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Caring for the Carers: A Feasibility Study on the Acceptance and Use of a Web-Based Application to Support Informal Caregivers of Individuals with Head and Neck Cancer
Uppsala University, Disciplinary Domain of Science and Technology, Mathematics and Computer Science, Department of Information Technology, Computerized Image Analysis and Human-Computer Interaction. Uppsala University, Disciplinary Domain of Science and Technology, Mathematics and Computer Science, Department of Information Technology, Division Vi3.ORCID iD: 0000-0001-6947-9409
Uppsala University, Disciplinary Domain of Science and Technology, Mathematics and Computer Science, Department of Information Technology, Division Vi3. Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Human-Computer Interaction. Uppsala University, Disciplinary Domain of Science and Technology, Mathematics and Computer Science, Department of Information Technology, Computerized Image Analysis and Human-Computer Interaction. Uppsala University, Disciplinary Domain of Science and Technology, Mathematics and Computer Science, Department of Information Technology, Division of Computing Science. Uppsala University, Disciplinary Domain of Science and Technology, Mathematics and Computer Science, Department of Information Technology, Computing Science.ORCID iD: 0000-0003-0732-7009
Uppsala University, Disciplinary Domain of Science and Technology, Mathematics and Computer Science, Department of Information Technology, Computerized Image Analysis and Human-Computer Interaction. Uppsala University, Disciplinary Domain of Science and Technology, Mathematics and Computer Science, Department of Information Technology, Computing Education Research. Uppsala University, Disciplinary Domain of Science and Technology, Mathematics and Computer Science, Department of Information Technology, Division Vi3. Uppsala University, Disciplinary Domain of Humanities and Social Sciences, Faculty of Social Sciences, Department of Informatics and Media, Human-Computer Interaction.ORCID iD: 0000-0001-7472-2215
Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Public Health and Caring Sciences, Caring Sciences. Uppsala University, Disciplinary Domain of Medicine and Pharmacy, Faculty of Medicine, Department of Immunology, Genetics and Pathology, Cancer precision medicine.ORCID iD: 0000-0001-6226-6849
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2025 (English)In: Human Behavior and Emerging TechnologiesArticle in journal (Refereed) Submitted
Abstract [en]

Background

Informal caregivers (ICs) of individuals with head and neck cancer (HNC) often face heavy responsibilities with little preparation or support. Web-based health applications might be beneficial in this context, but their acceptance and influence on ICs' well-being require further investigation.

Objective

This study examines the acceptance and use of a web-based application designed to improve ICs' preparedness for caregiving and support their well-being. It also extends the Unified Theory of Acceptance and Use of Technology (UTAUT) with eudaimonic motivation, defined as the drive for personal growth, purpose, and self-actualisation, to explore how the application may enhance ICs’ well-being.

Methods

A multicentre feasibility study was carried out at ear, nose, and throat, oncology, and radiotherapy clinics across four Swedish university hospitals. Nineteen ICs took part in semi-structured interviews after five weeks of using Carer eSupport. Data were analysed through deductive thematic analysis guided by the extended UTAUT model.

Results

ICs perceived Carer eSupport as relevant and helpful in strengthening competence and preparedness. Barriers included information overload, lack of personalisation, and usability challenges. Participants recommended adding online forums, meetings with healthcare professionals, psychological support, and a more aesthetically improved layout.

Conclusion

Web-based applications have the potential to improve ICs’ preparedness and well-being if barriers to acceptance and use are addressed. Extending UTAUT with eudaimonic motivation provided new insights into how such applications can meet ICs’ intrinsic needs and support acceptance. This feasibility study lays the foundation for a forthcoming randomised controlled trial to evaluate the effectiveness of the application.

Place, publisher, year, edition, pages
2025.
Keywords [en]
Human-centred design, UTAUT, Eudaimonic motivation, Designing for well-being, Head and neck cancer, Informal caregiving
National Category
Engineering and Technology
Identifiers
URN: urn:nbn:se:uu:diva-578425OAI: oai:DiVA.org:uu-578425DiVA, id: diva2:2035244
Available from: 2026-02-04 Created: 2026-02-04 Last updated: 2026-06-29
In thesis
1. Designing for Well-being: A Human-Centred Design Approach to a Web-based Application to Support Informal Caregivers
Open this publication in new window or tab >>Designing for Well-being: A Human-Centred Design Approach to a Web-based Application to Support Informal Caregivers
2026 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Healthcare systems worldwide face increasing pressure due to resource limitations and the rising care demands of ageing populations. In cancer care, the shift from hospital-based treatment to home environments has placed much of the daily caregiving on family members. Known as informal caregivers (ICs), these individuals provide unpaid support, often taking on this role out of necessity rather than choice. They frequently lack access to the information and resources required for effective caregiving at home.

These increased responsibilities, combined with insufficient support, have significant implications for ICs’ well-being. Well-being is a multidimensional concept that includes physical health, mental state, and emotional stability. It is particularly vulnerable during major life transitions, such as when a close relative is diagnosed with a severe illness. ICs of individuals with head and neck cancer (HNC) are especially affected. This thesis is part of the Carer eSupport project, which aims to develop and evaluate a web-based application to support ICs.

The thesis aims to provide guidelines for developing and evaluating web-based applications that support the well-being of ICs of individuals with HNC. It also identifies factors that influence the acceptance and use of such applications. In doing so, the thesis highlights the situation of ICs, who play an essential role in cancer care but often receive limited support.

The thesis comprises five journal articles. A human-centred design process guided the overall work. Qualitative methods, including focus groups and interviews, were primarily used. Empirical data were analysed through thematic analysis.

Findings highlight challenges faced by ICs, including exclusion from healthcare processes, disruptions to daily routines, uncertainty about treatment outcomes, and shifts in identity and relationships. The results emphasise the need to address both functional needs, such as tailored information and structured support, and psychosocial challenges.

Acceptance and use depend on usability, trust, emotional relevance, and support from the healthcare system. Web-based applications can strengthen ICs' preparedness and support well-being when they are accessible, credible, and connected to human support. Designing for ICs’ well-being, therefore, requires approaches rooted in their daily routines and backed by healthcare systems that recognise ICs as partners in cancer care.

Place, publisher, year, edition, pages
Uppsala: Acta Universitatis Upsaliensis, 2026. p. 107
Series
Digital Comprehensive Summaries of Uppsala Dissertations from the Faculty of Science and Technology, ISSN 1651-6214 ; 2639
Keywords
Human-centred design, Designing for well-being, Positive design, UTAUT, Eudaimonic motivation, Head and neck cancer, Informal caregiving, Preparedness for caregiving
National Category
Engineering and Technology
Research subject
Computer Science with specialization in Human-Computer Interaction
Identifiers
urn:nbn:se:uu:diva-578447 (URN)978-91-513-2737-2 (ISBN)
Public defence
2026-03-27, 101195, Heinz-Otto Kreiss, Ångström, Regementsvägen 10, Uppsala, 13:15 (English)
Opponent
Supervisors
Available from: 2026-03-02 Created: 2026-02-04 Last updated: 2026-03-26

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Ahmad, AwaisPremanandan, ShwetaCajander, ÅsaJohansson, BirgittaCarlsson, MariaHenriksson, AnnaPettersson, MonaTiblom Ehrsson, YlvaLangegård, Ulrica

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Ahmad, AwaisPremanandan, ShwetaCajander, ÅsaJohansson, BirgittaCarlsson, MariaHenriksson, AnnaPettersson, MonaTiblom Ehrsson, YlvaLangegård, Ulrica
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Computerized Image Analysis and Human-Computer InteractionDivision Vi3Human-Computer InteractionDivision of Computing ScienceComputing ScienceComputing Education ResearchCaring SciencesCancer precision medicineCentre for Research and Development, GävleborgResearch in Disability and HabilitationCentre for Research Ethics and BioethicsOtolaryngology and Head and Neck Surgery
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