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Purpose: According to the Swedish Act concerning Support and Service for Persons with Certain Functional Impariments (The LSS Act), personal assistance (PA) aims to enhance good living conditions for people with disability. The Act is operationalised by a policy tool, an instruction developed and refined by the Swedish Social Insurance Agency (SSIA) to grant PA. The study explores how this instruction is aligned with the LSS Rationale and goals.

Material and method: Qualitative content analysis was applied on the material i.e., a government bill preceding the LSS Act and the policy tool, i.e., the SSIA instruction, versions 1994 and 2019.

Results: The result shows that the instruction has deviated from the LSS Act over time, by decreasing users' access to community life, a shift towards health and care activities, lack of support for the PA user, increased control and service-granting criteria. 

Conclusion: This paper emphasises that the selection of policy tools goes beyond mere pragmatism, as they are subject to refinement procedures that have significant impacts over time. The deviations observed in fulfilling the objectives of the LSS Act highlights the importance of ongoing adjustments to policy tools to align with the original policy goals in order to promote disability rights. 

Män med psykisk ohälsa får mer sällan vård än kvinnor s. 2

Slöjdämnet viktig möjlighet till bildning s. 3

Träningsprogram gav bättre hälsa och välmående s. 6

Kontakt med arbetsplatsen viktig vid sjukskrivning på grund av psykisk ohälsa s. 9

Ungdomar med autism vill vara fysiskt aktiva – på sina villkor s. 11

Bättre anpassningar kan ge längre arbetsliv vi MS s. 12

Lesson study bra verktyg vid undervisning av elever med autism och IF s. 14

Kbt för unga – viktigt att anpassa behandlingen s. 14

Hallå där!

Kalendern 2023

Fibromyalgi kan vara en autoimmun sjukdom                                                 s. 2

Normkritiken måste in också när det gäller neurodiversitet                               s. 3

Bättre språkmiljö ger barn ett bättre språk                                                      s. 6

Psykisk ohälsa vanligt även bland elitidrottare                                                  s. 9

Kom i gång hjälper föräldrar till barn med flerfunktionsnedsättning                    s. 10

Större risk för barn med funktionsnedsättning att bli utsatta för övergrepp         s. 12

Allt bättre behandlingar för barnreumatism – men fler studier behövs                s. 14

Svårt att se om barn kommer få en autismdiagnos utifrån kommunikativa markörer s.14

Hallå där!                                                                                                        s. 15

Kalendern 2023-2024                                                                                        s. 16

Purpose: To explore and describe a trained communication partner’s use of responsive strategies in dyadic interaction with adults with Rett syndrome.

Introduction: Responsive partner strategies facilitate social, communicative, and linguistic development. The common feature is that the communication partner responds contingently to the other’s focus of attention and interprets their acts as communicative. Research on responsive partner strategies that involves individuals with significant communication and motor disabilities remains sparse. The same applies to if, and how, the use of communication aids impacts on the partner’s use of responsive strategies.

Materials and methods: A therapist, trained in responsive partner strategies and aided communication interacted during 14 sessions with each of three participants. The participants were adults with Rett syndrome. A gaze-controlled device and responsive strategies were used during all sessions. The Responsive Augmentative and Alternative Communication Style scale (RAACS) was used to assess the partner’s responsiveness. RAACS consists of 11 items including ratings of to what extent the partner is being attentive to, confirms, and expands the individual’s communication. During eight of the 14 sessions, aided AAC Modelling was also used, i.e., the communication partner pointed at symbols on the gaze-controlled device while interacting. In addition to RAACS, each time the communication partner confirmed or expanded on communication when (a) the participants used the gaze-controlled device and (b) the participants did not use the gaze-controlled device was counted. Descriptive statistics were used to present the results. Non-parametric tests were used to compare means between the two conditions and between participants.

Results: Inter-rater agreement for the different RAACS items ranged from 0.73 to 0.96 and was thus found to be fair to excellent. The communication partner’s use of responsive strategies varied when communicating with different participants and the scores were higher when aided AAC modeling was used. The communication partner’s number of responses and use of responsive strategies were higher when the participants communicated through a gaze-controlled device.

Conclusion: The communication partner’s use of responsive and scaffolding strategies is not a fixed construct but varies in interactions with different non-speaking persons. The same is true whether the non-speaking person uses a gaze-controlled device with digitized speech or not.

Purpose. To explore whether the personal assistance (PA) activities provided by the Swedish Act concerning Support and Service for Persons with Certain Functional Impairment in 2010 and 2015 promote participation in society according to Article 19 of the United Nations’ Convention on the Rights of Persons with Disabilities (UNCRPD).

Methods. Register data and data from two questionnaires were used (N = 2565). Descriptive statistics and chi-square (McNemar’s test) were used to describe the basic features of the data. Mixed binominal logistic regression was used to examine correlation between gender and hours of PA between 2010 and 2015.

Results. Despite an increase in the number of PA hours, more care activities and a reduction of most PA activities representing an active life were found. The result was especially evident for women, older people, and for a particular person category.

Conclusions. The results offer evidence of a shift to a medical model and indicate a risk of social exclusion due to fewer activities representing an active life. An increase on average of 16 h of PA over the period studied does not guarantee access to an active life and may indicate a marginal utility. The noted decline of PA for participation in society enhances the importance of monitoring content aspects to fulfil Article 19 of the UNCRPD.

Mer individinriktad stöd för personer med högfungerande autism s. 2

Viktigt att prata om normer och förutfattade meningar s. 3

webbpasserad kalender bra minnesstöd för personer med hjärnskada s. 4

Behovet av juridiskt stöd urholkar konkurensen bland LSS-anordnare s. 7

Mycket kvar för att personer med hörselnedsättniing ska känna sig inkluderade s. 10

Verktyg ger bättre lärmiljö för barn med autism s. 13

Lästips s. 14

Hallå där! s. 15

Kalender 2022 s. 16

Vanligt med sväljsvårigheter för personer med KOL s. 2

Osäkra anställningsförhållanden ökar risken för psykisk ohälsa s. 3

Mycket att vinna genom att vara kunnig om sin sjukdom s. 5

Brister i trafikmiljön skapar faror för personer med rollator s. 6

Enkelt test kan hitta demens tidigt s. 9

Lästips s. 9

Svängig politik stort problem för föräldrar till barn med adhd och autism s. 10

Internetbaserad kbt bra alternativ för många nyanlända s. 12

Hallå där! s. 15

Kalender 2022 s. 16

Nytt test mäter hörselnedsättningen bättre s.  2

Störande ljud stort problem för personer med adhd s. 3

Svårt för närstående vid afasi s. 5

Överdriven självkontroll risk för anorexia s. 5

Avhandling i lättläst version en succé s. 6

Många mår dåligt när körkortet blir indraget s.  8

Digital teknik kan vara bra hjälpmedel vid begynnande demens s. 12

Viktigt att fånga upp unga med depression s. 14

Hallå där! s. 15

Kalendern 2022 s.  16

Frakturer bland äldre kan upptäckas med enkel röntgen s. 2

Smärta kan vara en sjukdom i sig s. 3

Tillgänglighet – rätten alla inte har rätt till s. 6

Tillgänglighet stort problem på Göteborgs spårvagnar s. 8

Rättighetsreformen som kom av sig s. 10

Familjeliv har inte alltid varit självklart för personermed funktionsnedsättning s. 13

Lästips s. 13

Bättre kunskaper om hur hjärnan hanterar antal kan ge bättre matematikundervisning s. 14

Hallå där! s. 15

Kalendern 2022 s. 16

Background: Changes in the everyday life and health of the significant others (SOs) of people living with stroke sequalae have been widely investigated. However, information regarding the frequency of the changes in daily life and the variables most associated with these perceived life changes is limited.

Aims: To examine the extent to which SOs of persons with aphasia (PWAs) experience changes in everyday life and health after the stroke event and how they evaluate these changes and to identify which variables are associated with these perceived life changes.

Methods & Procedures: A study-specific questionnaire about perceived changes in everyday life and health was completed by 173 SOs of PWAs living in Sweden (response rate 67.8%). The items concerned the SO’s working and financial situation, leisure time and social life, relationship with the PWA, household work and responsibility, and health and quality of life.

Outcomes & Results: The everyday life and health of the SOs were greatly affected by the stroke event. The changes the SOs experienced were mainly appraised negatively. The relationships with the PWA and immediate family were least affected by the stroke. The perceived existence and severity of physical, cognitive, and language impairments of the PWA were the variables most strongly associated with the everyday life situation of the participants. The sex and age of the participants and the nature of the relationship with the PWA were only marginally associated with the experience of the situation.

Conclusions: SOs’ perceptions of the PWA’s stroke-related disabilities and need for assistance may be a key factor in identifying SOs who may require support and guidance to help them cope with their new life situation.