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Adolescent and parental proxy online record access: analysis of the empirical evidence based on four bioethical principles
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Participatory eHealth and Health Data Research Group.ORCID iD: 0000-0003-2835-0259
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Participatory eHealth and Health Data Research Group.ORCID iD: 0000-0002-6839-3651
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Participatory eHealth and Health Data Research Group.ORCID iD: 0000-0002-0205-1165
2025 (English)In: BMC Medical Ethics, E-ISSN 1472-6939, Vol. 26, no 1, article id 27Article in journal (Refereed) Published
Abstract [en]

During recent decades, providing patients with access to their electronic health records (EHRs) has advanced in healthcare. In the European Union (EU), the General Data Protection Regulation provides individuals with the right to check their data in registries such as EHRs. A proposal for a European Health Data Space has been launched, which will further strengthen patients’ right to have online access to their EHRs throughout Europe. Against these policy changes, scant attention has been paid to the ethical question about whether adolescents and parents should access the adolescent’s EHR, and if so, under what conditions.

Place, publisher, year, edition, pages
BioMed Central (BMC), 2025. Vol. 26, no 1, article id 27
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Medical Ethics
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URN: urn:nbn:se:uu:diva-551242DOI: 10.1186/s12910-025-01182-9ISI: 001427010700001PubMedID: 39979965Scopus ID: 2-s2.0-85218710274OAI: oai:DiVA.org:uu-551242DiVA, id: diva2:1939474
Available from: 2025-02-22 Created: 2025-02-22 Last updated: 2025-06-23Bibliographically approved

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Hagström, JosefinHägglund, MariaBlease, Charlotte

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