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Preferences of support and barriers and facilitators to help-seeking in pregnant women with severe fear of childbirth in Sweden: a mixed-method study
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Obstetrics and Reproductive Health Research. Uppsala University, WoMHeR (Centre for Women’s Mental Health during the Reproductive Lifespan).ORCID iD: 0009-0009-4169-5914
Women’s and Children’s Health, Karolinska Institute, Solna, Sweden.ORCID iD: 0000-0001-7453-306X
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Healthcare Sciences and e-Health.ORCID iD: 0000-0001-5062-6798
Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Arts, Centre for Gender Research.ORCID iD: 0000-0001-6133-239X
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2024 (English)In: BMC Pregnancy and Childbirth, E-ISSN 1471-2393, Vol. 24, no 1, article id 388Article in journal (Refereed) Published
Abstract [en]

Background

There are few support interventions for women with fear of childbirth tailored towards type of fears and parity. To inform the future development of an acceptable and relevant intervention for women with severe fear of childbirth, primary objectives were to examine: (1) pregnant women’s experiences of and preferences for support and (2) barriers and facilitators to help-seeking. Secondary objectives were to examine if there are any differences based on pregnant women’s parity.

Methods

Pregnant women with a severe fear of childbirth in Sweden completed an online cross-sectional survey between February and September 2022. Severe fear of childbirth was measured using the fear of childbirth scale. Quantitative data were analysed using descriptive and inferential statistics and free answers were analysed using manifest content analysis. A contiguous approach to integration was adopted with qualitative and quantitative findings reported separately.

Results

In total, 609 participants, 364 nulliparous and 245 parous women, had severe fear of childbirth. The main category “A twisting road to walk towards receiving support for fear of childbirth” was explored and described by the generic categories: Longing for support, Struggling to ask for support, and Facilitating aspects of seeking support. Over half (63.5%), of pregnant women without planned or ongoing treatment, wanted support for fear of childbirth. Most (60.2%) pregnant women with ongoing or completed fear of childbirth treatment regarded the treatment as less helpful or not at all helpful. If fear of childbirth treatment was not planned, 35.8% of women would have liked to have received treatment. Barriers to help seeking included stigma surrounding fear of childbirth, previous negative experiences with healthcare contacts, fear of not being believed, fear of not being listened to, and discomfort of having to face their fears. Facilitators to help seeking included receiving respectful professional support that was easily available, flexible, and close to home.

Conclusions

Most pregnant women with severe fear of childbirth felt unsupported during pregnancy. Findings emphasise the need to develop individual and easily accessible psychological support for women with severe fear of childbirth, delivered by trained professionals with an empathetic and respectful attitude.

Place, publisher, year, edition, pages
BioMed Central (BMC), 2024. Vol. 24, no 1, article id 388
Keywords [en]
Barriers, Counselling, Facilitators, Fear of childbirth, FOBS, Mixed-method, Pregnancy, Support preferences, Women
National Category
Gynaecology, Obstetrics and Reproductive Medicine
Research subject
Obstetrics and Gynaecology
Identifiers
URN: urn:nbn:se:uu:diva-529590DOI: 10.1186/s12884-024-06580-2ISI: 001232312600002PubMedID: 38796427OAI: oai:DiVA.org:uu-529590DiVA, id: diva2:1862046
Funder
Uppsala UniversityAvailable from: 2024-05-29 Created: 2024-05-29 Last updated: 2025-02-11Bibliographically approved
In thesis
1. Parents’ experiences of fear of childbirth in relation to support needs, self-efficacy and mental health
Open this publication in new window or tab >>Parents’ experiences of fear of childbirth in relation to support needs, self-efficacy and mental health
2025 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Childbirth can be associated with both positive and negative psychological reactions. Pregnancy and birth and the emotions connected to it are subjective, multidimensional and complex, including both physiological and psychological factors. Fear of childbirth (FOC) represents a significant psychological challenge for both expectant mothers and fathers, with implications for mental health, self-efficacy, and support needs. FOC during pregnancy can lead to various psychiatric disorders, such as postpartum depression and anxiety disorders as well as an increase in instrumental births and emergency caesarean sections. The overall aim of this thesis was to identify the needs and preferences of prospective and newly become parents experiencing FOC and what kinds of barriers and facilitators there are in help-seeking. The work is summarized in four papers originating from a cross-sectional study and interviews with men and women with FOC. Paper I explores the experiences of Swedish pregnant women with severe FOC, highlighting unmet support needs and barriers to seeking help. Paper II employs cluster analysis to examine the relationships between FOC, anxiety, depression, and self-efficacy in pregnant women. Paper III turns its focus to fathers, examining their support needs, barriers, and facilitators related to FOC. Paper IV describes and analyses women’s expectations of childbirth, their needs and wishes for support and treatment for FOC during pregnancy. Results from Paper I showed that women identified stigma, lack of empathetic healthcare encounters, and logistical obstacles as primary deterrents to accessing care. Despite many participants desiring support, only a small group of women found the available support effective. Respectful, individualized care was a critical facilitator of positive outcomes. Paper II identified four clusters: Resourceful–Robust, Resourceful–Fearful, Vulnerable–Fearful, and Fragile–Fearful. Women in the Vulnerable–Fearful and Fragile–Fearful clusters showed the highest levels of anxiety and depression, coupled with the lowest self-efficacy. Paper III reported that fathers experienced anxiety, stress, and a lack of recognition for their emotional needs within the maternal-focused healthcare system. The stigma of expressing vulnerability, compounded by societal expectations of stoicism, often deterred men from seeking help. Individualized support and proactive engagement from healthcare providers were identified as critical to addressing these issues. Paper IV showed that the women had FOC long before their first pregnancy. The women’s fear was to a very small degree about actual risks of injury, illness and death. Instead, they were afraid of being stripped of control over themselves and the situation, not being treated respectfully, being abandoned and the risk of medical procedures being performed without their consent. In summary, FOC is closely tied to mental health, self-efficacy, and the quality of available support systems. Women and men experience FOC differently, necessitating gender-sensitive approaches in childbirth and postpartum care. The results suggest that providing empathetic and individualized care, and addressing systemic barriers, may reduce FOC and improve perinatal outcomes. The findings underscore the need for tailored interventions, particularly for those with heightened vulnerability to mental health challenges.

Place, publisher, year, edition, pages
Uppsala: Acta Universitatis Upsaliensis, 2025. p. 66
Series
Digital Comprehensive Summaries of Uppsala Dissertations from the Faculty of Medicine, ISSN 1651-6206 ; 2118
Keywords
Anxiety, barriers, birth, cluster analysis, counselling, depression, experiences, facilitators, fathers, FOBS, FOC, maternity care, mental health, mixed method, support preferences, pregnancy, self-efficacy, women
National Category
Gynaecology, Obstetrics and Reproductive Medicine Medical and Health Sciences
Identifiers
urn:nbn:se:uu:diva-548541 (URN)978-91-513-2363-3 (ISBN)
Public defence
2025-03-14, Rum IX, Universitetshuset, Biskopsgatan 3, Uppsala, 13:00 (Swedish)
Opponent
Supervisors
Available from: 2025-02-21 Created: 2025-01-27 Last updated: 2025-02-21

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Nordin-Remberger, CaritaWells, Michael B.Woodford, JoanneLindelöf, Karin S.Johansson, Margareta

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