In this thesis the self-perceived health status of 16 adults that had been diagnosed with IIH as children or adolescents in the health care region mid Sweden and that were followed-up as adults are presented. The self-perceived health status was measured by the SF-36 and HIT-6. Possible prognostic markers of health were collected from patient files and possible correlates of adult health were measured or obtained by interviews at follow-up. While visual acuity had returned to near-normal levels for all participants, half of the participants still had headaches with a substantial or severe impact on their health. Furthermore, their mental health was significantly worse than that of an US-American population norm and it could be predicted by both iso BMI and intracranial pressure at diagnosis. Most other variables did not have a significant impact on the participants health.