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Mapping Patients' Online Record Access Worldwide: Preliminary Results from an International Survey of Healthcare Experts
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Participatory eHealth and Health Data Research Group.ORCID iD: 0000-0003-0908-6173
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Women's and Children's Health, Participatory eHealth and Health Data Research Group.ORCID iD: 0000-0002-0205-1165
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2024 (English)In: Studies in Health Technology and Informatics, ISSN 0926-9630, E-ISSN 1879-8365, Vol. 310, p. 114-118Article in journal (Refereed) Published
Abstract [en]

While research on the effects of patient access to health records is increasing, a basic understanding of the spread of patient-accessible electronic health records worldwide is lacking. In this survey of healthcare experts with professional and personal experience from 29 countries, we explored the state of patient online record access (ORA). We asked participants whether ORA exists in their country and which information is available through it. Experts in all polled countries reported having some national access to health records, with 6 (21%) countries providing exclusively paper-based records and 23 (79%) countries having ORA. Overview of test/lab results and prescription/medication lists were the most commonly available information. Free-text clinical notes were accessible in less than half of the surveyed countries (12, 41%). We will continue to map the state of patient ORA, focusing on traditionally underrepresented countries.

Place, publisher, year, edition, pages
IOS Press, 2024. Vol. 310, p. 114-118
Keywords [en]
EHR, ORA, PAEHR, Patient accessible electronic health records, electronic health record, online record access, patient portal
National Category
Health Care Service and Management, Health Policy and Services and Health Economy
Research subject
Medical Informatics; Medical Radiophysics
Identifiers
URN: urn:nbn:se:uu:diva-521622DOI: 10.3233/SHTI230938ISI: 001281987600023PubMedID: 38269776OAI: oai:DiVA.org:uu-521622DiVA, id: diva2:1831531
Available from: 2024-01-25 Created: 2024-01-25 Last updated: 2024-09-11Bibliographically approved

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Kharko, AnnaBlease, CharlotteHägglund, Maria

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