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  • 1.
    Abrahamsson, Bengt
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Medicinska och farmaceutiska vetenskapsområdet, centrumbildningar mm, Centre for Disability Research.
    Ihop eller isär?: samarbete mellan personal i skola och boende för barn med autism: en förundersökning1993Report (Other academic)
  • 2.
    Adolfsson, Päivi
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Medicinska och farmaceutiska vetenskapsområdet, centrumbildningar mm, Centre for Disability Research.
    Food security and people with intellectual disabilities living in community residences in Sweden2012In: Journal of Intellectual Disability Research 56; 7/8, 2012Conference paper (Refereed)
  • 3.
    Blomqvist, YlvaThernström
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Pediatrics.
    Rubertsson, Christine
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Obstetrics and Gynaecology.
    Kylberg, Elisabeth
    Jöreskog, Karin
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Medicinska och farmaceutiska vetenskapsområdet, centrumbildningar mm, Centre for Disability Research.
    Hedberg Nyqvist, Kerstin
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Pediatrics.
    Kangaroo Mother Care helps fathers of preterm infants gain confidence in the paternal role2012In: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 68, no 9, p. 1988-1996Article in journal (Refereed)
    Abstract [en]

    Aim. 

    This article is a report on a descriptive study of fathers’ experiences of providing their preterm infants with Kangaroo Mother Care.

    Background. 

    During neonatal intensive care, fathers describe the incubator as a barrier and the separation from their infant as stressful. Fathers consider it important to be close to the infant, and performing Kangaroo Mother Care makes them feel an important participant in their infants’ care.

    Method. 

    Individual interviews conducted in 2009 with seven fathers who performed Kangaroo Mother Care were analysed using qualitative content analysis.

    Results. 

    The fathers’ opportunity for being close to their infants facilitated attainment of their paternal role in the neonatal intensive care unit. Kangaroo Mother Care allowed them to feel in control and that they were doing something good for their infant, although the infant’s care could be demanding and stressful. As active agents in their infant’s care, some fathers stayed with the infant during the whole hospital stay, others were at the neonatal intensive care unit all day long. Despite the un-wished-for situation, they adapted to their predicament and spent as much time as possible with their infants.

    Conclusion. 

    Fathers’ opportunities for Kangaroo Mother Care helped them to attain their paternal role and to cope with the unexpected situation. The physical environment and conflicting staff statements influenced their opportunity for, and experience of, caring for their preterm infants.

  • 4.
    Janeslätt, Gunnel
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Medicinska och farmaceutiska vetenskapsområdet, centrumbildningar mm, Center for Clinical Research Dalarna. SUF Resource Centre, region Uppsala.
    Jöreskog, Karin
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Medicinska och farmaceutiska vetenskapsområdet, centrumbildningar mm, Centre for Disability Research.
    Lindstedt, Helena
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation.
    Adolfsson, Päivi
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Medicinska och farmaceutiska vetenskapsområdet, centrumbildningar mm, Centre for Disability Research. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation.
    Experiences of the maternal role and support in mothers with cognitive limitations who have children in placement2019In: Child & Family Social Work, ISSN 1356-7500, E-ISSN 1365-2206Article in journal (Refereed)
    Abstract [en]

    In Sweden, when needed, children of mothers with cognitive limitations are placed infoster homes. There is a lack of knowledge about the mothers with cognitive limitations,their experiences of their maternal role, whether they get the support neededto maintain the relationship with their children, and whether the support system isadapted to mothers with cognitive limitations. The aim was to describe the experiencesof the maternal role and support given in mothers with cognitive limitationswho have children in placement. An explorative and qualitative design was used.Eleven respondents were interviewed with support from a study‐specific guide. Amodel representing the respondents' experiences revealed one theme “Struggling,dependent and frustrated mothers,” and three categories: I am a mother, I am dependenton an incomprehensible system, and I reluctantly accept my situation. Motherswith children in placement experience a threat to their identity and experience a needto alter their maternal role. They need adapted support to understand the decisionsmade and facilitate the cooperation with child protection services and the fosterhome. Offering service adapted to their cognitive limitations could be helpful forthe struggling, dependent, and frustrated mothers.

  • 5.
    Jöreskog, Karin
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Medicinska och farmaceutiska vetenskapsområdet, centrumbildningar mm, Centre for Disability Research.
    Lindstedt, Helena
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation.
    Adolfsson, Päivi
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation.
    Janeslätt, Gunnel
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation. Uppsala Univ, Uppsala, Sweden.
    Experiences of the parenting sole and support in mothers with cognitive limitations who have children in placement2018In: JARID: Journal of applied research in intellectual disabilities, ISSN 1360-2322, E-ISSN 1468-3148, Vol. 31, no 4, p. 624-624Article in journal (Other academic)
  • 6.
    Jöreskog, Karin
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Medicinska och farmaceutiska vetenskapsområdet, centrumbildningar mm, Centre for Disability Research.
    Mikaela, Starke
    Göteborgs Universitet.
    Professionals’ Perceptions of and Approach to Parents with Intellectual Disability: A Question of Knowledge?2013In: International journal of social science studies, ISSN 2324-8033, Vol. 1, no 2, p. 20-30Article in journal (Refereed)
    Abstract [en]

    Research on the encounters and interaction between support professionals and parents with intellectual disability (ID) points to certain complications in their relationship, as viewed from either side. To better understand the professionals’ perspective on their work with families where parents have ID, this exploratory study looks at the perceptions and experiences of 21 Swedish professionals in the field. The theory of social representations is used to analyse the results from one interview study and one focus group study. Representations of parenting among parents with ID were created by anchoring them in the professionals’ own personal experiences, and then generalizing them through a process of objectification in which they were transferred as “true knowledge” to other situations involving other parents. The findings are discussed in relation to different working conditions and the nature and role of knowledge, referring to various theoretical points of departure in the understanding of disability and children’s needs.

  • 7.
    Lindstedt, Helena
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation.
    Adolfsson, Päivi
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Medicinska och farmaceutiska vetenskapsområdet, centrumbildningar mm , Centre for Disability Research.
    Janeslätt, Gunnel
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Medicinska och farmaceutiska vetenskapsområdet, centrumbildningar mm , Center for Clinical Research Dalarna.
    Pettersson, Ingvor
    Örebro universitet.
    Norling Hermansson, Liselotte
    Örebro läns landsting.
    Omgivningens hjälp eller stjälp?: Dokumentation av personers med psykisk funktionsnedsättning erfarenheter av användning av elektroniska planeringshjälpmedel2012Report (Other academic)
    Abstract [sv]

    Vuxna personer med psykisk funktionsnedsättning har ofta problem med sin kognitiva förmåga, vilket leder till problem med att hantera vardagslivets komplexitet. Med behovsanpassade kognitiva hjälpmedel och individuellt stöd från kunnig personal finns möjlighet för personen att få ordning på sitt ofta kaotiska vardagsliv. Dock finns studier och klinisk erfarenhet som påtalar att hjälpmedel inte används i den utsträckning som förväntats. Antaganden finns om att komplexa faktorer i omgivningen interagerar med hjälpmedelsanvändning.

    Syftet med studien var att dokumentera erfarenheter av underlättande och hindrande omgivningsfaktorer som personer med psykisk funktionsnedsättning har av användningen av elektroniska planeringshjälpmedel. Metod: tolv personer med psykisk funktionsnedsättning och med erfarenhet av elektroniska planeringshjälpmedel rekryterades efter informerat samtycke via förskrivare och besök vid dagliga verksamheter. En studiespecifik frågeguide med öppna frågor med ett innehåll som täcker omgivningsfaktorer enligt Klassifikation av funktionstillstånd, funktionshinder och hälsa (ICF) användes i de inspelade intervjuerna. Materialet bearbetades med kvalitativ, induktiv innehållsanalys. Resultatet utmynnade i sex kategorier och två teman formade till en modell med underlättande eller hindrande faktorer som inverkar på användning av elektroniska planeringshjälpmedel enligt deltagarna. Kategorierna benämndes: Insikt om funktionsnedsättning/behov; Medveten social omgivning; Egen kontroll och hanterbarhet av hjälpmedel; Nytta av och brister i hjälpmedlets funktion; stöd av Kunnig personal; och Tydligt och lättbegripligt myndighetsutövande. Teman benämndes: Tydlig önskan om delaktighet och Nödvändig individuell anpassnnig. Åtgärder för att förebygga eller förhindra omgivningens negativa inverkan på hjälpmedelsanvändning är angelägen.

  • 8.
    Lindstedt, Helena
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation.
    Janeslätt, Gunnel
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation.
    Jöreskog, Karin
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Medicinska och farmaceutiska vetenskapsområdet, centrumbildningar mm, Centre for Disability Research.
    Adolfsson, Päivi
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Medicinska och farmaceutiska vetenskapsområdet, centrumbildningar mm, Centre for Disability Research.
    Evaluation of "Mothers in Spite of All": a group intervention for mothers with cognitive limitations who have children in placement2018In: JARID: Journal of applied research in intellectual disabilities, ISSN 1360-2322, E-ISSN 1468-3148, Vol. 31, no 4, p. 625-625Article in journal (Other academic)
  • 9.
    Umb-Carlsson, Õie
    et al.
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation. Res & Dev Sormland, Eskilstuna, Sweden.
    Adolfsson, Päivi
    Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Medicinska och farmaceutiska vetenskapsområdet, centrumbildningar mm, Centre for Disability Research. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Research in Disability and Habilitation.
    Quality of Life Is to Experience Adult Social Status2018In: Journal of Policy and Practice in Intellectual Disabilities, ISSN 1741-1122, E-ISSN 1741-1130, Vol. 15, no 4, p. 272-283Article in journal (Refereed)
    Abstract [en]

    Quality of life (QoL) has become an important outcome in evaluations of services and support for people with intellectual disabilities (ID). Many people with ID request more say and want to be involved in the development of services and support provision. The original Uppsala QoL (UQoL) model consists of a general essence and hierarchically ordered themes and describes QoL from the perspective of people with ID through individual interviews. The aim of the present study is to examine the UQoL regarding its inherent component parts and to explore the interrelationship between them. The study contributes to the understanding of the concept of QoL from the perspective of people with ID. Focus group interviews were conducted with people with mild and moderate ID. The results indicate that QoL is to experience well-being. The key component of QoL is to experience adult social status. which is determined by whether the individual experiences having control of their life, experiences a sense of personal safety and feels social belonging. In concordance with the original model, the UQoL2 is mainly made up of components equivalent to those frequently reported in the QoL literature. Nevertheless, some differences require attention. The primary component, adult social status, has not previously been highlighted in the QoL literature. The point of departure in the UQoL model is the users ' perspective rather than the user perspective as perceived by professionals or researchers. The UQoL is not primarily linked to the quality of service provision, but to peoples' daily life. A revised version of the original UQoL is suggested. Unlike the original model, other than the fact which that adult social status is superior, the components are not hierarchically organized, rather the interrelation between them is emphasized.

1 - 9 of 9
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