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Exploring adults' recollections of growing up with childhood motor difficulties: a qualitative study using systematic text condensation
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Perinatal, Neonatal and Pediatric Cardiology Research.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Social medicine/CHAP.ORCID iD: 0000-0001-7257-8758
Univ South Wales, Pontypridd, Wales..
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, CIRCLE – Complex Intervention Research in Health and Care. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Social medicine/CHAP.ORCID iD: 0000-0002-9212-8452
2024 (English)In: BMJ Open, E-ISSN 2044-6055, Vol. 14, no 8, article id e084346Article in journal (Refereed) Published
Abstract [en]

Objective: To explore the ramifications of childhood motor difficulties, providing insights into their impact and consequences over time.

Design: A qualitative study using semistructured individual interviews. Data were analysed using systematic text condensation.

Setting: Neonatal intensive care recipients born at Uppsala University Children's Hospital, Uppsala, Sweden, between 1986 and 1989, were enrolled in a longitudinal follow-up study and subsequently interviewed in 2019-2020.

Participants: 13 individuals in their early 30s, who met the criteria for developmental coordination disorder or performed below the 5th percentile on motor tests at 6.5 years of age, were interviewed. Those with co-occurring deficits in attention or social behavioural at age 6.5 were excluded.

Results: Two themes emerged: (1) lifelong challenges and (2) navigating the journey of motor difficulties: support, awareness and confidence. Five participants reported persistent motor difficulties. They adapted and integrated these challenges into their daily lives without feeling constrained. Parental support was crucial to their success, whereas support from schools was limited.

Conclusion: Adults who faced motor difficulties in childhood developed effective coping strategies, overcame challenges and now lead fulfilling lives. The findings stress the importance of parental support and understanding, addressing contextual factors and fostering positive attitudes and supportive environments to enhance well-being and participation.

Place, publisher, year, edition, pages
BMJ Publishing Group Ltd, 2024. Vol. 14, no 8, article id e084346
Keywords [en]
developmental neurology & neurodisability, neonatology, quality of life
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Other Health Sciences
Identifiers
URN: urn:nbn:se:uu:diva-539393DOI: 10.1136/bmjopen-2024-084346ISI: 001312973500001PubMedID: 39122399OAI: oai:DiVA.org:uu-539393DiVA, id: diva2:1909815
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Gillbergska stiftelsenRegion UppsalaUppsala UniversityAvailable from: 2024-11-01 Created: 2024-11-01 Last updated: 2024-11-01Bibliographically approved

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Zahlander, JohannaFäldt, AnnaJohansen, Kine

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