Open this publication in new window or tab >>Show others...
2026 (English)In: Journal of Pediatric Nursing: Nursing Care of Children and Families, ISSN 0882-5963, E-ISSN 1532-8449, Vol. 86, p. 700-708Article in journal (Refereed) Published
Abstract [en]
Background:
Using Patient Reported Experience Measures (PREM) is one way of assessing children's perspectives in identifying areas for improvement in paediatric care. The generic questionnaire Children and Young People-Patient Reported Experience Measure (CYP-PREM) has been adapted to the Swedish paediatric healthcare context to enable children to evaluate their care on issues important to them.
Aim: The aim of the study was to pilot the Swedish versions of the CYP-PREM questionnaire in paediatric care. Methods: This pilot study used a descriptive cross-sectional design. Children aged 8-16 years were included when discharged from an inpatient ward or after an outpatient visit. The participating children were asked to complete two questionnaires: Swedish CYP-PREM (Swe-CYP-PREM) appropriate for their inpatient or outpatient visit and the age of the child, and a study-specific questionnaire to evaluate the children's opinions of the Swe-CYP-PREM.
Findings: Out of the 319 invited children, 296 agreed to participate, of whom 189 children submitted the questionnaires, resulting in a response rate of 59.5 %. The Swe-CYP-PREM was well accepted by the target population and considered to provide good data completeness and few response errors. The Swe-CYP-PREM captured a range of experiences from children's healthcare visits, with predominantly positive responses. In the openended question about what was good or bad about the visit, 66 children had provided comments, which added value to the closed questions in the questionnaire.
Conclusion: The Swe-CYP-PREM can be used in clinical practice to enable children to voice their experiences after a healthcare visit. (c) 2025 Published by Elsevier Inc.
Place, publisher, year, edition, pages
Elsevier, 2026
Keywords
Available online xxxx, Inpatient, Outpatient, Paediatric care, Pilot-study, PREM
National Category
Pediatrics Nursing
Identifiers
urn:nbn:se:uu:diva-576235 (URN)10.1016/j.pedn.2025.12.021 (DOI)001653242500001 ()2-s2.0-105025683822 (Scopus ID)
2026-01-152026-01-152026-01-15Bibliographically approved