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Potential Implementers’ Perspectives on the Development and Implementation of an e–Mental Health Intervention for Caregivers of Adults With Chronic Kidney Disease: Qualitative Interview Study
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Healthcare Sciences and e-Health. Clinical Education, Development and Research (CEDAR), Psychology, University of Exeter, Exeter, United Kingdom .ORCID iD: 0000-0001-5539-974x
Faculty of Nursing and Physiotherapy, University of Lleida, Lleida, Spain; Healthcare Research Group (GRECS), Institute for Biomedical Research (IRBLleida), Lleida, Spain .
Clinical Education, Development and Research (CEDAR), Psychology, University of Exeter, Exeter, United Kingdom .
Exeter Kidney Unit, Royal Devon University Healthcare NHS Foundation Trust, Exeter, United Kingdom; Faculty of Health and Life Sciences, University of Exeter Medical School, University of Exeter, Exeter, United Kingdom.
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2023 (English)In: JMIR Human Factors, E-ISSN 2292-9495, Vol. 10, article id e51461Article in journal (Refereed) Published
Abstract [en]

Background: e–Mental health interventions can improve access to mental health support for caregivers of people living with chronic kidney disease (CKD). However, implementation challenges often prevent effective interventions from being put into practice. To develop an e–mental health intervention for caregivers of people living with CKD that is optimized for future implementation, it is important to engage professionals that may endorse or deliver the intervention (ie, potential implementers) during intervention development.

Objective: This study aims to explore the perspectives of potential implementers working in kidney care, in mental health care, or at nonprofit organizations regarding the design and implementation of an e–mental health intervention for caregivers of people living with CKD.

Methods: Potential implementers (N=18) were recruited via National Health Service Trusts, email, and social media advertisements to participate in semistructured video interviews. Interview questions were informed by the Consolidated Framework for Implementation Research (CFIR). Data were analyzed using a deductive analysis approach using the CFIR, with inductive coding applied to relevant data not captured by the framework.

Results: A total of 29 generic categories, related to 17 CFIR constructs, were identified. The perceived fit between the intervention and implementation context (ie, existing service delivery models and work routines) and existing social networks among potential implementers were perceived as important factors in enhancing implementation potential. However, a need for capacity building among potential implementers to create systems to support the identification and referral of caregivers to an e–mental health intervention was identified. Equity concerns were raised regarding the intervention, highlighting the importance of incorporating an equity lens during intervention design to enhance accessibility and adoption.

Conclusions: Potential implementers provided valuable insights into key design and implementation factors to help inform the development of an e–mental health intervention for caregivers of people living with CKD. Incorporating their feedback can help ensure the intervention is acceptable and inform the selection of future implementation strategies to enhance the implementation potential of the intervention. Potential implementers should continue to be engaged throughout intervention development.

Place, publisher, year, edition, pages
JMIR Publications, 2023. Vol. 10, article id e51461
Keywords [en]
healthcare professional, implementation, informal caregiver, chronic kidney disease, e-mental health, Consolidated Framework for Implementation Research
National Category
Health Sciences Psychology
Research subject
Health Care Research; Psychology
Identifiers
URN: urn:nbn:se:uu:diva-512343DOI: 10.2196/51461ISI: 001114959100001PubMedID: 37792676OAI: oai:DiVA.org:uu-512343DiVA, id: diva2:1799937
Part of project
U-CARE publications with interns as co-authors
Funder
Swedish Research Council, 2009–1093EU, Horizon 2020, 814072Available from: 2023-09-25 Created: 2023-09-25 Last updated: 2024-06-17Bibliographically approved
In thesis
1. E-mental health interventions for informal caregivers: Development with a focus on implementation
Open this publication in new window or tab >>E-mental health interventions for informal caregivers: Development with a focus on implementation
2023 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The four studies within this thesis contributed to the identification of key factors to be considered when designing and implementing e-mental health (e-MH) interventions for informal caregivers. 

Study I was a mixed-methods systematic review to examine factors related to the effectiveness and implementation of e-MH interventions for informal caregivers of adults with chronic diseases. A thematic synthesis with deductive coding using the Consolidated Framework for Implementation Research (CFIR) identified 152 implementation barriers and facilitators. Barriers and facilitators primarily related to intervention and user characteristics. Exploration of barriers and facilitators related to the implementation setting or wider context was limited.

Study II was a cross-sectional survey to examine contextual factors related to informal caregivers (e.g. intervention preferences, caregiving situation) to inform the development of a cognitive behavioural therapy (CBT) self-help intervention to support the mental health of informal caregivers of people living with chronic kidney disease (CKD). The majority of participants were caring for a male spouse or partner living with CKD, and over half were experiencing at least mild depressive symptoms. Informal caregivers reported preferences for CBT self-help interventions to be delivered via the internet, a workbook, or individually in-person, with additional support provided in-person or via email by a trained professional at a non-profit organisation.

Study III was a qualitative study to explore the perspectives of professionals (i.e. potential implementers) anticipated to play key roles in the future implementation of an e-MH intervention for informal caregivers of people living with CKD regarding the intervention’s design, delivery, and implementation. Manifest content analysis with primarily deductive coding using the CFIR led to identification of 29 generic categories representing implementation determinants. Potential implementers considered an e-MH intervention as fitting within some existing healthcare delivery models and work routines, however, capacity to be involved with intervention delivery was low. Equitable support access was important to ensure intervention acceptability.

Study IV was a qualitative study to explore informal caregivers’ experiences of accessing and receiving support while caring for someone living with CKD. Reflexive thematic analysis generated three themes: (1) “Systems seem to get in the way” – challenges within support systems, describing challenges encountered when navigating complex systems; (2) Relying on yourself, describing how informal caregivers relied on their own skills and networks to find support; and (3) Support systems can “take the pressure off”, describing how support systems were perceived as supportive when empathetic and reliable. 

Place, publisher, year, edition, pages
Uppsala: Acta Universitatis Upsaliensis, 2023. p. 81
Series
Digital Comprehensive Summaries of Uppsala Dissertations from the Faculty of Medicine, ISSN 1651-6206 ; 1977
Keywords
informal caregiver, e-mental health, mental health, implementation, chronic kidney disease
National Category
Health Sciences Psychology
Research subject
Health Care Research; Psychology; Medical Science
Identifiers
urn:nbn:se:uu:diva-512372 (URN)978-91-513-1908-7 (ISBN)
Public defence
2023-11-21, Sal IV, Universitetshuset, Biskopsgatan 3, Uppsala, 09:15 (English)
Opponent
Supervisors
Available from: 2023-10-30 Created: 2023-09-29 Last updated: 2023-10-30

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Coumoundouros, Chelseavon Essen, LouiseWoodford, Joanne

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