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The impact of patient and public involvement in health research versus healthcare: A scoping review of reviews
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Health Services Research.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Social medicine/CHAP.ORCID iD: 0000-0002-5540-9853
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Health Services Research. Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Government.ORCID iD: 0000-0001-5522-5344
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Health Services Research.ORCID iD: 0000-0002-3858-3454
2021 (English)In: Health Policy, ISSN 0168-8510, E-ISSN 1872-6054, Vol. 125, no 9, p. 1208-1221Article, review/survey (Refereed) Published
Abstract [en]

Many policies promote patient and public involvement (PPI) in health research and healthcare provision. However, research points to uncertainties about its impact. The aim of the article was to compare what types of impact have been reported in reviews of PPI in health research and healthcare, respectively, and to map differences and similarities between the review studies. A review of reviews was undertaken with a search strategy based on the PCC mnemonic for scoping reviews. Four online databases were searched. Studies published in English between the years 20 0 0-2020, using a review-based method and aiming to demonstrate impact of PPI were included, resulting in sixty-one articles. More reviews of PPI impact in healthcare than in health research were found, although the latter included a larger number of empirical studies. Systematic reviews, quality assessment and quantitative studies were less common in health research. Many original studies were from the United Kingdom. In health research, reported impacts most often related to research design and delivery, while in healthcare the most commonly reported impacts were individual health outcomes/clinical outcomes. However, there is still uncertainty about the strength of evidence for PPI, in particular when it comes to collective in-volvement in healthcare, that is in policymaking and service improvement initiatives at hospitals or the like. 

Place, publisher, year, edition, pages
Elsevier, 2021. Vol. 125, no 9, p. 1208-1221
Keywords [en]
Patient and public involvement, Healthcare, Health research, Impact, Review of reviews
National Category
Health Care Service and Management, Health Policy and Services and Health Economy
Identifiers
URN: urn:nbn:se:uu:diva-457407DOI: 10.1016/j.healthpol.2021.07.008ISI: 000694804800012PubMedID: 34376328OAI: oai:DiVA.org:uu-457407DiVA, id: diva2:1607175
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2018-01578Available from: 2021-10-29 Created: 2021-10-29 Last updated: 2024-05-20Bibliographically approved

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Modigh, AntonSampaio, FilipaMoberg, LindaFredriksson, Mio

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