation of interaction design patterns from the perspective of design-oriented research in information systems. It is concluded that interaction design patterns do not meet certain ideals for contemporary information systems design theory: Rigor, practical utility, novelty/innovation, acknowledgement of the social setting, and cumulative research. The lack of explicit ideals governing the formulation of interaction design patterns is discussed, and implications for research are drawn. 

  • 14.
    Sjöström, Jonas
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media.
    DeProX: A Design Process Exploration Tool2017In: Designing The Digital Transformation, Desrist 2017 / [ed] Maedche, Alexander; vom Brocke, Jan & Hevner, Alan, Springer, 2017, Vol. 10243, p. 447-451Conference paper (Refereed)
    Abstract [en]

    In exploratory design science research, research questions emerge as the design process progresses. Researchers are faced with the complex task of reconstructing design rationale, i.e. retrospectively scrutinizing certain aspects of the design process. While such a task may be challenging due to social and technical complexities, we present a software prototype to support design process exploration. The software produces visualizations and facilitates exploration by scanning design process data from source code repositories and document collections. We tentatively assess the software by accounting for its use in two design science research projects. Implications for research and practice are discussed.

  • 15.
    Sjöström, Jonas
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media.
    Designing Information Systems: A pragmatic account2010Doctoral thesis, monograph (Other academic)
    Abstract [en]

    Information technology (IT) plays an increasingly important role for individuals, organizations, markets, and society as a whole. IT systems are artefacts (human made objects) designed for various purposes. Given the multiple-purpose characteristics of computers, such artefacts may, for example, support workflows, perform advanced calculations, support human communication and socialization, enable delivery of services and digital products, facilitate learning, or simply entertain. The diverging application areas for IT present a challenge to designers who, as a consequence, have to address increasingly divergent design situations.

    There have been numerous arguments suggesting that the IT artefact has been 'taken for granted', and needs to be understood and conceptualized better within information systems (IS) research. This thesis is based on the pragmatist notion that one important value of IT resides in its potential to support human collaboration. Such a belief has implications for the development of (1) knowledge aimed for action, change and improvement; (2) knowledge about actions, activities and practices; and (3) knowledge through action, experimentation and exploration. A view of the IT artefact is outlined, showing it as part of a social and technological context. IT artefact design is explained in relation to the induction of social change. The notion of stakeholder-centric design is advocated, along with practical theory to promote a situated understanding of use qualities and design ideals. A set of meta-theoretical implications for design-oriented IS research is proposed.

    The research process consisted of five inquiries into different IT-reliant social contexts. In the first four inquiries, social and communicative qualities of IT artefacts were assessed, governed primarily by Dewey's notion of inquiry as a theory of knowledge. The fifth inquiry was a large-scale action research project, including interventions into the social setting, and the design and implementation of a new IT artefact into that setting.

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  • 16.
    Sjöström, Jonas
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems.
    SISA News: Software to Support the Swedish Information Systems Community2020In: Designing for Digital Transformation: Co-Creating Services with Citizens and Industry / [ed] Hoffman S., Müller O., Rossi M., Springer, 2020Conference paper (Refereed)
  • 17.
    Sjöström, Jonas
    et al.
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Alfonsson, Sven
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Supporting the Therapist in Online Therapy2012Conference paper (Refereed)
    Abstract [en]

    In the last decade, eSupport (Internet-reliant therapy) has gained substantial attention, both in research and practice. Several studies in psychology show that structured eSupport (e.g. Computerized Cognitive Behavioural Therapy), is promising both with regard to therapeutic efficacy and cost-effectiveness. However, the transition from face-to-face therapy to eSupport creates new challenges for therapists, such as lack of (traditional) structure and access to secondary information (e.g. body language) about their patients. In this paper, a design science research approach has been employed in the context of eSupport. Drawing on the knowledge base of face-to-face conversations, face-to-face therapy, and pragmatic IS theory, a framework for patient indicators has been designed. The design has been justified through both (i) descriptive evaluations based on the selected knowledge base, and (ii) experiences collected in a stakeholder-centric design process, including experimental evaluation of an eSupport platform that implement the indicator framework. The framework was designed to allow new indicators to be ‘plugged in’ dynamically and inserted into tailorable lists. New indicators can be created either through specialization of an indicator base class, or by configuring metadata for generic indicators that tap into an action log. Indicator values are cached, both to boost performance and to support trend analysis of patient indicators. We conclude that the indicator framework serves to improve support for therapists: It offers structure and access to both primary and secondary information in new ways. In doing so, it meets some of the key challenges that therapists encounter in the transition to eSupport.

  • 18.
    Sjöström, Jonas
    et al.
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems.
    Dahlin, Maritha
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media.
    Tutorbot: A chatbot for higher education practice2020In: Designing for Digital Transformation: Co-Creating Services with Citizens and Industry / [ed] Hoffman S., Müller O., Rossi M., 2020, p. 93-98Conference paper (Refereed)
    Abstract [en]

    In this paper, we present the design of Tutorbot – a chatbot software to support learning and teaching in higher education. We account for the implementation of the design as a proof-of-concept and share reflections from experiences in the design and implementation process expressed as design considerations for the design of chatbots in a higher education setting.

  • 19.
    Sjöström, Jonas
    et al.
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Donnellan, B.
    Helfert, M.
    Product semantics in design research practice2012In: Shaping the Future of ICT Research. Methods and Approaches: IFIP WG 8.2, Working Conference, Tampa, FL, USA, December 13-14, 2012. Proceedings, 2012, p. 35-48Conference paper (Refereed)
    Abstract [en]

    The concept of product semantics and its focus on meaning is used to interpret design research as design. It is argued that we may conceive of design research as design in two realms: The practical and the academic. In doing design research, there is a reciprocal shaping of artifacts: Better artifacts (contributions to practice) through appropriation of knowledge and methods from the academic realm, and better knowledge artifacts (contributions to academia) by drawing relevance and experiences of appropriation from the practical realm. We adopt a product semantics view to discuss research as design. Product semantics highlights the meaning of artifacts with respect to their (i) stakeholders, (ii) artifacts-in-use, (iii), artifacts-in-language, (iv) artifact lifecycle, and (v) ecology. Based on this interpretation, we propose activities that should characterize the practice of doing design research. Finally we provide an example of Design Research Practice in action.

  • 20.
    Sjöström, Jonas
    et al.
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Iqbal, Imran
    An Emerging Collaboration Model for e-Government Projects2010In: Proceedings of the 7th Scandinavian Workshop on eGovernment (SWEG2010), 2010Conference paper (Other academic)
    Abstract [en]

    This paper reports on a design-oriented action research project in the Swedish municipal sector. A model for stakeholder collaboration in projects is presented, based on three iterations of design and evaluation. The model has been informed by empirical evaluations, as well as theoretical arguments from the fields of knowledge management, (multiple) project management, information systems actability theory, and open innovation.

  • 21.
    Sjöström, Jonas
    et al.
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems.
    Olsson, Erik
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Alfonsson, Sven
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    U-CARE: A research program on psychosocial care via the internet2012Conference paper (Refereed)
  • 22.
    Sjöström, Jonas
    et al.
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media.
    Rahman, Mohammad Hafijur
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media.
    Designing Software for Online Randomized Controlled Trials2021In: The Next Wave of Sociotechnical Design: 16th International Conference on Design Science Research in Information Systems and Technology, DESRIST 2021, Kristiansand, Norway, August 4–6, 2021, Proceedings / [ed] Leona Chandra Kruse, Stefan Seidel, Geir Inge Hausvik, Cham: Springer Nature, 2021, p. 197-208Conference paper (Refereed)
    Abstract [en]

    Researchers in psychosocial care paid an increasing interest in providing treatment online, e.g., self-help and cognitive behavioral therapy for patients with different conditions. Consequently, they need to design both complex interventions and conduct research online. There is little research on how to design appropriate support for complex online randomized controlled trials (RCTs) – a prevalent approach for investigating the effectiveness of psychological treatment. In this paper, we report from a decade-long design science research initiative conducted within an eHealth research environment. Drawing from the design experiences and literature, we present design reflections and conceptual models supporting the design of software for online RCTs. We evaluate the ideas by accounting for the long-term use of the system by various research groups, signaling proof-of-concept, proof-of-use, and proof-of-value. Our results contribute to designers of online RCT solutions and add to the discourse on tool support for design science research.

  • 23.
    Sjöström, Jonas
    et al.
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Rahman, Mohammad Hafijur
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Rafiq, Asma
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media.
    Lochan, Ruth
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media.
    Ågerfalk, Pär J
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media.
    Respondent Behavior Logging: An Opportunity for Online Survey Design2013In: Design Science at the Intersection of Physical and Virtual Design: 8th International Conference, DESRIST 2013, Helsinki, Finland, June 11-12, 2013. Proceedings. / [ed] J vom Brocke et al., Springer, 2013, p. 511-518Conference paper (Refereed)
    Abstract [en]

    This work-in-progress paper introduces the concept of Respondent Behavior Logging (RBL), consisting of static and dynamic models that conceptualize respondent behavior when filling in online questionnaires. It is argued that web-based survey design may benefit from logging as a technique for evaluation, since such data may prove useful during re-design of questionnaires. Although other aspects of online surveys have attracted considerable attention both in industry and in literature, how the Web may leverage new and innovative techniques to support survey design is still underexplored. Some preliminary results are reported in the paper, and issues are raised regarding how to appropriately evaluate and demonstrate the qualities of the RBL concept as a means for survey re-design.

  • 24.
    Sjöström, Jonas
    et al.
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media.
    Rahman, Mohammad Hafijur
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media.
    Rafiq, Asma
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media.
    Lochan, Ruth
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media.
    Ågerfalk, Pär J.
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media.
    Respondent Behavior Logging: An Opportunity for Online Survey Design2013In: Design Science at the Intersection of Physical and Virtual Design, 2013, p. 511-518Conference paper (Refereed)
    Abstract [en]

    This work-in-progress paper introduces the concept of Respondent Behavior Logging (RBL), consisting of static and dynamic models that conceptualize respondent behavior when filling in online questionnaires. It is argued that web-based survey design may benefit from logging as a technique for evaluation, since such data may prove useful during re-design of questionnaires. Although other aspects of online surveys have attracted considerable attention both in industry and in literature, how the Web may leverage new and innovative techniques to support survey design is still underexplored. Some preliminary results are reported in the paper, and issues are raised regarding how to appropriately evaluate and demonstrate the qualities of the RBL concept as a means for survey re-design.

  • 25.
    Sjöström, Jonas
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    von Essen, Louise
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Grönqvist, Helena
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Researching internet-based self-help: ideals and challenges2013Conference paper (Refereed)
  • 26.
    Sjöström, Jonas
    et al.
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    von Essen, Louise
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Grönqvist, Helena
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    The Origin and Impact of Ideals in eHealth Research: Experiences from the U-CARE Research Environment2014In: JMIR Research Protocols, E-ISSN 1929-0748, Vol. 3, no 2, p. e28-Article in journal (Refereed)
    Abstract [en]

    Background: The prevalence of information technology (IT) in society is a foundation for new modes of interaction between patients and health specialists. IT plays an important role in the renewal of care. Several countries have incorporated eHealth plans into their national health strategies. Part of the eHealth evolution concerns Internet psychological treatment and psychosocial care. These interventions are complex to design and evaluate due to legal, ethical, organizational, technical, and methodological challenges.

    Objective: The objective of our study was to seek to make explicit contributions to the understanding of ideals in eHealth research, and illuminate their implications for establishing an effective research environment. Our analysis draws from three years of experience in establishing an eHealth research environment, and the literature.

    Methods: We worked inductively to characterize challenging research ideals, and their origins, in our environment. Thereafter, we made a selective search of the literature to scrutinize and illuminate each ideal and it’s implications.

    Results: In this work, we propose a structured approach to address ideals in eHealth research. The scrutinized ideals are accountability, innovation, rigor, relevance, and sustainability. The approach supports researchers to systematically understand the ideals, their origin, and to manage their implications within an eHealth research environment.

    Conclusions: The complexity of eHealth research causes a need for sustainable, multi-disciplinary research environments. There is a need for a structured approach to organize eHealth research. The proposed approach helps to systematically scrutinize ideals, thus promoting high quality research.

  • 27.
    Sjöström, Jonas
    et al.
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems.
    Ågerfalk, Pär
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems.
    An Analytic Framework for Design-oriented Research Concepts2009In: AMCIS 2009: Proceedings, 2009Conference paper (Refereed)
    Abstract [en]

    Over the last few decades, the field of information systems has shown a steadily increasing interest in design-oriented research. This is manifested through the emergence of different ontological and epistemological positions among IS researchers. Some challenges arise from this development, such as (a) a need to understand design-oriented IS research in relation to design-oriented approaches in other disciplines, and (b) a need for design theory representation that targets and is useful to stakeholders in both research and practice. This paper proposes a conceptual framework for understanding designoriented research, and its implications for research with a focus on meeting the two challenges mentioned above.

  • 28.
    Sjöström, Jonas
    et al.
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems.
    Ågerfalk, Pär
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems.
    Hevner, Alan
    USF Muma College of Business.
    The Design of a System for Online Psychosocial Care: Balancing Privacy and Accountability in Sensitive Online Healthcare Environments2022In: Journal of the Association for Information Systems, E-ISSN 1536-9323, Vol. 23, no 1, p. 237-263Article in journal (Refereed)
    Abstract [en]

    The design of sensitive online healthcare systems must balance the requirements of privacy and accountability for the good of individuals, organizations, and society. Via a design science research approach, we build and evaluate a sophisticated software system for the online provision of psychosocial healthcare to distributed and vulnerable populations. Multi-disciplinary research capabilities are embedded within the system to investigate the effectiveness of online treatment protocols. Throughout the development cycles of the system, we build an emergent design theory of scrutiny that applies a multi-layer protocol to support governance of privacy and accountability in sensitive online applications. The design goal is to balance stakeholder privacy protections with the need to provide for accountable interventions in critical and well-defined care situations. The research implications for the development and governance of online applications in numerous privacy-sensitive application areas are explored.

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  • 29.
    Sjöström, Jonas
    et al.
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media.
    Ågerfalk, Pär
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media.
    Hevner, Alan R.
    Privacy and Accountability in Online Communities: Towards a Theory of Scrutiny2014In: DESIGN SCIENCE: PERSPECTIVES FROM EUROPE, 2014, p. 41-51Conference paper (Refereed)
    Abstract [en]

    Information systems design must balance requirements of privacy and accountability for the good of individuals and society. We ground our study in the context of the design and development of a eHealth system for psychosocial care. Multi-level privacy protections are balanced with the need to provide for accountable interventions in well-defined critical care situations. We identify a set of meta-requirements leading towards a theory of scrutiny.

  • 30.
    Sjöström, Jonas
    et al.
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems.
    Ågerfalk, Pär J.
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems.
    Hevner, Alan R.
    Univ S Florida, Informat Syst & Decis Sci Dept, USA.
    Scrutinizing Privacy and Accountability in Online Psychosocial Care2017In: IT Professional Magazine, ISSN 1520-9202, E-ISSN 1941-045X, Vol. 19, no 3, p. 45-51Article in journal (Refereed)
    Abstract [en]

    The authors' scrutiny-management technique supports managers and IT developers to systematically address privacy and accountability issues when designing software for the online delivery of health servicesspecifically, psychosocial care.

  • 31.
    Sjöström, Jonas
    et al.
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Psychosocial oncology and supportive care.
    Ågerfalk, Pär Johan
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems.
    Hevner, Alan
    University of South Florida.
    The Design of a Multi-layer Scrutiny Protocol to Support Online Privacy and Accountability2014In: Advancing the Impact of Design Science: Moving from Theory to Practice / [ed] Tremblay, M. C., VanderMeer, D., Rothenberger, M., Gupta, A., Yoon, V., Springer International Publishing , 2014, p. 85-98Conference paper (Refereed)
    Abstract [en]

    Information systems design must balance requirements of privacy and accountability for the good of individuals and society. Drawing from an evolving theory of scrutiny, we propose a multi-layer protocol to support the rigorous application of privacy rules and accountability rules in sensitive online applications. We ground our study in the context of the design and development of an eHealth system for psychosocial care. Privacy protections are balanced with the need to provide for accountable interventions in well-defined critical care situations.

  • 32.
    Sjöström, Jonas
    et al.
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems.
    Ågerfalk, Pär Johan
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems.
    Lochan, Ruth
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems.
    Mutability Matters: Baselining the Consequences of Design2011Conference paper (Refereed)
    Abstract [en]

    Artefact mutability has been proposed as an important component of design theory in information systems. Although initial work on establishing a solid foundation for discussing mutability has been reported, conceptual as well as practical uncertainty still prevails. This paper draws on empirical work in a design science research project in the health sector to explore the notion of mutability and provides a novel conceptualization based on four different types of mutability. The study shows that in order to embrace mutability, IS researchers need to establish a sound philosophy of mutability and be open to incorporate theory and best practices from neighbouring fields, perhaps primarily from software engineering.

  • 33.
    Sjöström, Jonas
    et al.
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems.
    Ågerfalk, Pär
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Information Systems.
    Tuunanen, Tuure
    University of Jyväskylä.
    An Educational Interaction Model for Curriculum Design and Evolution2021In: International Conference on Information Systems (ICIS) 2021: Proceedings, Austin: Association for Information Systems, 2021Conference paper (Refereed)
    Abstract [en]

    In this short paper, we report from a case study addressing complexities of IS curriculum design. In a design science research process, we build on literature as well as workshops with IS practitioners in the design of two IS bachelor programs. Drawing from experiences from the process, we abstract the educational interaction model (EIM). Based on the identified types of stakeholder interaction, we articulate five considerations for IS curriculum design and evolution. Future work will focus on testing and further developing the EIM model in evaluation and design of IS curricula.

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    fulltext
  • 34.
    Ågerfalk, Pär
    et al.
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Information Science.
    Sjöström, Jonas
    Jönköping International Business School.
    Sowing the Seeds of Self: A Socio-pragmatic Penetration of the Web Artefact2007In: Proceedings of the 2nd international conference on Pragmatic web / [ed] Simon Buckingham Shum, Mikael Lind, Hans Weigand, 2007, p. 1-8Conference paper (Refereed)
    Abstract [en]

    This paper analyses the concept of the information technology artefact in a pragmatic web context with a special focus on its user interface. Assuming a communicative socio-pragmatic view of the use of Web artefacts, a distinction is made between explicit performance of essential communication actions and "give offs"; our sometimes unintentional traces left on the Web, which we may even be unaware of. It is argued that both aspects are key to understanding the role of IT artefacts and user interfaces in the Web context.

  • 35.
    Ågerfalk, Pär
    et al.
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Information Science.
    Sjöström, Jonas
    Jönköping International Business School and Linköping University.
    The Principle of Identity Cultivation on the Web2008In: ERCIM News, ISSN 0926-4981, E-ISSN 1564-0094, Vol. 72, no January, p. 31-32Article in journal (Other academic)
    Abstract [en]

    Web 2.0 and the commercial interest in open-source software both reflect a current trend towards increased user involvement in product and service development. To stay competitive in this era of open innovation, companies must learn to trust users as codevelopers and to make use of the Web as an instrument for identity cultivation.

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