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  • 1.
    Hemmingsson, Helena
    et al.
    Stockholm Univ, Dept Special Educ, S-11418 Stockholm, Sweden.;Linkoping Univ, Dept Social & Welf Studies, S-58183 Norrkoping, Sweden..
    Ahlsten, Gunnar
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Research group (Dept. of women´s and children´s health), Neuropediatrics/Paediatric oncology.
    Wandin, Helena
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation. Swedish Natl Ctr Rett Syndrome & Related Disorder, S-83223 Froson, Sweden.
    Rytterström, Patrik
    Linkoping Univ, Dept Social & Welf Studies, S-58183 Norrkoping, Sweden..
    Borgestig, Maria
    Linkoping Univ, Dept Social & Welf Studies, S-58183 Norrkoping, Sweden.;Orebro Univ, Fac Med & Hlth, Sch Hlth Sci, S-70281 Orebro, Sweden..
    Eye-Gaze Control Technology as Early Intervention for a Non-Verbal Young Child with High Spinal Cord Injury: A Case Report2018In: TECHNOLOGIES, ISSN 2227-7080, Vol. 6, no 1, article id 12Article in journal (Refereed)
    Abstract [en]

    Assistive technology (AT) can be used as early intervention in order to reduce activity limitations in play and communication. This longitudinal case study examines eye-gaze control technology as early intervention for a young child with high spinal cord injury without the ability to make sounds. The young child was followed by repeated measures concerning performance and communication from baseline at 9 months to 26 months, and finalized at 36 months by field observations in the home setting. The results showed eye-gaze performance and frequency of use of eye-gaze control technology increased over time. Goals set at 15 months concerning learning and using the AT; naming objects and interactions with family was successfully completed at 26 months. Communicative functions regarding obtaining objects and social interaction increased from unintentional actions to purposeful choices and interactions. At 36 months, the toddler was partly independent in eye gazing, used all activities provided, and made independent choices. In conclusion, the results show that a 9-month-old child with profound motor disabilities can benefit from eye-gaze control technology in order to gradually perform activities, socially interact with family members, and make choices.

  • 2.
    Tegler, Helena
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Wandin, Helena
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Teaching aided communication: self-report and intervention by SLPs2016Conference paper (Refereed)
  • 3.
    Townend, Gillian
    et al.
    Rett Expertise Centre - GKC, Maastricht University Medical Centre, Maastricht, The Netherlands.
    Wandin, Helena
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation.
    Curfs, Leopold
    Rett Expertise Centre - GKC, Maastricht University Medical Centre, Maastricht, The Netherlands.
    Development of Clinical Guidelines for the Management of Communication in Individuals with Rett syndrome2015Conference paper (Refereed)
  • 4.
    Wandin, Helena
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation.
    Alternativ kommunikation och ätsvårigheter.2012In: Barn med funktionsnedsättning. / [ed] Lagerkvist, B & Lindgren, C, Lund: Studentlitteratur AB, 2012Chapter in book (Other (popular science, discussion, etc.))
  • 5.
    Wandin, Helena
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation. Swedish National Rett Center.
    Communication Strategies - evidence and experience2016Conference paper (Refereed)
  • 6.
    Wandin, Helena
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation.
    Early communication intervention in Rett Syndrome2013In: 3rd European Rett Syndrome Conference / [ed] Smeets, E & Curfs, L, Maastricht: European Rett Syndrome Conference Maastricht Foundation , 2013Conference paper (Refereed)
  • 7.
    Wandin, Helena
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation.
    Gaze-Based Assistive Technology: Usefulness in Clinical Assessments2017In: Harnessing the Power of Technology to Improve Lives / [ed] P. Cudd & L. de Witte, IOS Press, 2017, Vol. 242, p. 1113-1118Conference paper (Refereed)
    Abstract [en]

    Gaze-based assistive technology was used in informal clinical assessments. Excerpts of medical journals were analyzed by directed content analysis using a model of communicative competence. The results of this pilot study indicate that gaze-based assistive technology is a useful tool in communication assessments that can generate clinically relevant information.

  • 8.
    Wandin, Helena
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation.
    Logopeders erfarenheter av kommunikationsinsatser vid Rett syndrom2015In: Abstract katalog, 2015Conference paper (Refereed)
  • 9.
    Wandin, Helena
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation.
    Språk hos barn med funktionsnedsättning2012In: Barn med funktionsnedsättning / [ed] Lagerkvist, B. & Lindgren, C., Lund: Studentlitteratur, 2012Chapter in book (Other (popular science, discussion, etc.))
  • 10.
    Wandin, Helena
    Swedish Rett Centre, Frösön, Sweden.
    Visual attention when aided language modeling is used in interaction2017In: Program: 5th European Rett Syndrom Congress / [ed] Christana Hennemann & Sarah Vetterlein, Hünfelden, 2017Conference paper (Other academic)
  • 11.
    Wandin, Helena
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation.
    Bergström-Isacsson, Märith
    Nationellt Rett Center, Östersund, Sverige.
    Activities for interaction; examples of groupactivities with special focus on communcation with PODD (Pragmatic Organisation Dynamic Displays)2015Conference paper (Refereed)
  • 12.
    Wandin, Helena
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation.
    Lindberg, Per
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Psychology.
    Sonnander, Karin
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    Communication intervention in Rett syndrome: a survey of speech language pathologists in Swedish health services2015In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 37, no 15, p. 1324-1333Article in journal (Refereed)
    Abstract [en]

    Purpose: To investigate communication intervention that speech language pathologists (SLPs) provide to people with Rett syndrome. Methods: A web-based survey targeting all Swedish SLPs working with people currently receiving support from habilitation services. Results: The SLPs reportedly followed recommended practice in the following aspects: (1) Information on communicative function was collected from several sources, including observation in well-known settings and reports from the client s social network, (2) Multimodal communication was promoted and, (3) Responsive partner strategies were largely targeted in the intervention. However, few instruments or standard procedures were used and partner instruction was given informally. Most SLPs used communication aids in the intervention and their general impression of using communication aids was positive. Further, augmentative and alternative communication (AAC) was estimated to increase and clarify communicative contributions from the person. Conclusions: Communication aids were reported to have a positive influence on communicative functions. Swedish SLP services followed best practice in several aspects, but there are areas with potential for development. Tools and best practice guidelines are needed to support SLPs in the AAC process for clients with Rett syndrome.

  • 13.
    Wandin, Helena
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation.
    Sonnander, Karin
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation.
    Lindberg, Per
    Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Psychology.
    Habiliteringslogopeden i fokus: Beskrivning av kårens sammansättning och arbetsmässiga förutsättningar – resultat av en enkätstudie2015In: Logopeden, no 3, p. 18-21Article in journal (Refereed)
  • 14.
    Wandin, Helena
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation.
    Tegler, Helena
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences.
    What do people with severe disabilities communicate with the help of communication aids?2016In: International Conference on Cerebral Palsy and other Childhood-onset Disabilities Stockholm 1–4 June 2016, 2016Conference paper (Refereed)
  • 15.
    Wandin, Helena
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation.
    Townend, Gillian
    eRett Expertise Centre - GKC, Maastricht University Medical Centre, Maastricht, The Netherlands.
    Tools for Assessment of Communication in Rett Syndrome2015Conference paper (Refereed)
1 - 15 of 15
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