Logo: to the web site of Uppsala University

uu.sePublications from Uppsala University
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
"ChatGPT knows my Parkinson's": Perspectives of people with Parkinson's disease on use of generative AI.
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Participatory eHealth and Health Data Research Group.ORCID iD: 0009-0000-2442-2775
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Participatory eHealth and Health Data Research Group.ORCID iD: 0000-0003-0908-6173
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Participatory eHealth and Health Data Research Group.ORCID iD: 0000-0003-4031-1965
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Participatory eHealth and Health Data Research Group. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Disciplinary Domain of Medicine and Pharmacy, research centers etc., Centre for Disability Research.ORCID iD: 0000-0002-2256-7310
Show others and affiliations
2026 (English)In: Journal of Parkinson's Disease, ISSN 1877-7171, E-ISSN 1877-718X, p. 1877718X261445949-, article id 1877718X261445949Article in journal (Refereed) Published
Abstract [en]

Patients' use of generative AI (GenAI) independently from healthcare is increasing across diseases. Little is known about its use among people with Parkinson's disease (PwP). This exploratory convenience-sample, mixed-methods online survey (n = 149, 19 countries) explored PwP's use of GenAI. Among our respondents, 65% had used GenAI, of which 40% had used it for disease-specific inquiries. Qualitative analysis identified informational, interpretive, and preparational uses of GenAI. As PwP increasingly bring AI-assisted data to consultations, clinicians must now actively engage in discussions about these tools, to support shared decision-making, safety and transparency.

Place, publisher, year, edition, pages
2026. p. 1877718X261445949-, article id 1877718X261445949
Keywords [en]
generative AI, mixed-methods, patient perspectives, self-management
National Category
Medical Informatics
Identifiers
URN: urn:nbn:se:uu:diva-584868DOI: 10.1177/1877718X261445949PubMedID: 42029656OAI: oai:DiVA.org:uu-584868DiVA, id: diva2:2055656
Available from: 2026-04-26 Created: 2026-04-26 Last updated: 2026-04-26

Open Access in DiVA

No full text in DiVA

Other links

Publisher's full textPubMed

Authority records

Luckhaus, JamieKharko, AnnaScott Duncan, ThereseRiggare, SaraHägglund, MariaBlease, Charlotte

Search in DiVA

By author/editor
Luckhaus, JamieKharko, AnnaScott Duncan, ThereseRiggare, SaraHägglund, MariaBlease, Charlotte
By organisation
Participatory eHealth and Health Data Research GroupCentre for Disability Research
In the same journal
Journal of Parkinson's Disease
Medical Informatics

Search outside of DiVA

GoogleGoogle Scholar

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 34 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf